In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of the department of clinical neuroscience and co-directs the Neuropalliative Care Clinic. Dr. Miyasaki explains PSP and discusses what the care experience may look like for someone living with PSP and their loved ones as they search for comfort and peace.

Interested in getting involved with advocacy? Learn more here: https://www.brainandlife.org/get-involved/advocate/  

Additional Resources

Former Representative Jennifer Wexton Breaks Barriers with AI-Generated Voice Amid PSP Battle

The Research Pipeline for Progressive Supranuclear Palsy

CurePSP

Other Brain & Life Podcast Episodes on Similar Topics

Family Stories: Diagnosing a Neurodegenerative Condition

The Future of Caregiving with Kat McGowan

Still Standing with Staff Sergeant John Kriesel

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Social Media:

Guests: Jennifer Wexton @repwexton; Dr. Janis Miyasaki @ualberta

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by songwriter, storyteller, and multi-instrumentalist Greta Morgan. Greta shares her journey being diagnosed with spasmodic dysphonia and how it has changed every aspect of her life, leading her to write her memoir, The Lost Voice. Dr. Correa is then joined by Dr. Brent Richardson, board certified Otolaryngologist (Ear, Nose, and Throat physician) with a specialty in Laryngology at The Bastian Voice Institute. Dr. Richardson explains what spasmodic dysphonia is, how it’s diagnosed and treated, and different factors that may affect each person’s experience with the condition.

This episode features music from throughout Greta Morgan’s musical career. To hear more, visit https://www.gretamorganmusic.com/.

Additional Resources

The Lost Voice: A Memoir

Remaining Positive After a Spasmodic Dysphonia Diagnosis

Dysphonia International

Other Brain & Life Podcast Episodes on Similar Topics

Billy McLaughlin on Life as a Musician with Focal Dystonia

Rogers Hartmann on Beating Dystonia

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:

Guests: Greta Morgan @gretamorgan; Dr. Brent Richardson @bastianvoiceinstitute

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by disability advocate, content creator, and speaker with a focus on accessibility, equity, and innovation in spinal cord injury research Jessie Owen. Jessie is a quadriplegic mother of twins and shares some candid insights on life, parenting, and navigating systemic barriers with humor and authenticity with Dr. Peters. Dr. Peters is then joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein. Dr. Hsieh’s discusses outpatient care for people living with spinal cord injury and related disorders and shares some exciting upcoming treatment options.

Additional Resources

Jessie’s Story

What is Spinal Cord Injury?

A Spinal Cord Injury Survivor Opens an Affordable Rehab Center

Other Brain & Life Podcast Episodes on This Topic

“Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

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Social Media:

Guests: Jessie Owen @itswheelyjess; Dr. Shelly Hsieh @montefiorehealthsystem

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Emmy-nominated actress, writer, producer and host Yvette Nicole Brown. She shares about her experiences as a caregiver for her father who has Alzheimer’s disease. Yvette dives into the connection she found with her father throughout this journey and discusses why she started her podcast, Squeezed, about these experiences. Dr. Peters is then joined by Dr. Francesca Falzarano, assistant professor of gerontology at University of Southern California. Dr. Falzarano is a developmental psychologist whose research focuses on the intersection of technology and dementia care, with a particular emphasis on enhancing the mental health and well-being of family caregivers. In her conversation with Dr. Peters, she shares what she believes the future of caregiving should look like and how technology can help get it there.

Additional Resources

Squeezed with Yvette Nicole Brown

Falzarano Family Caregiving Lab

Expert Tips to Embrace Caregiving with Confidence and Overcome Self-Doubt

Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses

Other Brain & Life Podcast Episodes on This Topic

Finding Community in Caregiving with Kitty Norton

Resiliency and Caregiving with Janet Fanaki

Actors Oscar Nuñez and Ursula Whittaker on Caring for Loved Ones with Dementia

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:

Guests: Yvette Nicole Brown @yvettenicolebrown; Dr. Francesca Falzarano @ffcaregivinglab

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by sisters Johanna and Antonia Bennett. They reminisce on time spent with their father, legendary musician Tony Bennett, and discuss the experiences they had as a family before and during his journey with Alzheimer’s disease. Dr. Correa is then joined by Dr. Joel Salinas, a neurologist, clinical assistant professor at NYU Grossman School of Medicine, and chief medical officer of Isaac Health in New York. Dr. Salinas discusses how family members can care for their loved ones with humanity and respect and models ways that tough conversations can be started throughout all stages of symptoms.

