Bowel Moments

Send us Fan Mail

This week we talk to Hannah Cramer! We talked a lot about surgeries, waking up with an unexpected ostomy, how the world could be more accessible for people living with ostomies, her challenging career and how her IBD influenced her career choice, and trauma and IBD. You won't want to miss this great conversation. We're convinced she's going to change the world.

Links:
SO much Ostomy info from the United Ostomy Association
Info on ostomy parts and how to choose a supplier- United Ostomy Association
Donate ostomy supplies or get donated ostomy supplies- Friends of Ostomates Worldwide
Journal Article on how IBD can cause Post Traumatic Stress
Journal Article on Resilience and IBD

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

This week we talk to Caroline Perry on being diagnosed with Crohn's disease very young, growing up with IBD, and what is was like to have a sibling with IBD as well as one without IBD. We also talk about establishing boundaries when we you have IBD and also work in IBD research, how important it is to find people who really "get it", creative outlets for expressing feelings, and the importance of therapy (again- always).  We share some laughs, some stories about bathroom emergencies, some sparkling water, and sadly Alicia drinks wine alone. 

Links: 

• Where to find community and support from the Crohn's & Colitis Foundation 
• Youth and Parent resources from the Crohn's & Colitis Foundation 
• Mental and Emotional Well Being resources from the Crohn's & Colitis Foundation 
• Rome GI Psych- therapist search 

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

In this episode you meet Dr. Lukasz Kwapisz! Dr. Kwapisz is an Assistant Professor and IBD Specialist at the Inflammatory Bowel Disease Center at Baylor College of Medicine in Houston, TX.  We discuss how he chose to specialize in IBD and his passion for treating our community,  his special interest in pouch disorders, tests that your doctor orders and why, the importance of early interventions,  his clinical trials experience versus real life treatment,  how close we're getting to personalized medicine, and tequila. And how he's a regular medical commentator on Canadian TV! 

Links: 

• Information on Pouchitis from the Crohn's & Colitis Foundation 
• Journal Article- "Treatment of Pouchitis, Crohn's disease, cuffitis and other inflammatory disorders of the pouch: Consensus guidelines from the International Ileal Pouch Consortium" 
• Information on Pouchitis from the Cleveland Clinic
• Information on tests your GI may use to manage your IBD from the Crohn's & Colitis Foundation
• Clinical Trials Community from the Crohn's & Colitis Foundation 

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

In this episode you meet Dr. Bincy P. Abraham! Dr. Abraham is a Distinguished Professor and Director of the Fondren Inflammatory Bowel Disease Program at the Underwood Digestive Diseases Center at Houston Methodist Hospital. We discuss her career in GI, her research into probiotics and nanotechnology, women's hormones and IBD, how she chooses her healthcare partners and patient treatments, how sometimes being a GI is like playing video games, and her love of California Cabernets. 

Links: 

• Bincy's journal article about Nanotechnology
• Information on pregnancy and IBD from the Canadian Society of Intestinal Research
• A journal article on hormone fluctuations and IBD

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

This week we talk to Crohn's patient Jodie Delay who also has a brother and son with Crohn's. We discussed accepting and feeling all emotions, how empowering and exciting advocacy can be, and  how you can choose to live joyfully even in the face of adversity (#ginandjoy). Jodie also gives us some parenting hacks and reminds us that just because you may have IBD, doesn't mean that you can't live out your "Impossibly Big Dreams." 

Links: 

• Jodie is drinking Cold Smoke Scotch Ale- made by her cousin at Kettle House Brewery. Check it out! 
• A journal article about Crohn's Associated Lung Disease
• Information on Extraintestinal Complications of IBD from the Crohn's & Colitis Foundation
• One option to get involved in legislative advocacy

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

This week we talk to Amy Btiebet Washington on living well with Crohn's disease, self-care options, finding the right provider and the right tribe, how vulnerability can create connections, and how sometimes you just got to have that craft beer even if you pay for it the next day.

Resources:
- TED Talk- Brene Brown- The Power of Vulnerability- So good.
- Rome GI Psych- referral list of therapists familiar with GI disorders
- Information on mental health and IBD- Crohn's & Colitis Foundation
- An interesting article about self-care and chronic illness from The Philly Voice
- Info on the risk of a child inheriting IBD if you have IBD from The Preconception and Pregnancy research program from the University of Alberta and the University of Toronto. 

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

In this episode you'll meet Lt. Colonel Dr. Anish Patel! Dr. Patel is the head of GI and an IBD Specialist at Brooke Army Medical Center in San Antonio, TX. We talk to him about why he chose IBD, how an IBD diagnosis works in the military, the importance of mental health, and small batch whiskey.

Links:
-Iron Smoke Distillery
-Brooke Army Medical Center Gastroenterology
-Information on IBD from the VA's website
-Information on how/if you can get your IBD Care at the VA 
-Rome Foundation- search tool for a mental health provider familiar with GI disorders
-Mental Health Info and Resources- Crohn's & Colitis Foundation

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

As you hopefully heard in our last episodes, both Co-Host Robin and last week's guest Stacey Collins were having J-Pouch surgery. Their surgeries were quite close together and so they became surgery/recovery buddies. Unfortunately they had vastly different post-surgical outcomes. In this episode we talk about their different experiences, we talk about pre- and post-surgery nutrition, working with a dietitian to prepare for surgery, and provide you with lots of tips if you're also facing J-Pouch or ostomy surgery.

Resources: 
Information from the Crohn's & Colitis Foundation on J-Pouch Surgery
Information from the Crohn's & Colitis Foundation on surgery
Information from the Cleveland Clinic on J-Pouch Surgery
Information from the Crohn's & Colitis Foundation on Colon Cancer risk and IBD

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

We had so much fun talking to our friend Stacey Collins in this episode! Stacey is a Dietitian who lives with UC and we talked about the field of Dietetics, diet research for IBD,  what you can find out in your bloodwork, surgery as a treatment option, road-tripping with IBD....and the joy that is Topo Chico....especially when mixed with tequila and lime.

Cheers!

Resources and Show Notes:
1. CORRECTION: Vitamin C deficiency in IBD was from LAURA MANNING, RD from The Mount Sinai Hospital

2. Here's an article about perioperative nutrition. There are different recommendations for the time that a patient should be consuming EN prior to surgery based on nutritional status, and this should always be done under the direction of a perioperative GI dietitian or trusted surgical team with nutrition expertise. 

3. **Micronutrients shouldn't be supplemented without the support of data (patterns of labs over time; never blind supplementation) and your trusted GI dietitian and medical team. 

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

Send us Fan Mail

In this episode we talk to Dr. Ashish Patel who is the Chief of Gastroenterology and Hepatology at Phoenix Children's Hospital and an IBD expert! We discuss caring for kids with IBD, pediatric IBD research and why it's both exciting and frustrating, transitioning patients to adult care, and so much more! Be like Dr. Patel and grab an IPA and join us! 

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!