BloodStream

Join a candid roundtable with Chapter leaders, Rich Pezzillo, Sue Martin, and Maureen Grace as they share what makes our community so unique and what keeps them up at night.

 Let’s celebrate Bleeding Disorders Awareness Month by lifting up our leaders who work tirelessly for the benefit of our community.

Program Notes:

Find your local chapter here: https://www.hemophilia.org/community-resources/resources-near-you/nhf-chapters 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/

FLOW’s Christie & Jessica speak with Dana Francis, Social Worker at University of California San Francisco, who specializes in supporting adults with bleeding disorders, as well as their partners and other family members.

What can individuals do to support themselves through the grieving process? Collective trauma / collective PTSD, caregiver / carrier grief, and transitional grief are discussed in today’s special episode of Bloodstream. Mental health resources are available at letstalkmh.com/resources

Hear our hosts on FLOW - straight talk about extreme periods, wherever you get your podcasts. March is Bleeding Disorders Awareness Month and The Bloodstream Podcast is bringing you short daily episodes. Find out more about all of Bloodstream Media shows at www.bloodstreammedia.com

Program Notes:

Thank you, Dana!

Let’s Talk, the mental health documentary featuring Dana Francois:

https://www.believeltd.com/project-lets-talk-mental-health

https://letstalkmh.com/resources

Find today’s Hosts’ on Instagram:  @jessicalaurenrichmond @howtotalktoyourdoctor

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

This special episode of BloodStream features our newest team member, Vivian Bea Lynch! Patrick and Natalie are back to share Vivian’s birth story. While we are thrilled to share that Vivian Bea is safely in the world, her journey in getting here was unexpected, complicated, and, frankly, scary for her parents. Patrick and Natalie are health advocates who believe that sharing their and Vivian’s story will not only provide a means of processing for them, both can also amplify the normalization and awareness for complicated birth stories. They believe in the power of storytelling for good and for healing ...and this is Vivian’s story.

Program Notes: 

PRESENTING SPONSOR: Takeda

LINKS from Nat: https://www.medpagetoday.com/meetingcoverage/acog/72600 

CHECK OUT ALL OUR SHOWS

It’s the third Thursday of Bleeding Disorders Awareness Month, and that means Josh is back to take a moment for mental health. Today’s subject is imposter syndrome, and he is joined as usual by Debbie De La Riva, who gives some expert opinions on where imposter syndrome comes from, how it presents in the bleeding disorders community, and what we can do when we are feeling like an imposter. Let’s have a moment.  Mental Health First Aid Class: https://www.mentalhealthfirstaid.org/ Mental Health America Surveys: https://screening.mhanational.org/screening-tools/ Free Support Groups Depression BiPolar Support Alliance: https://www.dbsalliance.org/ New Harbinger Publications: https://www.newharbinger.com/

Following our conversation on Diversity, Equity and Inclusion earlier this year, Kimberly Ramseur dives deeper into the experiences of people of color living with a bleeding disorder in the United States. This episode is the beginning of more conversations to highlight racial disparities and inequities within the American healthcare system. Black and Brown folk, we see you; we hear you. 

Find Kimberly on linkedin! https://www.linkedin.com/in/kimberly-ramseur-jd-mph-07783994/ 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Mason Bobro shares his experience as a transgender man with a bleeding disorder, including his views on preferred pronouns, gender dysmorphia, monthly periods, and safe spaces for LGBTQ+ patients.

Hosted by Drama Del Rosario

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Mel Forrest, host of The Pain Pod, is joined by guest Jeff Johnson to discuss what it means to be a blood brother and how it’s changed over the years. 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Singer, songwriter, and community member Max Feinstein shares the recent journey with his new record, Redefine. Max hopes to do his part to normalize chronic conditions and influence those around him to view those who live with them through a more compassionate lens through his art. Listen in to hear his compelling story and see how you can be involved in Max’s work! We’ll also hear more about the Better You Know campaign - a great episode this week!

Program Notes: 

Better You Know Campaign: https://www.cdc.gov/ncbddd/blooddisorders/women/materials/index.html

Women with Bleeding Disorders Risk Assessment Tool: https://www.betteryouknow.org/i-want-to-know-for-women

Breaking Through: www.breakingthroughhemophilia.org

Nominate a Teen Today!: www.teenimpactawards.org 

Support Max Feinstein here: https://fundraising.fracturedatlas.org/redefine-hemophilia

The Speakpipe Link: givemeanh.com 

Listen to Max here: https://maxfeinstein.bandcamp.com/

It’s the second Thursday of Bleeding Disorders Awareness Month, and that means Josh is back to take a moment for mental health. Today’s word is depression, and he is joined as usual by Debbie De La Riva, who gives some expert advice on how to manage depression, how to talk to someone who is feeling depressed or suicidal, and where to find valuable mental health resources.

National Suicide Prevention Lifeline 800-273-8255 https://suicidepreventionlifeline.org/ Mental Health First Aid Class: https://www.mentalhealthfirstaid.org/ Mental Health America Surveys: https://screening.mhanational.org/screening-tools/ Free Support Groups Depression BiPolar Support Alliance: https://www.dbsalliance.org/ New Harbinger Publications: https://www.newharbinger.com/ The no BS Guide for Men dealing with Depression: https://www.newharbinger.com/how-stop-feeling-so-damn-depressed

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Mel Forrest, host of The Pain Pod, is joined by guest Rebecca Hill to discuss HIV and HepC, the community today and Blood of the Paladin for National Women and Girls HIV Awareness Day. 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/