Beyond Labels and Limitations

Beyond Labels and Limitations

By John GraybillHealth & FitnessMental HealthEducationSelf-Improvement
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Beyond Labels and Limitations episodes

  • Episode 025: A conversation with Chloe

    On Episode 25 of Beyond Labels & Limitations the podcast, John Graybill sits down with his daughter, Chloe, to talk about limb girdle muscular dystrophy. John asks his daughter what he has, what help he needs from her and what is her wish for her dad. Chloe shares a Santa Claus plan she thought of which almost made John cry.

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    "Desire to Inspire" TKG

    16 min
  • Episode 24: What is your Perspective

    John Graybill shares his life with limb girdle muscular dystrophy and how changing his perspective changed everything. He shares how he viewed being diagnosed with LGMD and the impact that diagnosis had on him and the relationships he had after it. John shares how insecure he was and how that ruined his relationships. What ultimately mattered to John in the end was being happy. Are you happy with how your life is going? It's not too late to change your perspective in this life and live a great life. The choice is yours.

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    "Desire to Inspire" TKG

    13 min
  • Episode 023: Meeting my wife, Darcie

    On today's podcast, number 23, John Graybill interviews his wife, Darcie. He asks her questions about how they met, what first caught Darcie's attention, did John's limb girdle muscular dystrophy have an impact on her and such. John didn't know if he'd ever find someone to love him despite a small voice/inner knowing that kept him from giving up. He never could have imagined finding such a wonderful, compassionate, caring, patient woman. What Darcie shows is that love truly matters most. John came from a superficial place where his attention was on the outside, the physical things like body shape, career, looks. Darcie didn't see any of that when she met John but instead saw past that. Darcie shares how love, emotional connection, spiritual connection matter more than what the body looks like.

    *After listening to the podcast, John realized he talks too much and how important it is to listen more, especially to his wife.

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    "Desire to Inspire" TKG

    29 min
  • Episode 022: The Speak Foundation with Kathryn Bryant

    Jen Ives and John Graybill talk with Kathryn Bryant of the Speak Foundation. Kathryn shares her limb girdle muscular dystrophy type 2I and how this disease saved her life. Kathryn has gone on to form the non-profit organization, from winning a contest, called "The Speak Foundation". The organization's mission is to improve the quality of life for those living with muscular dystrophy. Kathryn shares how important it is for those living with muscular dystrophy to be a voice in their future. This is what the Speak Foundation is doing. The Speak Foundation has a "Patient Network" that they would like for all those with LGMD to sign up for. The patient network is a way for the Speak Foundation to get information directly to you regarding a personal care attendant for helping you get ready for work, research that is being done, grants you may qualify for to help pay your bills due to covid, a mobility scooter and more. Kathryn emphasizes the importance of having a community led by individuals with the disease in making sure our voice is heard in the process of finding a cure/treatment. The Speak Foundation also hosts a yearly conference for individuals with muscular dystrophy in Atlanta, Georgia. This is a 3 day weekend retreat that is very handicap friendly in terms of hotel, getting around town, the time of day they meet. For more information and to sign up for the "Patient Network" go to:

    The Speak Foundation

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    Connect with Jen and John:

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    "Desire to Inspire" TKG

    46 min
  • Episode 021: Friends

    In episode 21, Jen Ives and John Graybill talk about friends. How did they make friends while having limb girdle muscular dystrophy? Did their muscular dystrophy prevent them from hanging out with friends, going to a friends house? What impact did their disease have on the friendship? Jen and John ask an important question regarding children who have muscular dystrophy and how do they make friends?

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    Connect with Jen and John:

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    "Desire to Inspire" TKG

    31 min
  • Episode 020: When it's time to get a chair

    Jen Ives and John Graybill talk about their experiences with transitioning to a mobility scooter and power chair. Jen shares how she got around with her scooter and the setup she had installed in her 4-Runner. John received a scooter from Clifton Lewis, "CRL Good Life Foundation" and how he didn't even want it at first. Jen and John share with you the thinking process and challenges they encountered when it was time to transition and how those decisions have given them freedom.

    Clifton R. Lewis Good Life Foundation

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    "Desire to Inspire" TKG

    36 min
  • Episode 019: Follow-up on Physical Health

    Jen Ives and John Graybill give an update on their health from a podcast they did 6 months ago, March 2020. In this podcast, they talk about what aliments they had back then and if they have gone away or were the start of their physical health decline.

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    "Desire to Inspire" TKG

    31 min
  • Episode 018: Struggling and Frustration

    Jen Ives and John Graybill talk about what's bothering them. John shares his frustration with struggling to get up from a chair, walking, his mind telling him stories of "it not working out". How does John and Jen deal with life when these situations come up? And they do come up more often than they think.

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    "Desire to Inspire" TKG

    43 min
  • Episode 017: Supplements

    Jen and John share what supplements they take to help keep their bodies in optimal shape.

    Jen takes Vitamin D3, Zinc, fish oil and apple cider vinegar.

    John takes CuraMed's "Curcumin", DHA, Vitamin D3 and apple cider vinegar.

    Because Jen and John take these supplements doesn't mean you'll get the same benefit. So be sure to talk to your doctor before starting any of these supplements.

    When you get your blood drawn be sure to ask for your Vitamin D level and CRP (C-reactive protein). The CRP test measures the overall inflammation in your body. Making sure to keep your CRP below 1.0 is a good idea as inflammation is at the root of diseases.

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    Connect with Jen and John:

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    "Desire to Inspire" TKG

    30 min
  • Episode 016: FDA Listening Session

    Jen Ives and John Graybill talk with Brad Williams, of the Jain Foundation, about the upcoming FDA Listening Session for LGMD. This is the first ever listening session in which the FDA will listen to LGMD individuals about how their type of LGMD has impacted their life. The session is set for October 20, 2020.

    Jen and John ask Brad questions like, how often dose the FDA listen to patients, what is a listening session and why is it important?

    FDA Listening Session

    Brad William's YouTube Page

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    "Desire to Inspire" TKG

    35 min

About Beyond Labels and Limitations

From the publisher's feed

Welcome to the podcast for Beyond Labels & Limitations.