Beyond Labels and Limitations

In episode 35 of Beyond Labels & Limitations, John Graybill shares three experiences he had dealing with his limb girdle muscular dystrophy and wanting a better life. His first experience was with Wayne Dyer in Italy where Wayne carried John up a flight of stairs. When Wayne nearly fell with John on his back, Saint Francis appeared to Wayne and immediately Wayne's knee was healed and he ran up the stairs. John had a vision come to him while sitting outside meditating with the group that forever changed him. John shares a dream in which he asked Saint Francis for help and the dream changed him. Lastly, John shares a thought that came to him while Darcie, not yet his wife, pushed him in a wheelchair in Brazil.

The message John got and is reminded of is to never give up as anything is possible.

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• Subscribe on YouTube
• Website
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 34 of Beyond Labels & Limitations, John Graybill shares some struggles he is having lately; ankle weakening, belly protruding forward, fingers sore, shoulders aching and his mind spilling out negative thinking. John has dealt with these struggles in the past, but this time he cannot escape. John shares how he deals with losing his physical abilities and the perspective he keeps while in the midst of it all. Acceptance is something you eventually have to come to so why not look at it while you're young, strong and able-bodied. The life you live is determined by how you want to live it NOT the disease.

Here's the book John mentioned reading at least once a year if not twice. It really helps you examine the thoughts you have and not just accept them because they came from you. Highly recommended book:

The Untethered Soul by Michael Singer

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Connect with John:

• Subscribe on YouTube
• Website
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 33, of Beyond Labels & Limitations, John Graybill talks about love and how important it is especially when you are diagnosed with Limb Girdle Muscular Dystrophy. John didn't love being him and it started in a seventh grade gym class when his peers made fun of the way he ran. From this mockery he started belittling and berating himself to the point where John lost all love for being him. The discovery John made in his late 20's/early 30's revealed that he had been living his life from a 12 year old's point of view. John had a choice to make and it was to live this way or to change.

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Connect with John:

• Visit the Website
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• Email: [email protected]

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"Desire to Inspire" TKG

In episode 32 of Beyond Labels & Limitations, John Graybill talks with Jill Millington about her life with Limb Girdle Muscular Dystrophy. Jill shares how at age 23 she first noticed something wasn't right when she couldn't step up onto the curb. She was diagnosed with LGMD in 2008 and then in 2018 Jill was officially diagnosed with LGMD2A or Calpainophty. Since then, Jill has gotten involved in advocating, managing a Facebook page, shooting "How To" videos and posting them on YouTube and also organizing fundraisers. She wants people to be aware of a "State Proclamation" in which on September 30th, every year, that day will be known as "LGMD Awareness Day". You can start a state or city proclamation by going to LGMD-info.org and following the steps to do so there.

(Co-Admin) Faith Above My Ability: Faith Above My Ability

State Proclamation: State Proclamation

Get in touch with Jill:

• Jill's Blog
• Jill's YouTube Page
• A Peek Into MD Jill's Facebook Page

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Connect with John:

• Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire To Inspire" TKG

In episode 31 of Beyond Labels & Limitations, John Graybill talks about stereotypes around what it means to be a man or woman. How we live in this world is largely from what society says a man or woman should be. What happens when we cannot conform to those standards? Is our sense of manhood or womanhood diminished? Discovering who you are is the only way to avoid the pitfalls of conforming to a set of standards one must live up too.

Embrace what you can do and bring that to the table!

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Connect with John:

• Visit the Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

On episode 30, of Beyond Labels & Limitations, John Graybill shares how stretching showed him a part of himself he hadn't seen before. John talks about the importance stretching has had on his life, what areas of his body he stretches and how this has helped him stay mobile longer. The biggest gain John experienced had nothing to do with his body. The inner workings of his mind were revealed to him while questioning the whole stretching thing.

You can see John's videos on stretching by clicking the "Subscribe on YouTube" link below. There is a series of videos called "2008 LGMD Stretching Videos" under the tab "Playlists."

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Connect with John:

• Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 29, John Graybill talks about the brown spots around his ankles. These spots are called Hemosiderin. It started around 2008 with small brown, freckle-like spots in the ankle region. John started an alternative therapy in 2018 called, "Vector", a treatment that Dr. Rhodes from Texas came up with. The machine is designed to increase circulation, which people with muscular dystrophy struggle with. John didn't notice any improvements after one year of the therapy. However, a wound opened up around the ankle, a location where one of the electrodes was placed. John does not contribute the wound to the Vector treatment but the Vector may have brought it about sooner. After seeing his primary doctor, and a dermatologist for 2 months, John was finally sent to a wound clinic. There it was determined that John had a Venous Stasis Ulcer via an ultrasound of his leg. The way to treat this problem is with compression (compression stockings) and elevating the leg above the heart. John is on his way to recovery but if you notice brown spots around your leg, and possibly swelling, this could be a sign that you have a vein problem and it is advised you see your doctor.

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Connect with John:

• Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

John Graybill talks with Kathryn Bryant of the Speak Foundation about their newest project, "LGMD News", a magazine. This magazine is the first ever dedicated to bringing up to date research from clinicians to peoples homes via a magazine. In this magazine, LGMD News, you will only read about limb girdle muscular dystrophy, what research is happening, what organizations you can connect with-dealing with your specific type of LGMD, ask an Expert-where a doctor answers questions people submitted, Spotlighting an organization, basically anything you want to know about LGMD or where to go, you need to get this magazine. You can subscribe by going to The Speak Foundation and joining their "LGMD Patient Network" by clicking on that tab. It's so important to be a part of a patient led movement where "you" get to be the driving force towards a treatment instead of waiting for an organization that isn't patient led. The magazine comes out 4 times a year and is a MUST have if you have LGMD.

The Speak Foundation Patient Network

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• Website
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• Email: [email protected]

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"Desire to Inspire" TKG

Season 2, episode 27, John Graybill talks about what is our underlying operating system at work. Often John isn't aware of it but when he reacts to situations in his life, then he becomes conscious of it. Where did this operating system come from? John shares how a 7th grade gym class experience controlled his thinking, behaving for years to come. It wasn't until his late twenties, early thirties, did John realize he was living from his 7th grade self. It's scary to see at 43 how one has been but it's better to see it at 43 than to never see it and have your life ruined by unaware behaviors that no longer suite you.

The book John mentions is by Michael Singer, "Untethered Soul".

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Connect with John:

• Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

In the last episode of 2020, John Graybill talks about Christmas and how it impacts him now. He didn't fully appreciate those moments and now he has the opportunity to in this Christmas. John shares how his sister's passing has impacted him. What can he learn from all of this?

Also, Jen will no longer be on the Podcast as she is pursuing other parts of her life. John will miss Jen but totally understands her decision.

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Connect with John:

• Subscribe on YouTube
• BL&L Website
• Email: [email protected]

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"Desire to Inspire" TKG