Additional Resources

Do You Still Think of Me by Antonia Bennett

Tony Bennett Demonstrates the Power of Music Against Alzheimer’s Disease

Lynda Carter Advocates for Those with Alzheimer’s Disease

Other Brain & Life Podcast Episodes on This Topic

Journalist Greg O’Brien on Chronicling His Life with Alzheimer’s

Actors Oscar Nuñez and Ursula Whittaker on Caring for Loved Ones with Dementia

Lauren Miller Rogen on Facing a Parent’s Early-Onset Alzheimer’s Diagnosis

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Social Media:

Guests: Antonia Bennett @antoniabennett; Johanna Bennett @johannabennett; Dr. Joel Salinas @JoelSalinasMD

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

This week’s episode of Brain & Life Podcast was recorded live at the American Academy of Neurology’s annual meeting! Hosts Dr. Daniel Correa and Dr. Katy Peters were joined by Joel Salinas, MD, MBA, MSc, FAAN, Andrea Lendaris, MD, MS, Andrew M. Southerland, MD, FAAN, and Eric J. Seachrist, MD to share what it's like living and practicing neurology with their own neurological condition(s) and neurodiverse perspectives, and explore how their experiences serve as a window into the patient and community perspective.

Additional Resources

Neurology®Podcast

Switching Roles: A Neuro-oncologist Reflects on his Own Experience with a Brain Tumor

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Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this week’s episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters discuss some of their favorite articles in the most recent edition of Brain & Life Magazine. They discuss patients and caregivers becoming advocates, the importance of sleep for brain health, and a touching story about a wonderful sense of humor. If you would like to read these articles, be sure to subscribe to Brain & Life Magazine for free!

Brain & Life Articles Mentioned

Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses

Does Poor Sleep in Middle Age Speed Up Brain Aging?

Seven Tips for a Healthier Night’s Sleep

Funny Lady- the author honors her mother, who died of dementia, by recalling her wonderful sense of humor.

Other Brain & Life Podcast Episodes on These Topics

Finding Community in Caregiving with Kitty Norton

Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP

Recognizing Sleep Awareness Month with Dr. Joanna Fong-Isariyawongse

Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima

Leaving a Legacy of Love and Care with Mary Lou Falcone

Resiliency and Caregiving with Janet Fanaki

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:  

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by Lilibet Snellings Kyte. Lilibet is an author, speaker, runner and advocate for people living with multiple sclerosis like herself. Lilibet shares her experiences with getting a diagnosis, reassessing her future plans, and living in the moment. Dr. Correa is then joined by Dr. Riley Bove, an Associate Professor of Neurology at the University of California, San Francisco, neurologist in the UCSF Multiple Sclerosis Center, and previous guest on the Brain & Life Podcast! Dr. Bove discusses advancements in MS research, and family planning considerations for people living with MS.

Additional Resources

Lilibet Snellings Kyte

Updated Resource: Expert Insights and Practical Tips for Managing Multiple Sclerosis

How Couples Navigate Multiple Sclerosis

How Exercise Helps Those with Multiple Sclerosis

Other Brain & Life Podcast Episodes

Courtney Platt Dances Through Life with Multiple Sclerosis

Voices from the Multiple Sclerosis Community

Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard

Colors of Multiple Sclerosis with Artist Lindsey Holcomb

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:

Guests: Lilibet Snellings Kyte @leggingitwithlilibet; Dr. Riley Bove @ucfshealth

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Hide Harashima, dad, advocate, and founder and president of Love4Lucas Foundation. He discusses creating the Love4Lucas Foundation in honor of his son Lucas, who was diagnosed with diffuse intrinsic pontine glioma (DIPG). Dr. Peters is then joined by Dr. Paul Fisher, Professor of Neurology and Pediatrics, and by courtesy, Neurosurgery and Epidemiology and Population Health, Beirne Family Professor of Pediatric Neuro-Oncology, Dunlevie Family University Fellow in Undergraduate Education at Stanford University, and Editor-in-Chief of The Journal of Pediatrics. Dr. Fisher explains DIPG and other similar cancers, discusses treatment options, and what new research is being done today.

Additional Resources

Love4Lucas

Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses

Lawyer and Model Who Survived Brain Tumors Focuses on Giving Back

Other Brain & Life Podcast Episodes

Actor Craig Russell on Staying Positive during his Brain Tumor Diagnosis

Lawyer, Model Victoria Vesce Uses Her Platform for Brain Tumor Advocacy

BMX Athlete Josh Perry's Perseverance Living with Brain Tumors

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

·       Record a voicemail at 612-928-6206

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Social Media: Hide Harashima @love4lucasfoundation; Dr. Paul Fisher @stanfordchildrens

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by comedian and actress Kellye Howard, who shares about her Multiple Sclerosis (MS) diagnosis process and how she manages symptoms in her daily routine. Dr. Correa is then once again joined by Dr. Lilyana Amezcua, a neurologist and MS specialist based out of Los Angeles at USC and the Keck School of Medicine. Dr. Amezcua explains MS and discusses some of the disparities in care amongst different communities.

Additional Resources

Expert Insights and Practical Tips for Managing Multiple Sclerosis

MS-ing Around with Kellye Howard

How Multiple Sclerosis Affects Black People

How Exercise Helps Those with Multiple Sclerosis

Other Brain & Life Podcast Episodes

Voices from the Multiple Sclerosis Community

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

·       Record a voicemail at 612-928-6206

·       Email us at [email protected]

Social Media: Kellye Howard @kellyehoward; Dr. Lilyana Amezcua @keckschoolusc

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD