Alopecia Life

Thank you for joining us for this episode of Alopecia Life. Today's guest is Dr. Elyssa Green. Dr. Elyssa is a woman making a significant impact in the world of alopecia. After being diagnosed with alopecia in 2022, she shaved her head and embraced the beauty of baldness. Even though that sounds like an easy 2-step process, she shares the personal challenges and triumphs that led her to help others struggling with the diagnosis and all that comes with the hair loss journey. Dr. Green established Bald Bozz Beauty or B3 to advocate and bring awareness to alopecia. The mission of B3 is to provide highlights in the areas of Style, Health, and Education that impact the bald community. It's exciting to have her here today to share more. 

Thank you for sharing your time with Dr. Elyssa Green and me today. For ways to reach out, the links are here in the show notes, along with her website to find out more.

Contact:
https://www.instagram.com/baldbozzbeauty/
FBbaldbossbeauty
https://www.tiktok.com/@baldbossbeauty
https://www.linkedin.com/in/elyssagreen/
https://www.bthree.org/

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Welcome to Season 6 of Alopecia Life. Each September, I have a back-to-school episode and find a guest to share how to make the transition easier. Historically, these are the ones that parents ask me about the most too. Our guest today is Jodie Lee. Jodie is a dedicated educator with 15 years of experience as a high school teacher. She is a passionate advocate for celebrating diversity and fostering inclusivity in schools. Jodie is the proud mother of two daughters, and her youngest, Makenna, was diagnosed with alopecia. When Jodie registered Makenna for school, she searched for a book that would highlight her daughter's bravery in confidently walking into school looking different from her classmates. Unable to find a suitable story, Jodie took matters into her own hands and wrote one herself. This endeavor was not just about her daughter's experience but also about the many challenges that students face in school environments.

In 2022, Jodie expanded her mission and founded *Different at School*, an organization dedicated to celebrating what makes each of us unique. The organization focuses on educating others about the diverse challenges students face while encouraging all students to become strong individuals of character.

Jodie is the perfect guest for this season's back-to-school episode. 

Thank you for sharing your time with Jodie and me today. You can find all of the ways to connect with Different at School here in the show notes. As always, we love seeing your questions and comments over on socials.

Instagram

Facebook 

Different At School Website

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Welcome to this episode of Alopecia Life. Our next guest is Ava Hanssen. I first heard about Ava when the Children's Alopecia Project reached out to say thank you for featuring them on her race car. Her racing background is super interesting, and after hearing more about who she is and what she wants to accomplish in the racing world, I thought you would all be excited to hear more about her racing, especially if you're like me and have a fairly limited bit of knowledge around the racing world. Ava started racing go karts at 4 years old, and her competitive nature now has her racing an F1600 going upwards of 130mph at the age of 14. Here's more from Ava.

Thank you for sharing your time with Ava and me.To learn more about Ava, follow her on social media, and even perhaps offer sponsorship for her racing endeavors, please check out those links here in the show notes. Her racing accomplishments are pretty impressive.Thanks again to Ava for raising awareness for the Children's Alopecia Project.

https://avahanssenracing.com/

FB: https://www.facebook.com/ava.hanssen.31

IG: https://www.instagram.com/_ava_hanssen_/

Recent News Story: CBS58 News

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

 Welcome to this episode of Alopecia Life. For those who have listened to past episodes, you may remember the 3 healthy habits to have in our lifestyle toolbelt that Integrative Nutrition and Gut Health Coach, Lisa Taylor, provided to all of us to start and continue a self-healing journey. Lisa is back to share about her upcoming FREE masterclass in March, along with her 12 week Alopecia Warrior Self-Healing collective group program. I believe we are becoming more empowered with our health. There's more information, more insight into root cause, along with more resources for us to be the healthiest version of ourselves. It's exciting to be able to bring the information that Lisa has to Alopecia Life listeners, especially when we are in a time of so much input and noise around gut health and it's easy to get confused by it all. Lisa has always been able to make the process of healing as easy as it can be without overwhelm, which is one of the reasons I continue having her back. 

Thank you so much for sharing your time with Lisa and me today. For those who are looking for more information to the Masterclass in March, those links can be found here in the show notes, along with a link to the website and her Facebook community.

