Still working on the costume. The day did not go quite as planned.

Going to the PT. Two weeks and no tailbone rotation. Let’s see what happens.

What a day! Friends are hard to find and keep with this illness. Work on your posture while listening.

Another doctor another day. Will we ever stop trying to figure it out?

Allie Gillies stops by to catch up. It’s nice to learn a new tidbit or two that could help make our day. Join us please!

I feel relief and no pulling in my body. Was the tongue pull it? I can develop my own program now that I can feel my body. I can’t turn back now.

Who would’ve thought you could get rid of pain through the tongue? My jaw and neck were so tight. It hurt to swallow.

I am steadily moving forward. I think. Trusting my gut and heading towards a maintenance program for myself. One of these people offering programs understood that I couldn’t afford to sign up for their program, but wished me great success and hoped I had a wonderful group of professionals around me. Sadly, I haven’t always. That is why I advocate for learning your body and knowing what you need so you can find the person that will listen to you. At least that’s my goal.

I am discovering life with this new body. Nothing is the same anymore. But I think I can do it. And so can you! AWOLZebra.com

What a refreshing interview. Meet Meghana Venkatesha. A pre med student with EDS. Making a difference. A privilege to chat with this young woman. Helping EDS patients from the inside. Our future is looking brighter thanks to her. Full interview available at AWOLZebra.com