As a ‘white African’ growing up in Nigeria Ikponwosa Ero was well aware of the danger some people with the condition face. In June 2015 she was appointed the first UN Independent Expert on the enjoyment of human rights by persons with albinism and campaigns against stigmatisation, myths and violence.

 

Connie Chiu is known as the first international fashion model with albinism. Born in Hong Kong she and her family moved to Sweden when she was a child to avoid harsh sunlight and in an effort to help her 'fit in.' She talks about challenging conventional ideas of beauty and wants to dispel the myth that albinism is limiting.

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Left: Ikponwosa Ero (credit: A F Rouen)

Right: Connie Chiu (credit: Ellis Parrinder)