Register for masterclass (registration ONLY open until : www.reversemyalopecia.com
Join my free Facebook community: Alopecia Warriors for Holistic Healing
Learn more about my self-healing programs: www.yourbestlifewithlisa.com 

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Thank you for joining us for this first Alopecia Life episode of 2024. It's a new year, and I'm so excited to have a feel-good story for you today. Our guests today are Allison & Anthony. I found out about this fabulous family within a group where Allison shared about the hat collection that was growing exponentially after they started a small ask of their friends and family to help support Anthony. Due to the number of hats they were receiving, she knew she wanted to find more kids who might be interested in receiving a hat so she could send them one. When we originally spoke, they were about 2 weeks into their diagnosis. The hat collection was up to 1500 hats and they were looking to donate what they could. Today's interview was at the 6 week mark, and I was impressed to learn more about what's now become Operation Hat Drop and the kindness of the D'Alessandro family and to share it with all of you.

*More from Allison: "What started as a hat collection for our son to help him cope with alopecia, has morphed into a movement of kindness. People from all walks of life have come together to help Anthony and other children like him, smile, through the gift of hats...As long as there are hats to send, we plan to keep going!"

Thank you for sharing your time with us today. Throughout the interview, Allison shared about the importance of education and awareness, and the ability to do that with Operation Hat Drop has been an amazing opportunity for them to do that as a family. 

For those of you who are interested in sending a new hat to Anthony or to another child, please check out the show notes for the mailing address. If you are interested in receiving a hat, please reach out on Instagram  @operationhatdrop to request one. All their contact information can also be found here in the show notes. The alopecia community is one filled with amazing help. If you would like to support them as they ship the hats out, I know the gesture would be appreciated. I'm curious about the unique ways in which this can happen.

IG @operationhatdrop

email: [email protected]

(NEW) Hats can kindly be sent to:

358 Atlantic Ave

Massapequa Park, NY 11762

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

 Welcome to this episode of Alopecia Life. A few months ago, I was talking with Kylie, another CAP mentor, who expressed an interest in helping college-bound kids share their alopecia story in the essay portion of their college application. I thought it was a fantastic idea, and got to work looking for the perfect podcast guest to speak on this topic, and found Jill Shulman. Jill is the author of College Admissions Cracked: Saving Your Kid (and Yourself) From the Madness. She is an established College Admissions expert who offers an empowering, low-stress approach to succeeding in the admissions process. She has so much knowledge and experience around the topic, and I can't wait for you all to meet her and hear what she has to share. 

*More About Jill: Jill is the founder of In Other Words, a college essay coaching service, and has evaluated thousands of applications in admissions offices at top colleges. She has taught writing at The New School and City University of New York; appeared in the news at Forbes, the La Times, CNN, and NEPR; written for the New York Times, Family circle, Parents, and O the Oprah Magazine. Jill has recently launched IntrepidApplicant.com to help decrease anxiety for students writing the college application personal essay. 

Thank you so much for sharing your time with Jill and me today. To find out more about Intrepid Applicant, order her book, or take advantage of all the free resources she has on her website, check out the show notes for her website and ways to find her on social media. We also have a link here in the show notes for The Price You Pay For College by Ron Lieber with practical advice and outstanding reporting.

Website JillShulman.com

Book College Admissions Cracked: Saving Your Kid (and Yourself) From the Madness

Intrepid Applicant for writing a knockout college personal essay

https://www.facebook.com/jillmargaretshulman

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

 Welcome to this episode of Alopecia Life. The time for gatherings is here. Holidays, work parties, get-togethers with friends and family that "should" be fun. But...sometimes these gatherings turn into colossal upsets due to well-meaning or misguided family and  friends. Of course, there does tend to be one total ass-hat who likes to take up space too. The early days of being diagnosed can be increasingly difficult with all of these events that we're expected to attend. 

Over the years, I've heard from others living with alopecia that they don't feel supported, and that holiday meals are overtaken with conversation about their hair loss, re-growth, what they are choosing to wear on their heads, and the new treatment options that are available. 

For those who are listening and are looking for ways to support us...here are a few do's and don't's. 

Don't - Touch our head unless you've been given permission. Don't stroke our wig, ask us to be free and take our hat or scarf off, and definitely NEVER lick our heads in a drunken gesture of affection. Yes, that has happened to me. Not cool. 

