The Rare Life

49: The Story of Anna


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Have you ever felt inadequate to mother your child because of their diagnosis? In this episode, Katherine shares what it was like to find out her daughter Anna had achondroplasia—the most common form of dwarfism—during a 32-week ultrasound. As she researched the condition and faced the stigma she would help her daughter navigate throughout her life, she felt Anna would be better off adopted by adults with achondroplasia. Anna’s birth was just what she needed to out of that headspace. She found healing in just loving and snuggling her daughter and found her voice in advocating for her medical care. It was then that she discovered her competence in her role as Anna’s mom.

Links:

Check out our sponsor BetterHelp counseling and get 10% off here.

Listen to Emily Young’s episodes about her daughter Nora with achondroplasia here and here.

See photos of Katherine and her family on the website here.

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The Rare LifeBy Madeline Cheney

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