Effie knew something was “off” with Ford from the day he was born, four years ago. After four months of being blown off by his pediatrician, Ford was admitted to the children’s hospital where he was analyzed and given an official (and extremely rare) diagnosis. Effie was completely blindsided and crushed.

In this episode, Effie shares this experience of receiving Ford’s diagnosis. We also chat about the huge perspective-shift that comes along with a child with medical complexities—the little things are everything. Effie also talks about the precious relationship Ford shares with his younger sister Ezzy, as well as the bittersweet moments of watching Ezzy develop typically.

Effie Parks is the amazing host of the podcast Once Upon a Gene. You can find a link to her podcast in the show notes!

Links

Answer the Q of the Month and see photos of Effie + fam: https://therarelifepodcast.com/

Effie’s podcast Once Upon a Gene: https://effieparks.com/podcast

Follow Effie on Instagram: https://www.instagram.com/onceuponagene.podcast/

Follow me on Instagram: https://www.instagram.com/the_rare_life/