Alzheimer's Speaks

Open Mic Allows You To Share Your Story, Service, Product, or Tool on Alzheimer’s Speaks Open Mic

Alzheimer's Speaks Open Mic helps us shift dementia care from crisis to comfort around the world one episode at a time.  We love raising all voices and delivering sound news, not just sound bites!  So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties to hold to have a respectful conversation.

Share your dementia or caregiving story. Tell us about your service, product, or tool you have that can help others dealing with dementia.  Have you written a book, penned, or produced a song or film?  If so, we want to hear from you.  Maybe you are working on a research project or have a trial you are promoting. 

We talked in detail about the new CMS Guide for Dementia to be implemented in 2024. Feel free to reach out to Brian Elliott with Memory Land Games at

Email - [email protected]

Website - www.MemoryLaneGamesDirect.com

Need help when caring for someone reach out to Tena Scallan found of The Ultimate Caregiving Expert at https://theultimatecaregivingexpert.com/

These conversations are always interesting.  Here are future recording dates if you would like to join us.

Feb. 20th
Mar. 19th
April 16th
May 21st
June 18th
July 16th
Aug. 13th
Sept. 17th
Oct. 15th
Nov. 12th
Dec. 17th

Contact Us To Be On The Next Open Mic  https://alzheimersspeaks.com/be-a-guest/

Website     https://alzheimersspeaks.com/alzheimers-speaks-radio/

Watch the interview on Youtube  https://youtu.be/vDqYJ8CiJlc?si=gSUZWD2zv6yTZA9p

Apple Podcast    https://podcasts.apple.com/us/podcast/open-mic-airs-on-alzheimers-speaks/id986940432?i=1000642872198

Spotify    https://open.spotify.com/episode/0kfRYzW7D8wfLgpLkq1BNi

Pod Links     https://pod.link/986940432

Contact Lori La Bey through Alzheimer’s Speaks

Website –  https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Being a Memory Holder

Lori La Bey talks with Francesca Lynn Arnoldy who is a community doula, educator, and published researcher as well as the author of numerous books.  Her writing focuses on mortality, grief, and healthy preparedness. She regularly presents on life-and-death topics with the hopes of encouraging people to support one another through times of intensity.

Learn:

1. What is a Death Doula
2. Three critical steps – preparing, planning, and process.
3. Personalizing Legacy
4. What are glimmers?
5. What does a Memory Holder do?
6. What exactly is a death journal and why is it important?
7. About Francesca Lynn Arnoldy books.

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/being-a-memory-holder/id986940432?i=1000642551192

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Contact Francesca Arnoldy

Website   https://francescalynnarnoldy.com/  

Email  [email protected]

YouTube  https://www.youtube.com/channel/UCBqZMIDYIhkHc7nbya74SzA

Instagram  https://www.instagram.com/francescalynnarnoldy/

Facebook  https://www.facebook.com/contemplativedoula

Books   https://bookshop.org/shop/contemplativedoula

Related blog posts: 

https://francescalynnarnoldy.com/2023/04/13/creative-care-for-dementia/

https://francescalynnarnoldy.com/2022/11/01/caregiving-and-dementia-connection-and-loss/

https://francescalynnarnoldy.com/2023/11/28/layers-of-loss/

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network. 

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Brain Health Mentors-Reducing Risks and Improving Brain Health

Lori La Bey talks with Heather Elwell who is the founder of Brain Health Mentors.  She has drawn on her experience as a speech-language pathologist and certified health and wellness coach.  Heather developed a program that helps mentor people in lifestyle modifications that can help reduce their risk of dementia and improve their brain health trajectory.

Learn:

1. What is a Brain Health Coach and what do they do?
2. Can we create new brain cells?
3. Are social groups important to maintaining brain health?
4. What does the “Legacy of Fear” mean?
5. What is the “Butterfly Effect”?
6. How does service and purpose impact brain health?
7. What does Brain Health Mentors offer?
8. About the Brain Health Challenge taking place in February?

Watch the Video Interview Below

https://youtu.be/sHVVEu2seOY

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/brain-health-mentors-reducing-risks-and-improving/id986940432?i=1000642051242

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/5y7ONFZWXCZRMIQZpX8Mse

Other Podcasts

https://pod.link/986940432

Contact Brain Health Mentors

• Website brainhealthmentors.com
• Sign up for the free February Brain Health Challenge

https://www.brainhealthmentors.com/brainhealthtips

• Brain Health Mentors on FB, Instagram, & LinkedIn

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Tony Shares His Story About Caring For His Partner Cat

Lori La Bey talks with Anthony Copeland-Parker, who shares his journey with his partner Catherine. They have both been endurance athletes. When Cat received a dementia diagnosis, nothing changed. Today, Tony will share with us about their journey, and his book about their love story called Running All over the World.

Learn:

1. How and why Tony broke the rule of living by routine with dementia and why it worked for them.
2. How Tony and Cat lived like Nomads.
3. To live with purpose and joy.
4. How to hold onto your relationship as dementia progresses.
5. To journal your story and how it can help you and others if you make it public.

