DNA Today: A Genetics Podcast

#322 Susannah’s Nano-Rare Journey: 2 Years of Treatment and Triumph


Listen Later

Two years of treatment—two years of strength, courage, and blazing a trail for other nano-rare patients! 

 

In this special episode drop, we’re revisiting the inspiring journey of Susannah, whose story was the first ever shared on the Patient Empowerment Program podcast. Now, two years later, Susannah’s father, Luke Rosen, and her physician, Dr. Jennifer Bain, join us to share her remarkable progress since beginning regular treatments. They highlight incredible improvements in Susannah’s motor skills, cognition, energy, and overall quality of life.

 

This episode originally aired on the Patient Empowerment Program podcast, where our host, Kira Dineen, serves as a producer. You might even recognize her voice in some of the promos and ads for the show!

 

For long-time listeners of DNA Today, you might recall that we shared the pilot episode of the Patient Empowerment Program podcast featuring Susannah’s story back in Episode 186. Now, we’re thrilled to bring you this heartwarming update to see how far Susannah has come and to celebrate her incredible resilience.

 

Be sure to check out more episodes of the Patient Empowerment Program podcast, which focuses on empowering nano-rare patients and their families. Search for the podcast in your favorite podcast app or visit its listing on n-Lorem’s website.

 

Get ready, genetic nerds—another brand-new episode of DNA Today drops this Friday! You can always count on us to deliver fresh content every Friday. 

 

While you wait, why not dive into our library of over 300 episodes? Binge them all on Apple Podcasts, Spotify, our website, or wherever you love to listen—just search “DNA Today.”

 

Prefer watching? We’ve got you covered! For the past four years, we’ve been recording episodes with video, including some filmed at the iconic NBC Universal Stamford Studios. Check them out on our YouTube channel

 

DNA Today is hosted and produced by Kira Dineen, MS, LCGC, CG(ASCP)CM . Our Video Lead is Amanda Andreoli. Our Social Media Lead is Kajal Patel. Our Outreach Intern is Liv Davidson. And our logo Graphic Designer is Ashlyn Enokian, MS, CGC. 

 

See what else we are up to on Instagram, X (Twitter), BluSky, Threads, LinkedIn, Facebook, YouTube and our website, DNAToday.com. Questions/inquiries can be sent to [email protected]

...more
View all episodesView all episodes
Download on the App Store

DNA Today: A Genetics PodcastBy Kira Dineen

  • 4.7
  • 4.7
  • 4.7
  • 4.7
  • 4.7

4.7

152 ratings


More shows like DNA Today: A Genetics Podcast

View all
Science Friday by Science Friday and WNYC Studios

Science Friday

6,088 Listeners

Nature Podcast by Springer Nature Limited

Nature Podcast

765 Listeners

Science Magazine Podcast by Science Magazine

Science Magazine Podcast

807 Listeners

The Moth by The Moth

The Moth

27,246 Listeners

This Week in Virology by Vincent Racaniello

This Week in Virology

2,045 Listeners

This Week in Microbiology by Vincent Racaniello

This Week in Microbiology

510 Listeners

TED Radio Hour by NPR

TED Radio Hour

22,136 Listeners

JAMA Clinical Reviews by JAMA Network

JAMA Clinical Reviews

488 Listeners

Hidden Brain by Hidden Brain, Shankar Vedantam

Hidden Brain

43,439 Listeners

Science Vs by Spotify Studios

Science Vs

11,994 Listeners

Code Switch by NPR

Code Switch

14,505 Listeners

The Science of Happiness by PRX and Greater Good Science Center

The Science of Happiness

1,869 Listeners

The Genetics Podcast by Sano Genetics

The Genetics Podcast

43 Listeners

Chasing Life by CNN

Chasing Life

8,223 Listeners

People I (Mostly) Admire by Freakonomics Radio + Stitcher

People I (Mostly) Admire

2,150 Listeners