The Rare Life

62: Hospitalizations w/ Erica Ryan


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Erica and Shaun learned quickly what works well during hospitalizations and what doesn’t during the 526 days they spent inpatient with their son Westly.

After 526 days spent inpatient with their son Westly, Erica and her husband Shaun are alleged pros. They learned pretty quickly what works well—and what doesn’t.

I met her a year ago when she sent me a copy of her Extended Stay Notebook, a spiral bound notebook meant for tracking medical happenings, and staying on top of things while at the hospital. She and her husband co-created it, in hopes of giving other parents in their situation the confidence and know-how needed to progress safely towards discharge.

In this episode, we chat about her inspiration for the creation of the notebook, and she gives us her top three pieces of advice as we navigate hospitalizations with our children.

Links:

Check out the Extended Stay Notebook by Erica and Shaun Ryan.

Listen toEp. 58: Medical Advocacy w/ Tameka Diaz.

Listen to Ep. 9: Taking Charge of Your Therapy and Medical Team.

Follow Erica on Instagram.

Follow me on Instagram.

Answer this month’s question.

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The Rare LifeBy Madeline Cheney

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