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/running-all-over-the-world-with-dementia/id986940432?i=1000641762932

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/6zhPKTHx4wjoWg0snbozBR

Contact Anthony Copeland-Parker

Website        https://runningwithcat.com/

Facebook     https://www.facebook.com/RAOTW

Instagram    https://www.instagram.com/toncp55

Book       https://runningwithcat.com/the-book/

Youtube Video    https://youtu.be/Qm-4m-Xp62A?si=BZ21rxMRp_XL-U_m

Travel Resources check out Alzheimer’s Speaks Blog which highlights another show Lori La Bey cohosts called Conscious Caregiving with L & L on Seniors and Travel  https://alzheimersspeaks.com/traveling-as-a-senior-a-panel-discussion-on-conscious-caregiving-with-l-l/

Get Your Personalized Book of your story - Meaningful Memory Makers – Here is the interview if you want to listen to it.  https://open.spotify.com/episode/2khyo8v526SGeInd3FF6bw  Here is a link to their website  www.meaningfulmemorymaker.com

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Ginger Shares Her Dementia Experience With Us

Lori La Bey talks with Ginger Speech an 86-year-old woman who had to retire as a speech-language pathologist due to encroaching dementia symptoms ten years ago. At one point, Ginger ended up in hospice, but recovered and came home. Her mission now is to advocate for research and cure for neurodegenerative disease through her memoir, interviews, and participation in social media.

Learn:

1. The symptoms Ginger experienced.
2. How she handled forced retirement due to her symptoms.
3. About dealing with multiple diagnoses.
4. How antipsychotics can be dangerous with some types of dementia.
5. More about hospice.
6. Living in the world of dementia.
7. Why support groups are helpful to those living with dementia.
8. Sun shining vs. Sun downing.
9. The importance of lifestyle changes.
10. How to access Ginger's memoir.

Watch the Video Interview Below

https://youtu.be/az3aErT2tKA

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks/id986940432

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Contact Ginger Smith

[email protected]

(650) 585-3233

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Lori La Bey talks with Laura Herman a Dementia Care Professional, Writer, and Consultant, and Patty Sherin, an Author and Entrepreneur.

Laura has spent years working with older adults with dementia, their care partners, and family members in every capacity from frontline caregivers to memory care administrators. Laura started ABC Dementia to help others better understand people with dementia and help them feel and function at their best.

Learn:

1. Why is getting proper support important?
2. What Happens when needs meet exhibited behaviors?
3. Is dealing with early-onset dementia different from other dementias?
4. Do you know how full your Caregiving tank is?
5. What can you expect from online courses?
6. How do the community sectors work on ABC Dementia?

Watch the Video Interview   https://youtu.be/gESWjMIGuPk

Find on Pod Link  https://pod.link/986940432

Contact Information

Website https://ABCDementia.Org

Patty’s Email [email protected]

Laura’s Email: [email protected]

Laura’s LinkedIn https://www.linkedin.com/in/lauraherman-dementia-care

Patty’s LinkedIn https://www.linkedin.com/in/pattysherin/

Facebook profile https://www.facebook.com/ABCDementia

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

#FamilySupport #DementiaCare  #DementiaCommunity

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Learn About Trauma-Informed Montessori Dementia Care - It's Not Just Dementia

Lori La Bey talks with Rev. Katie Norris who is a Montessori for Aging (AMI) and Dementia Practitioner and primary author of "Creative Connections in Dementia Care." She started in dementia care 14 years ago and has taught families, churches, nursing care facilities, and other AMI students Montessori-based care. 

Jeffrey Norris started as a care partner at just 6 years old when he and his family were live-in care partners for his grandma (Katie's mom) who had Lewy Body Dementia. He often volunteered as a young child, guiding Montessori dementia activities, and then joined Katie in coaching other families and organizations a few years ago.

Learn:

1. Neurodivergent
2. Children can help care too
3. Montessori Methods
4. Living healthy alongside dementia
5. Shifting family dynamics
6. Giving purpose and responsibility
7. Why it’s not just dementia!
8. Reducing caregiver burnout
9. Building independence and trust
10. How to work with people living with dementia
11. what you look for is what you will see

Watch the Video Interview Below

https://youtu.be/l9QGU3C6DuA

Listen and Subscribe to Alzheimer’s Speaks on Spotify

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

Contact Information

Instagram

www.instagram.com/creativeconnectionsdementia

TikTok  

https://www.tiktok.com/@creativeconnectdementia

YouTube Creative Connections

Dementia https://www.youtube.com/channel/UCS4VN9Fd2vzVX1yIObcX8mg

Website for Membership 

https://recoursecoaching.com/

Etsy Shop for Ebooks and Dementia Activities 

https://www.etsy.com/shop/RecourseCoaching?ref=l2-about-shopname

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Our Host, Lori La Bey talks with Kevin Dill who has been diagnosed with Lewy Body Dementia since 2019. He is a proud Military Veteran, retired Police Officer, and Director of Veterans Affairs. Kevin gives us all kinds of wonderful insights as to what it is like to live with Ley Body Dementia, both for himself and his family.

