Beyond Labels and Limitations

On episode 45 of Beyond Labels & Limitations, John Graybill talks with author Robert Schwartz about his book, "Your Souls Plan". In this podcast, Rob shares how we planned our life before being born and how this plan is the reason for us coming into human form. Rob is one of those people who helped John shift his perspective from a "poor me" to a "this is for my higher good" perspective after reading "Your Souls Plan". By seeing your life as pre-planned, all the struggles in your life are approached from a place of, "How may I learn from this".

Robert Schwartz's website: Your Souls Plan

(This may be extremely difficult for some to listen to so an open mind is necessary.)

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Connect with John:

• Visit the Website
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• Email: [email protected]

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"Desire to Inspire" TKG

In episode 44 of Beyond Labels & Limitations, John Graybill talks about how being diagnosed with Limb Girdle Muscular Dystrophy was necessary in order for him to search for who he truly is. John use to think he was all of his accomplishments but when a disease takes away your physical abilities, you come to ask yourself, "then who am I?" After years of asking, John came to understand a bit more of who he is. He attributes his searching to Dr. Wayne Dyer, Eckhart Tolle, and Mooji.

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Connect with John:

• Subscribe on YouTube
• Visit the Website
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 43 of Beyond Labels & Limitations, John Graybill talks with Amanda about her journey from being diagnosed with Limb Girdle Muscular Dystrophy to Anti-HMGCR. At first Amanda shares optimism about going from an incurable genetic disease like LGMD to an autoimmune disease where there are treatments available. An important part of navigating this course is the "self talk" she has with herself. There were times where she didn't know how her life would turn out, especially when confronting falls or other mobility issues. Looking at the present and what she is currently going through was a big part of her success in dealing with both of these conditions.

The testing Amanda had done was called, "Myositis Panel". One of the antibodies they test for is Anti-HMGCoA Reductase Antibodies.

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Connect with John:

• Subscribe on YouTube
• Visit the Website
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 42 of Beyond Labels & Limitations, John Graybill shares how suffering showed up when he was playing with his daughter. He believed that when she was older, then playing with her would be more fun. What John didn't realize was how his beliefs about what he "should" be doing had programmed him. It was after examining his thoughts/beliefs that John saw how powerful an unexamined/unchallenged thought can be.

Wayne Dyer had given John a book titled, "What do you Really, Really, Really want for your children." This book helped John see that his daily interactions with his daughter was shaping how she would be in the future. And, it's important to be present with her; not just physically but mentally engaging with her.

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Connect with John:

• Subscribe on YouTube
• Visit the Website
• Email: [email protected]

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"Desire to Inspire" TKG

On episode 41 of Beyond Labels & Limitations, John Graybill talks with Doctor Vovanti Jones, who has LGMD2B. Dr. Jones found out she had LGMD when she was in her 20's and while studying to become a doctor. Vovanti shares how she doubted herself at times that she could become a doctor. She shares how she had three factors against her becoming a doctor; 1, she was black, 2, she is a female and 3, she's disabled. This didn't stop Vovanti from becoming what she dreamed of at the age of 4 and that was she was going to become a doctor!

If you have LGMD2B and would like to join their community please check out the Jain Foundation

Also, if you don't know what type of LGMD you have, please contact the Jain Foundation and they may be able to help you get a specific diagnosis. (It is VERY important to get subtyped so that the world, researchers mainly, know that you exist)

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Connect with John:

• Visit the Website
• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

On episode 40 of Beyond Labels & Limitations, John Graybill talks with Henry Eichner. Henry has a form of LGMD that is unspecified. Henry shares what his life has been like from before being diagnosed to what he struggles with today. Henry has also started a YouTube page dedicated to sharing his life with other people. You can visit his YouTube page here Rollin with Henry

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Connect with John:

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• Visit the Website
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 39 of Beyond Labels & Limitations, John Graybill talks about when it was time for him to stop working. It wasn't an easy decision for John. Things to consider were, how was John going to make a living, support a future wife and child.

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• Email: [email protected]

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"Desire to Inspire" TKG

In episode 38 of Beyond Labels & Limitations, John Graybill shares his tips and tricks he has found useful for living with LGMD over the past 26 years. There are 7 tips and tricks and they are, Balance, Sitting down and getting up with a belt, Standing, Stretching, Supplements, Diet, and Appreciation. John told a story at a "Story Slam" in Denver about appreciating what you have. Here's the story: The Moth, StorySlam, Denver, Progress

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• Email: [email protected]

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"Desire to Inspire" TKG

On episode 37 of Beyond Labels & Limitations, John Graybill looks back to last year, March 16 2020, and what struggles he had with Limb Girdle Muscular Dystrophy. He also talks about what symptoms he's having today. The purpose of this exercise is to see if the symptoms are here to stay or are they just a phase he is going through.

The first episode John talked about his physical struggles was on episode 5.

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• Subscribe on YouTube
• Email: [email protected]

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"Desire to Inspire" TKG

In episode 36 of Beyond Labels & Limitations, John Graybill shares how shopping with Limb Girdle Muscular Dystrophy can be a struggle. When younger, stronger maybe not so difficult but what do you do when you're older and weaker and cannot get into dressing rooms? This is something John found challenging until him and his wife found a solution.

John also shares a bit too much on "Stack Height", "Toe Drop" and the "Weight" of a shoe but when you have a disease that effects your movements then all of these play a part in selecting the right shoe. New Balance Minimus with at most a 4mm toe drop is John's preferred show. But with fashion limiting this shoe, not by John's accord but rather the industry, the search for a new shoe is on and challenging.

As for pants, John found Duluth Trading Company's pants to be great. The pant is made from a stretchy material which helps "growing" into them as you get "bigger".

Good luck with your shopping!

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Connect with John:

• Subscribe on YouTube
• Website
• Email: [email protected]

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"Desire to Inspire" TKG