Do - Ask us how our life is outside of our hair loss. We are so much more than our hair. Smile at us, include us in conversation about food, sports, television shows, and the things that interest us. Don't be weird.

For those of us who are on the receiving end of comments from colleagues, and family members who just don't quite get it yet, establish some boundaries. Not everybody is out to get us, as we know, but sometimes it feels like that. Determine whether it's time to educate, give them the bird, or just walk away and take time to yourself in a safe place or with a safe person. My hope is that you have a safe person who has your back. If you know there's always that auntie who just can't keep her comments to herself, roleplay with your safe person to come up with a response that feels right. Education can be taken on by family or a trusted friend too, and sometimes that may look like them taking that challenging person aside and telling them that google exists for a reason, and go look it up to get educated, point them to some helpful resources, or just tell them to shut the hell up. 

However you choose to spend your holidays, know that your boundaries can be set and expanded on. You are not alone. Take your safe person, have some quick answers, and enjoy the season. I'd love to hear your good and bad holiday stories of things that have been said or done. Let's connect over all of these things over on the FB Alopecia Life group page, on Instagram or through reaching out to me in person. 

If you're looking for resources to point family to, I have a FREE Alopecia 101 course that maps it all out for them. I've put that link here in the show notes. https://www.alopecialife.com/alopecia-areata-online-course/

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Thank you for listening to today's podcast. Back in September of this year, I re-interviewed Skye from season 2 of Alopecia Life to get an update on how things had changed for Ohna from when she was 9 until now at 13 with regards to school. Back then, It was 2020, and we were talking about back-to-school at a very strange and uncertain time. Today's interview is with Skye only. Ohna has given us the go-ahead and trust to share about her experience through Skye's own perspective. As we move into the holiday season, I know having a back-to-school podcast is a little off-topic, but the wisdom she shares is always good information to file away for any season.

Please note, there are a couple F-bombs thrown into the interview. 

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Welcome to this episode of Alopecia Life. Today's guest is Deanna Beattie of Freedom Wigs. Freedom Wigs has a unique origin story and an even more unique continuation of that story. As I was talking with Deanna, I discovered more about her as a mother, about someone who has a commitment and passion to provide a superior experience with Freedom Wigs, and takes into consideration knowledge, empathy, and respect for what goes into the process of making something so personal when someone is looking for a way to capture who they are with a hair piece. Thank you for sharing your time with us today. Here's our interview.

Thank you for listening to Alopecia Life today. I enjoyed learning more about Freedom Wigs, and I hope you did too. We would love to hear your feedback in the comments in the Alopecia Life FB group or over on Instagram. Those links that Deanna and I spoke of throughout the episode are available in the show notes. 

https://freedomwigs.com/

USA website for Freedom Independent Agents in the USA

https://freedomhairagentsusa.com/

 New Zealand website

https://freedomwigs.com/contact/independent-agents

For Har Donations in the US - Elouise will pack up the hair and send it to Australia to the Variety Foundation. Freedom Wigs is working on their connections with the Variety Foundation in the USA, but it is still a work in progress. Please reach out to Elouise to get the Hair from You to Me PDF to know the best method to cut and send your ponytail.

Top Knotch Hair Solutions

Attn: Elouise Johnson

31785 Byers Rd.

Menifee, CA 92584

(951) 805-1333

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

Welcome to this episode of Alopecia Life. Four years ago, Skylar Weaver set off on his mission to raise alopecia awareness while traveling through central America. As with most adventures and intentions, things come up that cause us to change direction, take a new route, and that's just what happened 7 months into the trip. It was great catching up with Skylar to see what the trip accomplished, not only for his own wellbeing, but also for the families and groups he met throughout the trip. Let's welcome Skylar back to Alopecia Life.

Thanks for spending your time with Skylar and me today. To find out more about Adventures for Alopecia and to follow Skylar on social media, those links are here in the show notes.

https://www.projectafa.org/

https://www.instagram.com/sky_earth_water/

https://www.facebook.com/AdventuresForAlopecia/

https://www.facebook.com/weaverskylar

I've also added the Argentina group that Skylar spoke about during the interview for you to take a look at. https://www.instagram.com/vivirconalopecia.argentina/

Support the show

Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/