Beyond Labels and Limitations

Beyond Labels and Limitations

By John GraybillHealth & FitnessMental HealthEducationSelf-Improvement
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Beyond Labels and Limitations episodes

  • Episode 55: What I have learned from having Limb Girdle Muscular Dystrophy

    In episode 55 of Beyond Labels & Limitations, John Graybill shares what he has learned over the course of 26 years being diagnosed with LGMD.

    1. Don't believe everything I think

    2. Accept constant change

    3. A belief can be powerful when given enough attention

    4. Appreciate what I have while I have it

    5. Let go of control

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    "Desire to Inspire" TKG

    27 min
  • Episode 54: Finding beauty in Limb Girdle Muscular Dystrophy is a choice

    On episode 54 of Beyond Labels & Limitations, John Graybill talks about finding beauty in a disease that takes away your physical abilities. It's not easy to find the lessons in your situations especially when you think your life should be another way, but it is a choice you must make if you want your life to be one that is enjoyable. John tells you the life he lived before he realized this and how it has brought happiness into his life.

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    "Desire to Inspire" TKG

    20 min
  • Episode 52: Keeping the mindset of "I'm going to beat Limb Girdle Muscular Dystrophy" alive

    On episode 52 of Beyond Labels & Limitations, John Graybill shares what keeps him motivated to not give up. He shares how a 3 year old helped him see more clearly. The mindset is a big determining factor in the course of your life regardless of having LGMD or not. One thing to keep in mind is that if you think you can/cannot, you're right about it. How do you prevent your mind from ruining your life with LGMD? John shares what works for him and it's not a "okay, I did that and now move on." No. The mindset and working with negative thoughts is a daily ordeal.

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    "Desire to Inspire" TKG

    20 min
  • Episode 51: What do you do for a living when you have Limb Girdle Muscular Dystrophy

    On episode 51 of "Beyond Labels & Limitations", John Graybill looks at the question, "What do you do for a living". John has been asked this question for over 15 years, since he's been on disability, and how this question has impacted him. From feeling ashamed and embarrassed to making a difference in the world, John has felt both sides when someone asked him this question. But, the important aspect is how it showed John where he was at in his life. Enjoying the journey is key, not some destination where you think life will be perfect once you have all that you wanted. John's mantra is, "I don't have to be physically healed in order to enjoy my life." This is something he has to remind himself from time to time.

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    "Desire to Inspire" TKG

    16 min
  • Episode 50: How Can I be Grateful when I have Limb Girdle Muscular Dystrophy

    On episode 50 of "Beyond Labels & Limitations," John Graybill talks about how his wife and daughter leaving for a camping trip helped him examine his life. Being around people all the time doesn't allow for you to be alone with your thoughts, and some of the thoughts aren't positive. So, when Darcie and Chloe leave for a few days, this is the time John gets to look into how life is unfolding for him. This trip around, the idea of being grateful came up. "Why can't I be grateful for what I have?" John looks at some examples in his life where he thought life would be better once he achieved his goal only to find short-lived pleasure.

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    "Desire to Inspire" TKG

    18 min
  • Episode 49: Donavon Decker, LGMD2D, and his participation in Gene Therapies

    On episode 49 of Beyond Labels & Limitations, John Graybill talks with Donavon Decker, who has LGMD2D. Donavon comes from a family of 8 with 5 of them being diagnosed with LGMD2D. His unaffected sister later had 2 children who were diagnosed with LGMD2I. Donavon also shares how the LGMD2D population were the first to participate in gene therapies, and he shares how the trial he was in showed promise. His sister, June Burney, who also has LGMD2D, was a part of a study in 2015 using the AAV-One time treatment. Donavon shares how his sister improved while in the study and up to 1.5 years after the study was concluded. Unfortunately, she began to lose what she gained shortly afterwards.

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    "Desire to Inspire" TKG

    44 min
  • Episode 48: What I Learned from My Cat

    On episode 48 of Beyond Labels & Limitations, John Graybill shares what his whining cat showed him about his relationship with his 5 year old daughter and himself.

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    "Desire to Inspire" TKG

    16 min
  • Episode 47: Meet Brad Williams, Ph.D, who also has Limb Girdle Muscular Dystrophy 2B/R2

    On episode 47 of Beyond Labels & Limitations, John Graybill talks with Brad Williams about his life with LGMD2B/R2. Brad shares how he waited nearly 18 years to find out what he had. Brad was a figure skater, runner, very athletic in his youth but around the age of 18 he noticed he couldn't stand on his toes. The gene for LGMD2B hadn't been discovered yet, hence he had to wait until it was. Brad also shares how important it is to be a part of registries. In order for researchers to figure out what's going on with you, they need to know you exist. The Jain Foundation is one registry for people with LGMD2B. But, the Jain Foundation can also help those who don't have a specific diagnosis get one.

    Here's the Jain Foundation link: The Jain Foundation

    Here's Brad William's YouTube Page: Brad Williams YouTube Channel

    Here's the Speak Foundations Link to sign up for their registry: The Speak Foundation

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    "Desire to Inspire" TKG

    35 min
  • Episode 46: Healing in Brazil at the Casa De Dom Inacio

    On episode 46 of Beyond Labels & Limitations, John Graybill shares his experience of traveling to Abadiania, Brazil. It's in Abadiania where John of God's Healing Center, Casa De Dom Inacio, is located. This episode will be difficult for those who are deeply rooted in the Bible teachings. An open mind will be necessary for listening to this. John also wants to make a point that he is not trying to convert anyone but merely sharing his reason and experiences for traveling to Brazil. John also didn't put much stock into healing of the emotions, mental and spiritual but rather thought only of healing the physical. He was in for an eye opening experience. This is also where John met his wife.

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    "Desire to Inspire" TKG

    34 min

About Beyond Labels and Limitations

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Welcome to the podcast for Beyond Labels & Limitations.