BloodStream

Patrick and Amy are joined by Effie Parks from the Once Upon A Gene podcast and Mel Forrest from Season 2 of The Pain Podcast!  They also touch on recent bleeding disorders news and preview next week’s exciting expert guest!

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

CHECK OUT ALL OUR SHOWS: http://bit.ly/AllBloodStreamStuff

ONCE UPON A GENE PODCAST: http://bit.ly/EffiesShow

PAIN PODCAST: http://bit.ly/PainPodS2

Patrick and Amy are joined by Save One Life board member Natalie Lynch to discuss the organization’s focus to start the year as well as to share updates from her pregnancy journey! The three also discuss recently published non-viral gene therapy data and welcome on blood brother and musician Tamar Mitchell.

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

SAVE One Life: http://bit.ly/S1L2021

NON-VIRAL Gene Therapy: http://bit.ly/GenBio2021

TAMAR Mitchell IG: http://bit.ly/TamarMitchellIG

TAMAR Mitchell YT: http://bit.ly/TamarMitchellYT

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy discuss a recently published article by clinicians urging colleagues to educate their patients via social media. Then, our hosts bring on Brian O’Mahony to discuss his gene therapy clinical trial experience, his take on recent community news, and how the Irish Haemophilia Society has fared through COVID19.

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

BRIAN on Twitter: http://bit.ly/BOMtwitter

TWITTER changing hematology: http://bit.ly/TwitterASH21

MEN born w hemophilia on gene therapy: http://bit.ly/RobustInquiry

GENE therapy trial placed on hold: http://bit.ly/GTtrialHold

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

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WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy discuss the long-awaited Von Willebrand Disease (vWD) guidelines published in the medical journal, Blood; provide an exciting update on a recent “Believe 19” guest, and speak to Camille Proctor, founder of The Color Of Autism Foundation.

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

vWD Clinical Guidelines: http://bit.ly/vWDguidelines

FLOW podcast: http://bit.ly/FLOWBSM

PHILLY Famous podcast: http://bit.ly/PhillyFamousPodcast

COLOR of Autism Foundation: http://bit.ly/ColorOfAutism

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

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WATCH BloodStream on YouTube - bit.ly/BSPYT20

#hemophilia #vonwillebranddisease #vwd #autism #podcast

Patrick and Amy review NHF’s FAQs regarding the COVID-19 vaccine’s safety for people with bleeding disorders, discuss recent healthcare legislative victories, and welcome Christie VanHorne and Jessica Richmond, hosts of BloodStream Media’s newest show full of straight talk about extreme bleeding: FLOW.

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

FLOW podcast: http://bit.ly/FLOWBSM

CHRISTINE VanHorne on LinkedIn: http://bit.ly/CVHonLI

JESSICA Richmond on LinkedIn: http://bit.ly/JLRonLI

NEHA Fund for Max: http://bit.ly/nehamemorial 

WASHINGTON Days registration: http://bit.ly/DCDays2021

COVID-19 Vaccine FAQs from NHF: http://bit.ly/COVIDvaccineNHF

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy kick off the new year with health equity specialist and community member Alexa Abreu to discuss the role diversity and inclusion plays in achieving health equity. 

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

ALEX on LinkedIn: http://bit.ly/AlexaOnLI

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy are joined by acclaimed pediatric hematologist and researcher Dr. Robert Sidonio for his take on the state of bleeding disorders as we close out this most unusual year.  Happy Holidays!

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

FLOW, a BloodStream show for women - http://bit.ly/BSMFlow

DHAMMA (Vipassana) - http://bit.ly/DhammaBSM

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy are joined by National Hemophilia Foundation’s (NHF) VP of Public Policy Nathan Schaefer and Senior Manager of Government Relations Bill Robie to discuss key differences between state and federal advocacy, unique challenges to state-level advocacy, and how NHF’s State Based Advocacy Coalitions (SBAC) program assists chapters with state advocacy.

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

NHF’s State Based Advocacy Coalitions (SBAC) Program: bit.ly/NHFSBAC

HERTZ on Cheat Codes: bit.ly/cheatcodespod

PRESTON on Journeys: bit.ly/BloodStreamJourneys

GENE THERAPY article: bit.ly/GTfactor

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy are joined by hemophilia and sickle cell expert Dr. Michael Callaghan who provides major takeaways from #ASH20. They also discuss actor Amanda Fuller’s disclosing her son’s hemophilia and the Irish Haemophilia Society’s CEO Brian O Mahony disclosing his enrollment in a gene therapy clinical trial. 

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

AMANDA FULLER’s IG post: bit.ly/AFullerHemB

PEOPLE Magazine story: bit.ly/AFullerPeople

DIVERSITY & Inclusivity in research: bit.ly/BMSDICT

BRIAN O MAHONY’s gene therapy experience: bit.ly/BrianGThemB

IRISH TIMES story: bit.ly/ITFunCure

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - bit.ly/BSPYT20

Patrick and Amy discuss the importance of Giving Tuesday, the significance of #ASH20 (American Society of Hematology’s Annual Meeting), and they speak with a young man named Zachary who recently made an incredible commitment to Save One Life.

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

SUPPORT Save One Life: https://bit.ly/S1L2020

S1L SCHOLARSHIP Program - Philippines: https://bit.ly/S1LScholarshipPh

WORLD AIDS Day w/ Jeanne White-Ginder: https://bit.ly/JeanneWAD2020

SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP

LIKE BloodStream on Facebook - bit.ly/BSFB20

WATCH BloodStream on YouTube - http://bit.ly/BSPYT20