The Rare Life

38: Social Media + SN Community w/ Jess Wolff


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Social media can benefit many kinds of people, but perhaps none so much as special needs parents. So many of us have feelings of isolation from friends and family as we are thrown into a world they don’t understand. Enter other parents who get it.

Social media can connect us with other parents navigating similar medical and other needs. We can feel seen and heard and get ideas on how to make our lives easier.

In this episode, Jess Wolff shares her unique perspective on Instagram, with over 40k followers and a tight-knit community of parents that have made the two years with her daughter Lily so much more doable. In it we wonder together how special needs parents did it all in a world before social media existed.

Links:

Follow Jess on Instagram @LilysLittleLungs here: https://www.instagram.com/lilyslittlelungs/

Follow me on Instagram @the_rare_life here: https://www.instagram.com/the_rare_life/

Join the FB group Parents of Children with Rare Medical Conditions here: https://www.facebook.com/groups/parentsofrare

Jenny’s episodes: https://therarelifepodcast.com/show-notes/ep-23-story-jamesand https://therarelifepodcast.com/show-notes/ep-24-disability-advocacy-state-level-w-jenny-mclelland

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The Rare LifeBy Madeline Cheney

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