Copy and paste the URL below into your browser if you prefer listening via podcast.

Apple Podcast

https://podcasts.apple.com/us/podcast/kevin-dill-shares-his-story-of-living-with-lewy-body/id986940432?i=1000603184183

Spotify Podcast

https://open.spotify.com/episode/7zjAt6unCubGgpHfmoCRAQ

Prefer another podcast go to PodLink

https://pod.link/986940432

Contact Kevin Dill

Facebook @Kevin Dill 

Instagram @kevinmichaeldill

Dementia Friendly Iowa https://dementiafriendlyiowa.org/

Purchase a T-Shirt for $20 - $5 goes to the Lewy Body Association Video of 2022 5K Run https://youtu.be/RTy-Lk3LvMI

Find FREE resources, a variety of services, or contact Lori La Bey at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

This show was prerecorded on December 19th and had a wonderful group of people show up and share their insights and resources regarding dementia. We had the following people contribute to the show.

Marilyn Raichle - with Maude's Awards but who also shared some insights on dementia care.  https://maudesawards.org/

Craig Hanke - Lives with dementia and shared insights

Tracy Perkins - Author of Dementia Home Care which is available on Amazon https://www.amazon.com/dp/1941887120

Truthful Loving Kindness - Lives with dementia and shared some insights.

Laurette Klier - Founder of Nana's Book Series - https://nanasbookseries.com/

Deborah Snyder - Cares for her husband with dementia and shared 3 tips when caring.

Michael Ellenbogen - Lives with dementia shared a research study on the meaning of voluntary assisted dying to Australians living with dementia. 

The study is being conducted by Adrienne Matthys from the School of Social Work and Arts at Charles Sturt University. Here is a link to that survey for those living in Australia  https://www.research.net/r/VAD_CSU 

Here is also a link to an article about the Australian study. https://news.csu.edu.au/latest-news/voluntary-assisted-dying-study-seeks-to-hear-from-those-living-with-dementia

Dr Stan Terman founder and his assistant Barbara of Caring Advocated which specializes in Strategic Advanced Care Planning.  https://caringadvocates.org/

We also discussed the importance of brain autopsies for research and below are some resources:

Boston University Brain Bank - https://www.bu.edu/cte/brain-donation-registry/

Family members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the UNITE Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. FREE

National Institute on Aging   https://neurobiobank.nih.gov/

https://neurobiobank.nih.gov/static/NIMH%20Donate_accessible_REVISED.c734bf270044.pdf

The Brain Donor Project 

https://braindonorproject.org/contact-us/
P.O. Box 111002
Naples, FL 34108-1929

513-393-7878

Watch the Youtube Video   https://youtu.be/WTK1jbt_-dY

Apple Podcast

Spotify Podcast

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Contact Information 4 Alzheimer’s Speaks & Dementia Map

Website –  https://www.alzheimersspeaks.com/

Website –  https://www.dementiamap.com/

Radio Show - https://www.blogtalkradio.com/alzheimersspeaks

Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Finding The Right Eldercare Is Hard. CareBrains Makes It Easy!

Lori La Bey talks with CareBrains founders Ting Shih and Jodi Lyons.

Jodi Lyons holds the title of Chief of Care at CareBrains.  She is also, an eldercare expert who helps older adults and those with special needs find the care they need throughout the country. An ardent patient advocate, Jodi helps people navigate the complicated, often convoluted system, identify what they need, and learn how to create an action plan. With more than twenty years of experience in the nonprofit healthcare arena, Jodi has been a leader in national and international organizations representing healthcare and long-term care service providers.  She specializes in the practical aspects of dealing with cognitive issues and caregiving and lectures frequently to caregivers, attorneys, and financial advisors. 

Ting Shih is the Chief of Brain at CareBrains. She is also the CEO and founder of ClickMedix, an award-winning AI-powered healthcare technology social enterprise born out of MIT with the mission of improving the health of over 1 billion people using mobile technologies. She spent more than 10 years implementing mobile health programs across Africa, Asia, South America, and North America to enable healthcare to be delivered to anyone regardless of income level, gender, or age through telemedicine, AI, and health workers, to connect patients to world-class medical experts. Ting has worked with health systems, governments, research institutions, and private corporations to reduce the costs of healthcare systematically while reaching more underserved patients.

Learn:

1. What are some of the cracks in the healthcare system you saw missing to support families?
2. Why was CareBrains started?
3. What does CareBrains offer Families?
4. Does CareBrains also offer services to professionals?
5. What is the difference between normal aging and dementia?
6. If you feel you are experiencing memory loss, what should you do?

Watch the Video Interview Below

https://youtu.be/ErAnSiuNx8A

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks/id986940432

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Contact CareBrains

Website  https://www.carebrains.com

Facebook   https://www.facebook.com/CareBrains 

Instagram   @CareBrainsOfficial

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network. 

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.