Hello! This is our episode where we look back on just a few of the many brain cancer studies and articles over the month of July, 2022. I really enjoy doing these and it's a good way to see how many new therapies are being pursued around the world! Thank you all so much for listening and please follow the page and Facebook at Facebook.com/braincancerpodcast Also, make sure you subscribe! You are all amazing!ChrisAs usual, links are provided down below and I will link the times if you wanted to note a specific part of the episode. Links:Detecting Brain Cancer 2:30https://hms.harvard.edu/news/detecting-brain-cancer

 

Brain Cancer Therapy in Pediatric Trial 8:35https://www.genengnews.com/topics/cancer/brain-cancer-therapy-shows-promise-in-pediatric-clinical-trial/A New Path 13:20https://news.yale.edu/2022/07/28/new-path-treating-brain-cancer-yale-developed-compoundKnoxville boy and Batman 18:25https://www.wate.com/news/smile-check/we-came-home-and-contacted-batman-says-mother-of-knoxville-boy-fighting-brain-cancer/

Hello! Across the United States, July 20th is recognized as national glioblastoma awareness day and I wanted to release a short episode talking about some of my feelings and how much all of YOU mean to me. But honestly, all brain tumors are dangerous. GBM is certainly not the only very aggressive tumor type. While it's not the longest episode, I wanted it to be a short listen and show how thankful I am. For so many things. I've made some great friends and met the most amazing people as a result of our diagnoses.

Hello! Thank you for tuning in to our monthly news recap! I read some very interesting articles this month with a focus on both DIPG and GBM as they are both diffuse, difficult-to-treat tumors. I didn't realize that this episode went longer than usual and I considered cutting an article out but I've included time stamps down below with a link to each article. I'll also add a longer transition time between segments! I'll do better on that next time! Up next: GBM Awareness Day 2022! Thank you all so much and I love all of you and the support you've given me!

 

ChrisLinks and time stamps:1:04https://www.channel3000.com/i/harnessing-a-virus-to-fight-a-killer-brain-tumor-in-kids/

7:40https://newsroom.uvahealth.com/2022/06/28/discovery-points-to-better-treatments-for-brain-tumors/

12:39https://medicalxpress.com/news/2022-06-light-activated-photoimmunotherapy-brain-cancer-treatment.html

18:07https://www.targetedonc.com/view/fda-grants-rpdd-to-paxalisib-for-rare-pediatric-brain-cancer

23:12https://www.msn.com/en-gb/news/other/woman-who-lost-her-sight-through-brain-cancer-prepares-for-sunderland-triathlon/ar-AAYUh3e?fromMaestro=true&pfr=1

Hello! Thank you all for tuning in! I'm sorry this episode took me a little longer to edit because it was a very hectic few weeks!I just wanted to talk about some of the things you may have to complete before a craniotomy as well as what it is like when you wake up and how the following few weeks are after you get home! I've got a couple links at the bottom here as well. You should get a sheet of paper that will break down what you can and cannot do after going home. In addition, you'll be given instructions to follow regarding your medications. I just hung mine on the refrigerator so it wouldn't get lost. These are just my experiences and general guidelines as your team will give you instructions for your specific situation.Once again, sorry for the delay and I've already got the topic for our next episode! 

You're all amazing!Chris

 

Linkshttps://www.healthpages.org/surgical-care/craniotomy/https://hartfordhospital.org/services/neuroscience-institute/patient-support/discharge-instructions/after-brain-surgery

Hello! Thank you so much for tuning in and sharing your time with me! In this episode, we cover some of the latest news and research in the world of brain cancer. I really enjoy doing these monthly updates because the research and studies are constantly evolving. As usual, links are posted below for you to reference if you would like. I appreciate all of you so much! I truly have met some special people in very special places doing this and I am so thankful!Chris Links:

https://www.silive.com/news/2022/04/rare-brain-tumor-found-in-115-people-who-attended-or-worked-at-a-new-jersey-high-school-report.html

https://www.nbcnewyork.com/news/local/nj-parents-demand-swifter-action-in-school-cancer-probe-after-100-brain-tumors-diagnosed/3672694/

https://www.ucsf.edu/news/2022/04/422681/genomic-sequencing-changing-diagnosis-treatment-patients-brain-cancer

https://www.newscientist.com/article/2316878-crispr-nanocapsule-limits-growth-of-aggressive-brain-tumours-in-mice/

https://www.healio.com/news/hematology-oncology/20220420/cart-robustly-effective-in-younger-patients-with-deadly-form-of-brain-cancer

