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On episode 65 of Beyond Labels & Limitations, John Graybill talks about the LGMD Awareness Day which is every September 30th. This day is important in spreading awareness about LGMD. Go to
LGMD Awareness Foundation
to learn more about LGMD. John also shares some physical struggles he's had over the past week and his upcoming blood work. There are 3 tests he asks for and they are: CPK, Vit D., cCRP or CRP.
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"Desire to Inspire" TKG
On episode 64 of Beyond Labels & Limitations, John Graybill shares his take away from the 2021 International LGMD Conference, which was put on by the Speak Foundation. If you missed the conference you can view all 4 days at this link:
2021 LGMD International Conference
John also shares his latest supplement, Garden of Life Company. Do your own research to see if this supplement will be of benefit to you. Lastly, John shares a tip for neck stiffness.
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"Desire to Inspire" TKG
On episode 63 of Beyond Labels & Limitations, John Graybill talks about a few things. First of all, the upcoming 2021 LGMD International Conference. This is huge and is put on by The Speak Foundation. If you would like to attend please go to:
The Speak Foundation
National LGMD Conference
The conference starts Friday, September 17 2021 and ends Monday, September 20, 2021.
John also shares about a pinched nerve, how his mind goes back into judgment and comparing. Lastly, John shares how he feels LGMD is like the game Jenga.
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"Desire to Inspire" TKG
On episode 62 of Beyond Labels & Limitations, John Graybill looks back on his health from March 16, 2020 to now and what has changed. John has done a podcast on changes to his health that you can hear on episodes 5, 19 and 37. In each of these episodes, John shares what struggles he has going on and then looks back to see how long he has dealt with them. The reason he does this is to track the disease progression.
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"Desire to Inspire" TKG
On episode 61 of Beyond Labels & Limitations, John Graybill shares an almost accident he had while driving in a parking lot. This got John to thinking about is it time to stop driving. John looks at the first signs of driving becoming too difficult to do. He also shares how the meaning he gives to things/events in his life is what he really reacts to. By giving up the meaning, or at least examining it, you begin to see your relationship with these things/events in your life more clearly.
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"Desire to Inspire" TKG
On episode 60 of Beyond Labels & Limitations, John Graybill shares how he struggles with limb girdle muscular dystrophy. The struggle wasn't always the same over 26 years. When John was younger he believed himself to be the physical John. Naturally, whenever he lost an ability, he took it hard, and he tried to get that physical ability back. It wasn't until John heard Wayne Dyer speak of an idea that "we are all spiritual beings having a human experience" did John start the shift. Now, John sees that whenever he gets down and the struggles of muscular dystrophy are heavy, it's because he has gone back into the belief that he is a physical being.
This self inquiry is a life-long one but one we need to make if we are to go beyond muscular dystrophy. Keep asking yourself, "Who am I" and you'll find out who you really are.
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"Desire to Inspire" TKG
On episode 59 of Beyond Labels & Limitations, John Graybill shares how a negative thought spiraled into more negative thoughts about how his life is terrible. This isn't something new to John's life but rather a constant battle he has endured for close to 26 years. Everybody has these days but how do you get out of them?
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"Desire to Inspire" TKG
On episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting more challenging for them to be independent. John didn't like having to have his dad help him with going up stairs, going down the stairs, lifting him off the toilet, helping him get to the toilet, sitting in a chair. All of these activities John could somewhat do before but since the disease is weakening him John has to rely on others for a lot.
Here are the 4 part stretching videos:
LGMD Stretching Video Part 1
LGMD Stretching Video Part 2
LGMD Stretching Video Part 3
LGMD Stretching Video Part 4
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"Desire to Inspire" TKG
On episode 57 of Beyond Labels & Limitations, John Graybill talks about how he sees his life with LGMD. John was diagnosed in 1995 at the age of 17. He thought his life was over when the doctors told him he had muscular dystrophy. John gave up on life. When John met Wayne Dyer, his perspective on life changed. He attended college, where he studied psychology, and started to look at how he saw himself with this disease. Ultimately, over time John began to see that this disease was here to teach him and that it was up to him to see the lessons if he wanted to live a happy life.
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"Desire to Inspire" TKG
On episode 56 of Beyond Labels & Limitations, John Graybill shares some of the things that suck and have sucked regarding being diagnosed with a physical disability such as Limb Girdle Muscular Dystrophy. John looks at areas of dating, walking, getting up from a chair, climbing stairs, rolling over in bed, being dependent on others to help you and what the future holds for you. John gives examples in these areas where he got stuck and solutions on how to get out of them. What John learned was that looking at what sucks in your life is not the way to live an enjoyable one. Yes life can suck but don't get stuck there, tomorrow is another day.
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"Desire to Inspire" TKG
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