BloodStream

Patrick and Amy are back LIVE bringing you the best of BloodStream at BDC! Listen in as they cycle through nine patient and caregiver guests catching a glimpse of those “hallway conversations” we all miss.

Show Notes:

​​PRESENTING SPONSOR: Takeda 

EPISODE SPONSOR: MyFactorFam.com

SUBSCRIBE to BloodStream on Apple Podcasts

CHECK OUT all our stuff

Patrick and guest co-host Mel Forrest welcome on members of National Hemophilia Foundation's staff to preview the community's biggest annual meeting of the year. 

Show Notes:

PRESENTING SPONSOR: Takeda 

EPISODE SPONSOR: MyFactorFam.com

REGISTER for BDC: https://bit.ly/3jT9SdJ

CHECK out BDC Interactive program: https://bit.ly/3iJEcIJ

LISTEN to The Pain Podcast

SUBSCRIBE to BloodStream on Apple Podcasts

CHECK out all our stuff

 

Patrick and Amy are LIVE and joined by Alex Abreu Boria to chat about next month's Bleeding Disorders Conference, Emily Wheat to discuss the role of a clinical psychologist in the treatment center, Joshua Sterling Bragg with the latest Let's Talk mental health segment, and Max Feinstein shares his brand new song, "Dear Anxious."   

Show Notes:

 

PRESENTING SPONSOR: Takeda 

SUBSCRIBE to BloodStream on Apple Podcasts

CHECK OUT all our stuff

 

 

 Patrick and Amy catchup during the Lynch family’s east coast tour and discuss recent articles on California v Texas, shared decision making models, and safety related to AAV gene therapy.

Show Notes:

 

PRESENTING SPONSOR: Takeda 

CONNECT with Genentech

SUBSCRIBE to BloodStream on Apple Podcasts

CHECK OUT all our stuff

NEW BloodStream Media Website

JD Supra Article - California v. Texas

Article on Shared Decision-Making

Gene Therapy Article

 

Patrick and Amy are LIVE and discuss some unfortunate lunchtime mishaps and new studies on coffee before Josh leads the latest Let's Talk mental health segment and Patrick leads a talk with Sean and Kyle, hosts of the Two Disabled Dudes Podcast.  

Notes:

Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite

Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP

CHECK OUT Two Disabled Dudes Podcast: https://bit.ly/3cPcM0z

READ The Health Benefits of Coffee: https://nyti.ms/3gGrl7J

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

Patrick and Amy welcome on rare disease patient, advocate, and podcaster Avantika Shrivastava to hear her perspective on rare disease care and management in India.

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

 

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

 

 

Patrick and Amy are live, in-studio, for the first BloodStream LIVE of the year!  Join the hosts and a variety of special guests for segments on patient education, the return of in-person patient meetings, asking for help, and so much more- including an announcement about a major rare disease podcast joining BloodStream Media!

 

Notes:

Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite

Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP

 

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

SUBSCRIBE to Once Upon A Gene Podcast: bit.ly/OUAGspot

 

SUBMIT to the BIG BLOODY TALENT SHOW: bit.ly/BigBloodyTalentShow

SIGNUP for our FIRST-EVER NEWSLETTER: bit.ly/NewslettterSignups

Patrick and Amy catch up on some recent community news then speak with leukemia survivor and bone marrow transplant recipient Bob Falkenberg as he’s set to kick off his 10th Lifeblood cycling ride to support Be The Match.

 

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

 

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

 

BloodStream LIVE May 26th - Event link: http://bit.ly/BloodStreamIsBack

 

Bob’s Team Lifeblood: http://bihttps://bit.ly/3yaPj2U

NHF’s Community Voices in Research: http://bit.ly/CVRNHF

CSL and uniQure close agreement: http://bit.ly/CSLuni

Experimental SubQ Inhibitor Treatment: http://bit.ly/SubQinhib

Patrick and Amy speak to Kathy Raufi on the brink on International Thalassemia Day, get input from the Coalition for Hemophilia B on some recent news, and discuss how von willebrand factor may be key to helping treat clotting disorders, too!

 

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

 

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

 

International Thalassemia Day #ITD2021

 

To learn more about iron overload, treatments, comorbidities with Thalassemia, and more, visit:

 

Thalassemia Foundation of Canada:

https://bit.ly/33zlLOB

 

Cooley’s Anemia Foundation:

https://bit.ly/2RudLeX

 

Patients’ Stories:

https://bit.ly/2SvzLqe

Patrick and Amy are joined by Julie Kim, President of the Plasma-Derived Therapies Business Unit for Takeda, to discuss Takeda’s 5-year commitment to the WFH Humanitarian Aid Program. Then later in the show they’re joined by frequent contributor Alexa Abreu and her sister Juliemar - a former Teen Impact Honoree - to discuss the uncelebrated accomplishments of our youth and what supporting young people should actually look like.

 

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

 

SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

 

NOMINATIONS for the Teen Impact Awards: http://bit.ly/TIA2021bsp

TAKEDA joins WFH’s Humanitarian Aid Program: bit.ly/WFHTakeda2021