In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares her diagnosis journey and explains why education around ME/CFS is so vital. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin explains what ME/CFS is and how it differs from other conditions with similar symptoms, like long COVID. Make sure to tune in next week for part two to hear about what's next in ME/CFS research and the importance of care partners.

 

Additional Resources

#NotJustFatigue

How to Fight Fatigue

Understanding the Impact of Invisible Illnesses on Daily Life

How Families Are Leading the Charge in Rare Disease Advocacy

 

Other Brain & Life Podcast Episodes on Similar Topics

Rare Thoughts on a Rarer Neurologic Condition

Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare

Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

 

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at [email protected]

 

Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth

Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD