Brain Cancer Podcast

Hello! This is a quick one but I wanted to make an episode for hitting and surpassing the seven year mark on this brain cancer journey we've been on. Of course there are ups and downs with good and bad days. However, we are still going! It was such a hectic and tiring summer but I feel like I'm back on track and just about to start on a new trial drug so we will see how it goes. Of course, I'll be sharing it with you all as well. Your support has meant so much to me and I just want to keep sharing with you all. Thank you for everything. Here's to another seven years!Chris

Hello! I wanted to create this episode for Glioblastoma Awareness Day 2023 to add to the various articles and stories you hear from GBM patients. Whether as a patient or a caregiver, this disease is horrible. We've lost some true greats to this disease. And I don't necessarily mean "famous" people although we have lost them as well. Parents, siblings, family members, best friends...I know that better treatments are out there and researchers are hard at work looking for answers. I just want to say thank you to everyone for all of the support I've gotten. Truly the best people in the world. Here are some of the links I had mentioned as well! The durvalumab trial I was on (Cohort A):https://classic.clinicaltrials.gov/ct2/show/NCT02336165ABTA links:https://www.abta.org/national-conference/https://give.abta.org/event/webinar-what-to-know-when-youre-newly-diagnosed-with-glioblastoma/e456254https://www.abta.org/brochures/

Hello! Sorry for the gap in episodes but it's been a hectic few weeks with work, spring garden prep and planting, taking my photo walks, and general hospital visits and treatments that have kept me behind on so much. But, this is one I was really excited to record and I've already set aside time to record our next episode which is very relevant to this month. It only took a few years but I'm finally more comfortable in post editing with getting my volume set to the standard of LUFS and hopefully the earlier episodes didn't have you changing the volume a lot! LOL, I get there eventually. I hope you enjoy this one and that it can be helpful to you as a patient or caregiver!Chris

Well hello and thank you for listening today! It's been two years since my second craniotomy for a small recurrence of my brain tumor. I cannot believe that it's been two years already! I just wanted to share how I felt back then and how I'm feeling today while still going through my own treatments. I have to apologize for not getting everything I wanted to get done for Brain Tumor Awareness Month. Like I mention in the episode, I just don't have enough hours in the day after work and getting everything cleaned up and planted outside. I also have to manage with the fatigue as well.

Hello! This is just a short episode talking about Brain Tumor Awareness Month here in May 2023.  I just started talking and just went with what I was feeling. Not exactly a structured episode but sometimes I like to just talk. And thank you for letting me talk. This is a show for all of us and it really acts as a bit of therapy for myself as well. Some days ARE difficult. But I am so lucky that I've got an outlet like this. I got some not-so-great news recently as we've lost another good soul far too soon. It's this awful situation where we meet under such unfortunate terms but I don't take any days or anything for granted. I know one day we will be able to beat this disease. Thank you all so much. Please never hesitate to reach out to me if you need anything. Chris

Hello! I am so sorry for the delay between episodes! I also did not realize I already did an episode about MRIs but I'm not going to waste a recording I made. Maybe it can help someone and that's all I want. It's been a very hectic few months and I'll be doing an update. Don't worry, I am still going and our journey continues! I was also at work a bit more, spring cleanup outside, starting seeds for the garden, and we just had the Boston Marathon and had a great time as a spectator! Even with some rain near the end, I am always excited for seeing these athletes run. I've got a few great ideas for episodes and we're going to have a great summer!ChrisLinks:https://radiology.ucsf.edu/patient-care/prepare/mri#-https://radiologykey.com/imaging-of-brain-tumors-mr-spectroscopy-and-metabolic-imaging/

https://moffitt.org/cancers/brain-tumor/diagnosis/mri/

https://www.cedars-sinai.org/programs/imaging-center/med-pros/neuroradiology/mr-spectroscopy.html

https://4rai.com/blog/3-types-of-mri-machines

https://www.nibib.nih.gov/science-education/science-topics/magnetic-resonance-imaging-mri

Hello! I'm sorry for the delay and I'm getting caught up on things. Normally, I should have more time but I've been busy with so many things and I wanted to record. This is just a short personal update and I also felt like I wanted to talk about some of the things we as brain cancer patients and caregivers hear both online and in real life. I want to thank you all so much for supporting me over these years and being so kind to me. I always have so many potential topics going through my head but please let me know if there's something you want to hear about. This is our show! Chris

Hello and welcome! In this episode, we go over the latest step in my current treatment and discuss what lomustine is, potential side effects, and a story of how much control some companies have over our treatments. I'm sorry for the slight delay in releasing this episode. I've been working, going to appointments, and my voice has been pretty rough the past week or so. That makes recording just not something I could have done. I also normalized the audio to the industry standard because I'm still learning things here! I hope it sounds ok and that the volume is balanced from start to finish with nothing being too loud or quiet. Please let me know if there are any issues. Thank you all so much for your support and being the greatest group of people. I practice gratitude every day and it helps me so much. Links from the show:https://chemocare.com/chemotherapy/drug-info/Lomustine.aspxhttps://www.sciencedirect.com/topics/pharmacology-toxicology-and-pharmaceutical-science/alkylating-agenthttps://www.drugs.com/drug-class/alkylating-agents.htmlhttps://cancerletter.com/trials-and-tribulations/20210716_7/https://www.cbsnews.com/news/brain-cancer-drug-gleostine-no-longer-an-option-under-medicare/https://journals.lww.com/neurotodayonline/fulltext/2021/09160/a_glioblastoma_drug_is_abruptly_withdrawn_from.6.aspx

Hello and happy holidays!! As we head into 2023, I wanted to do a little recap of 2022 and talk about some plans for the next year. I'm really excited to see what we have in store next year. Thank you all so much for all of your support during these 6 years! I am so thankful to have you all in my life. Make sure you give the show a follow on your podcast app of choice and if you enjoy the show, write a review so that others can find it!Chris

Hello! I figured that a new year would be a good time to update our trailer since I made the original one quite some time ago. It's just a 1 minute trailer and I tried to fit what the show is and the purpose all within a minute. I wanted to keep it in that general range so that more people can hear a quick trailer and tune in. Be sure to share it and thank you all! 2023 is almost here and we've got a lot more to talk about!Chris