We breakdown and react to a recent article on the role of child-abuse pediatricians and some of the dreadful outcomes that’ve come from the creation of this well-intended specialty.  Then NHF board member and blood brother John Faria joins Patrick to discuss his role in the recently launched HemeWork program.

 

Presenting Sponsor: Takeda

Segment Sponsor: Genentech

Article: When the Misdiagnosis Is Child Abuse

The Marshall Project 

HemeWork: Community Stories

 

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To the surprise of many, on August 19th the US Food and Drug Administration denied the first application for a one-time gene therapy for hemophilia A. Patrick and Amy process this major news then share soundbites from their conversations with doctors Valentino, Quon, Young, and Wang during #NHF2020's Science Fair about gene therapy, emicizumab, and novel therapies.

Presenting Sponsor: Takeda Response to FDA's Actions: HFA Statement The Science Fair is made possible by Spark Therapeutics 

Bombardier Blood is now available worldwide!  On release day, Patrick shares some "final thoughts" on the project, then turns the show over to Liz Manashil and Alrik Bursell's interview of him about the film for the Making Movies Is Hard podcast!    Presenting Sponsor: Takeda Bombardier Blood: Available now! Bombardier Blood Q&A w/ Anthony Rapp: More info! Making Movies Is Hard w/ Liz Manashil and Alrik Bursell: Subscribe!

 Patrick, Natalie, and Amy circle up to share highlights and personal takeaways from the National Hemophilia Foundation’s Virtual Bleeding Disorders Conference, which took place August 1st-8th via hemophilia.org. Listen in as the hosts recap some critical sessions, relive their favorite experiences, and share personal takeaways from #NHF2020!

Presenting Sponsor: Takeda

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With Believe Limited's Zoom(sical) about bleeding disorders only days from launch, director Katharine Lerner, musical director Paul Russell, and producer Jessica Lauren Richmond join Amy and Patrick for a candid conversation about how theater has changed their lives!

 

Presenting Sponsor: Takeda

Episode Sponsor: Genentech. Visit their new website: GenentechHemophilia.com

Watch Hemophilia: The Zoomsical!

 

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Does von Willebrand factor have something to do with COVID? What’s NHF’s virtual BDC all about? And are Natalie and Patrick pregnant?! (Spoiler: YES!) All this plus we welcome Amy Board and interview Nikole Scappe!

Presenting Sponsor: Takeda

NHF’s Virtual Bleeding Disorders Conference: Interactive Program

COVID-19 & Von Willebrand Factor: Article

SOBO 4 Save One Life: William Addision’ Appalachian Trail Fundraiser! 

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The Flagship! Natalie and Patrick discuss the era of "virtual everything," how COVID's put remote chronic disease management in the spotlight, and Jason Schiffman (MD, MA, MBA), the Founder and Director of UCLA's Dual Diagnosis Program, joins for the interview to discuss the relationship between anxiety, depression, and addiction. Plus, Natalie and Patrick reflect on what's been a historic time of activism and civil unrest.   Presenting Sponsor: Takeda Like Segment Sponsor: Genentech   Like Segment: Maintaining Chronic Disease Management During COVID   COVID Financial Resources from NHF COVID Financial Resources from HFA Facts on Racial Injustice from DoSomething.org Showing Up For Racial Justice   Camden Center / Dr. Jason Schiffman UCLA Dual Diagnosis / Dr. Jason Schiffman   Racism in America: A BloodStream Media Special   Subscribe to BloodStream on Apple Podcasts

 

Patrick speaks with Connie R. Faltynek, biochemist and author of Pain: Why Do We Continue to Suffer? about why treatment for pain is so far behind, the various forces contributing to pain, and more!

Pain: Why Do We Continue to Suffer?

BloodStreamMedia.com

BleedingDisorders.com (thanks, Takeda!)

BloodStream Media hosts Ahmar Zaidi and Patrick James Lynch are joined by guests Phillip Okwo and André Marcel Harris for a discussion on race, violence, and healthcare in America.   Take Action Right Now: https://8cantwait.org/ Guests: Phillip Okwo; André Marcel Harris   Subscribe to The BloodStream Podcast Subscribe to Cheat Codes

Patrick is joined by Ask The Expert host Amy Board and Mental Health Matters Too Founder, Debbie de la Riva for a conversation on chronic pain and mental health.

Watch LIVE on Facebook. Visit Mental Health Matters Too. Subscribe to The BloodStream Podcast Thank you to our Presenting Sponsor, Takeda.  Visit bleedingdisorders.com to learn about how Takeda is responding to COVID19.