BloodStream

Gayathri Rajaram talks about being the mother of Swedha Rajaram, a teenager with hemophilia. She shares her first experiences finding out about her daughter’s bleeding disorder, plus her family’s love for Indian classical dance.

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

FLOW’s Christie & Jessica speak with community member Sara Jestrab on today’s special daily dose of Bloodstream Media! Sara gives Christie & Jessica wonderful advice in honor of International Women’s Day. 

Listen to the next episode of FLOW - straight talk about extreme periods on Thursday March 11th, wherever you get your podcasts!

March is Bleeding Disorders Awareness Month and The Bloodstream Podcast is bringing you short daily episodes. Find out more about all of Bloodstream Media shows at www.bloodstreammedia.com

Program Notes:

Thank you Sara!

Listen to FLOW - monthly episodes : )

Find our Hosts’ on Instagram:  @jessicalaurenrichmond @howtotalktoyourdoctor

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

We introduce Doug Kerr to the community! Doug is the chief medical officer at Generation Bio, the company investigating non-viral gene therapy. Listen in to learn more about this fascinating science AND Jessica Richmond, co-host of FLOW, will join us to share a preview of her conversation with Dr. Paula James, hematologist, and founder of Let’s Talk Period during the March FLOW episode. A great listen!

Program Notes: 

Check out Generation Bio: https://generationbio.com/ 

Subscribe/listen to FLOW, straight talk about extreme periods: https://www.bloodstreammedia.com/shows/flow 

Let’s Talk Period: https://letstalkperiod.ca/ 

Follow Amy on Instagram

Follow Jessica on Instagram

During Bleeding Disorders Awareness Month, Thursdays are all about Mental Health. Join BloodStream producer and Creative Director at Believe Limited Joshua Sterling Bragg as he takes a moment for isolation. And it wouldn’t really be a mental health moment without our dear friend Debbie De La Riva to guide us through. Happy Thursday. 

Mental Health Resources: 

Workbooks: https://www.newharbinger.com/ 

Debbie’s Website: MentalHealthMatterstoo.com 

NHF’s Steps for Living: https://stepsforliving.hemophilia.org/

HFA’s Learning Central: https://www.hemophiliafed.org/the-institute/ 

Let’s Talk - Mental Health: https://letstalkmh.com/resources 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

von Willebrand’s disease is the most common bleeding disorder, but did you know it still remains mostly a mystery? Listen in with Patrick as he provides a great overview on vWD, the tricky diagnosis process, the science behind it, and treatment options for those affected. Bleeding Disorders Awareness Month celebrates our fellow vWD bleeders too! Check it out to learn more!

Program Notes:

All About VWD from NHF: https://www.hemophilia.org/bleeding-disorders-a-z/types/von-willebrand-disease 

CDC on vWD: https://www.cdc.gov/ncbddd/vwd/ 

Newly released vWD Guidelines: https://www.hematology.org/education/clinicians/guidelines-and-quality-care/clinical-practice-guidelines/von-willebrand-disease 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Do you want to know the basics of hemophilia, or do you have a friend or family member that could use an overview? Bloodstream has you covered! Join us for this special episode, in celebration of Bleeding Disorders Awareness Month, as Patrick gives us the basics on Hemophilia A and B, treatment history, and HTC’s. 

Program Notes:

Brush up on your Hemophilia Skills with NHF: https://www.hemophilia.org/bleeding-disorders-a-z 

CDC on Hemophilia: https://www.cdc.gov/ncbddd/hemophilia/

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

To celebrate Bleeding Disorders Awareness Month, BloodStream is releasing daily episodes full of stories, history, and the people that make our community special. Start here with our first special episode as Patrick gives us the history behind Bleeding Disorders Awareness Month and the advocacy work it took, over decades, to become a reality. 

Program Notes:

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

We Show Our Stripes for Rare Disease Day by welcoming NHF Education Specialist, Teen Impact Awards Host, and all-around wonderful advocate, Nikole Scappe to discuss her new book for rare bleeding disorders, Super Seven! Also, Amy shares a press release from NHF, WFH, and EHC on the recent Fitusiran clinical trial updates. A can’t miss episode of BloodStream!

Program Notes: 

Register for the Super Seven Launch Party: https://www.hemophilia.org/events/nhf-book-launch-party 

Fitusiran Press Release: https://www.hemophilia.org/news/sanofi-revises-fitusiran-dosing-regimen-to-mitigate-risk-of-vascular-thrombosis 

Show Your Stripes For Rare Disease Day with NORD: https://rarediseases.org/rare-disease-day/ 

Amy and producer, Greg, share what Bloodstream has in store for Bleeding Disorders Awareness Month and Corey MacGregor, from Tremeau Pharmaceuticals, stops by to share her personal journey with chronic pain and why The Pain Pod was an opportunity she was passionate about. 

SUBSCRIBE and listen to The Pain Podcast 

Patrick and Amy discuss some of the topics presented during #EAHAD2021’s Virtual Conference before Amy’s joined by FLOW host Jessica Richmond for an interview with pediatric hematologist/oncologist Dr. Angela Weyand, aka the “Shematologist!”

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

CHECK OUT ALL OUR SHOWS: http://bit.ly/AllBloodStreamStuff

#EAHAD2021 on-demand: http://bit.ly/EAHAD2021

DR ANGELA WEYAND on Twitter: http://bit.ly/Shematologist