Hello! Thank you all so much for listening! I wanted to make a general episode discussing what an MRI is used for and how my typical scan works. I didn't want to turn it into a technical episode because for us, the images are the important part. My voice wasn't cooperating as much because I didn't drink enough water prior to recording and I hope it's not too bad. As usual, links are here if you wanted to do any extra reading or research! If you have any episodes you want to hear, please send me an email at [email protected] and make sure you subscribe to the show and visit the Facebook page at Facebook.com/braincancerpodcast for daily updates! I love doing this and your support means the world to me!ChrisLinks:https://www.mayoclinic.org/tests-procedures/mri/about/pac-20384768https://www.envrad.com/what-is-an-mri-with-contrast/https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/brain-perfusion-scanhttps://4rai.com/blog/3-types-of-mri-machineshttps://www.ggreene.com/2018/04/02/new-open-mri-at-mgh-in-chelsea-ma/https://www.clinicalimagingsystems.com/product/hitachi-oasis-1-2t-mri-scanner/

Hello! Thank you all so much for tuning in! I had some great feedback on the monthly news updates and I hope I can do about 1 per month to just recap the newest meds and treatments that keep expanding our options. I also just wanted to talk at the end about how I personally have been doing.You all are amazing and I can't say how much I appreciate everything you've done for me. I've met the most truly beautiful people in my journey.I've got a couple ideas for some upcoming episodes and I welcome all suggestions and feedback! Thank you all!Chris----------------------Links:https://www.curetoday.com/view/clinical-trial-investigating-a-combo-therapy-in-brain-cancer-now-enrolling-patientshttps://www.libtayo.com/https://www.clinicaltrials.gov/ct2/show/NCT03945253https://www.uc.edu/news/articles/2022/03/uc-joins-glioblastoma-clinical-trial.htmlNew Jersey clinical trial:https://markets.businessinsider.com/news/stocks/john-theurer-cancer-center-treats-first-patient-in-u-s-with-investigational-new-treatment-for-brain-cancer-1031313076Cell phone studies:https://www.msn.com/en-us/health/medical/new-study-cell-phones-don-e2-80-99t-increase-risk-of-brain-cancer/ar-AAVJdsehttps://publichealth.berkeley.edu/news-media/research-highlights/meta-analysis-shows-increased-risk-of-tumors-for-cell-phone-users/

Hello! First off, thank you so much for tuning in! I wanted to do a short recap/update on the CNS tumor changes introduced in the back half of last year. I tried my best but it is still hard and my voice didn't want to cooperate either. I'll be doing another update/chat type episode soon as I have a few things beyond my personal update that I want to talk about. It's hard to put into words how much you all mean to me. I love doing this and you've all been so amazing to me. Never hesitate to reach out and you aren't alone in this world! The sun shines through all the clouds.ChrisLinks:https://radiopaedia.org/articles/who-classification-of-cns-tumours-1https://academic.oup.com/neuro-oncology/article/23/8/1231/6311214

Hello! Thank you for tuning in! In this episode, I wanted to just review and talk about some of the more recent news I've seen in the brain cancer world. We are seeing many advances in treatment now that people will have more options than ever before. This means longer, happier lives in our mission to eliminate brain cancer. I hope to do this monthly as long as the news keeps coming out! Thank you all so much. I love all of you!ChrisLinks for articles from the show:Selinexor studyhttps://www.cancer.columbia.edu/news/promising-treatment-deadly-brain-cancer

Electric field devicehttps://www.qvbio.co.uk/Radiation seedhttps://www.freethink.com/health/cancer-therapyEGFR studyhttps://medicine.yale.edu/news-article/decision-switch-discovered-in-mutations-linked-to-common-brain-tumor/SurVax

https://njbmagazine.com/njb-news-now/overlook-medical-center-enrolling-patients-for-new-brain-tumor-vaccine/Chemo resistancehttps://vtx.vt.edu/articles/2022/01/scientists-at-fralin-biomedical-research-institute-develop-new-s.html

Hello! Thank you all so much for taking the time to listen to me! I did have a difficult time with making that episode and I think I can hear it in my voice. However, I tried my best and wanted to cover what I think we all know is an important topic. Cancer or not. I appreciate you all so much for your support and questions. Never hesitate to reach out! I love you all,Chris

Additional resources:https://trustandwill.com/learn/end-of-life-planning-checklisthttps://www.medicareinteractive.org/get-answers/planning-for-medicare-and-securing-quality-care/preparing-for-future-health-care-needs/health-care-proxieshttps://legaltemplates.net/form/dnr-form/https://legaltemplates.net/form/living-will/