BloodStream

Jeanne joins Patrick for a special World AIDS Day interview to discuss the current state of HIV/AIDS, the impact of the Ryan White Care Act 30 years after the bill’s passage, her experience through COVID, and much more!

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The BloodStream team shares gratitude, stories, and bizarre moments from Thanksgivings past, then Philadelphia Youth Basketball CEO Kenny Holdsman joins for a Believe 19 interview!

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

SEGMENT SPONSOR: Genentech - bit.ly/BloodlessBattle

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PHILADELPHIA Youth Basketball: bit.ly/PYBBSP20

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Natalie joins Patrick and Amy to discuss how coronavirus is impacting holiday plans, the Affordable Care Act’s Open Enrollment period- closing December 15th- and actor Damian Washington joins to tell us about his multiple sclerosis YouTube channel NoStressMS and much more!

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

DAMIAN WASHINGTON’s website: https://bit.ly/DWNoStress

ORDER a free BloodFeed! Calendar: https://bit.ly/BloodFeedCalendar

NHF’s Insurance Toolkit: https://bit.ly/32MufSs

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Policy experts Johanna Gray, a principal lobbyist representing the National Hemophilia Foundation (NHF), and Nathan Schaefer, NHF’s Vice President of Public Policy, join Amy and Patrick to discuss what the election results mean for bleeding disorders advocacy going forward. Plus, we pay tribute to beloved community advocate Donald “Ziggy” Douglas, who passed away suddenly earlier this week.

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LISTEN to BloodStream Journeys - https://bit.ly/BSJourneys

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Patrick and Amy discuss ICER’s recently published Evidence Report on Therapies for Hemophilia A as well as NHF’s Virtual Insurance and Reimbursement Conference. Then Amy interviews Nourbese Flint, the Policy Director for Black Women For Wellness, and we hear from the Assistant Secretary for Health, ADM Brett Giroir.

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

ICER’S EVIDENCE REPORT: http://bit.ly/ICERHemA2020

NHF’S INSURANCE CONFERENCE: http://bit.ly/InsurReimburse20

BLACK WOMEN FOR WELLNESS: http://bit.ly/bwwlaBSP

CHEAT CODES PODCAST: http://bit.ly/CheatCodesPod

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#hemophilia #ICER #healthinsurance #blackwomenforwellness #bleedingdisorders #bloodstreampod

In this Mischief Night 2020 episode, Patrick and Amy are joined by Haunting Season creator and host Joshua Sterling Bragg to escape the world as we know it for a quick trip into the paranormal and unexplainable! That, plus an interview with a representative of the high school activist group Swab4USA.

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HAUNTING SEASON: http://bit.ly/HSBSP20

SWAB 4 USA: http://bit.ly/Swab4USA

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Patrick, Amy, and Natalie share some announcements before Kollet Kouliaos, the National Hemophilia Foundation's Senior Director of Payer Relations, joins to discuss some recent and encouraging survey results regarding copays and out-of-pocket costs, then fresh off the Appalachian Trail, teen adventurer William Addison joins to tell us about his 2,200 mile hike benefitting Save One Life!

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

SEGMENT SPONSOR: Genentech - https://bit.ly/2FZ7K3P

Check out Twitch Rivals: https://bit.ly/2ZXZRTx 

Survey Results on Copay Assistance: http://bit.ly/CoPaySurvey

SOBO for Save One Life: http://bit.ly/SOBO4SOL

WFH’s new President, Caesar Garrido: http://bit.ly/WFHCesar

Check out the new podcast, Haunting Season: http://bit.ly/HSBSP20

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Patrick and Amy discuss the recently published, “100 Days Agenda: A Patient-First Blueprint” and are then joined by National Hemophilia Foundation’s Elizabeth Molnar to talk about the Unite For Bleeding Disorders walks!

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

100 Days Agenda: A Patient-First Blueprint: http://bit.ly/100DaysPatientsFirst

NHF’s Blue Sky Initiative: http://bit.ly/NHFBlue2020

Unite For Bleeding Disorders: http://bit.ly/UniteBD2020

Casting  for Season 2 of The Pain Podcast - http://bit.ly/PainPodCasting

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Patrick and Amy discuss social media’s impact on mental health before Mental Health Matters Too founder Debbie de la Riva joins to talk about mental health awareness, the questions she’s most commonly asked, the shifting role of telehealth, and the World Mental Health Day screening of the film Let’s Talk.

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

REGISTER for the Rare Impact Awards - bit.ly/NORDRIA20

RSVP for World Mental Health Day Let’s Talk Screening - bit.ly/LetsTalkMHEvent

CASTING for Season 2 of The Pain Podcast - http://bit.ly/PainPodCasting

Mental Health Resources*:

VISIT Mental Health Matters Too for resources and links - http://bit.ly/MHMT2020

GET INVOLVED with National Alliance on Mental Illness - https://bit.ly/3jHlQ9i

LEARN MORE about black mental health resources - https://bit.ly/3nzwtgq

GO TO Mental Health Coalition -  https://bit.ly/3iMEhIe

GET Cerebral - https://bit.ly/34CCPDk

HEAD to Better Help - https://bit.ly/34T4Vuj

* Believe Limited and Mental Health Matters Too are informing others of the existence of these services, but we are not endorsing any particular service..

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The Rare Impact Awards, hosted by the National Organization for Rare Disorders (NORD), take place on Friday October 9th at 7pmEST and will honor music legend Peter Frampton, Ohio Senator Sherrod Brown, and our very own Patrick James Lynch (amongst others)! NORD’s Director of Strategic Planning and Project Development Lisa Sarfaty joins to discuss the event, then Germantown Academy’s legendary basketball coach Jim Fenerty joins to talk about his four-decade long coaching career, his diagnosis, and the rare blood cancer awareness campaign he’s joined.

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VOTE!  Vote.org - bit.ly/VoteOrg20

VOTE!  WhenWeAllVote - bit.ly/BSPWWAV

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