Daughterhood The Podcast: For Caregivers

Caregiving is inherently difficult, but navigating care for an estranged parent, or even one who challenges your boundaries, adds more layers of stress and emotional turmoil. Today my conversation is with two people who understand this. Laura Davis is an author of 6 books, including I thought we’d never speak again, the road from estrangement to reconciliation and her first memoir The Burning Light of Two Stars: A Mother-Daughter Story which tells the story of her traumatic and tumultuous relationship with her mother which includes her caring for her at the end of her life. Karen Anderson is a life coach and the author of Difficult Mothers, Adult Daughters: A Guide for Separation, Liberation and Inspiration. We discuss not only the challenges that accompany these relationships but how you can find peace in the midst of it. 

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Laura Davis

Karen C.L. Anderson

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Today my guest is Larisa Gilbert, Elder Law attorney at the Estate Planning & Elder Law Group of Duncan Galloway Greenwald in Louisville, KY Larisa has extensive professional and personal experience in elder law. Along with being a brilliant attorney, Larisa knows first hand the challenges caregivers face when it comes to not only planning for current or anticipated needs, but also protecting their care partners assets. Larisa and I discuss the importance of Properly-drafted and robust powers of attorney, protecting assets, end of life planning, and the importance of Trusted Helpers. 

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I spoke with C Grace Whiting, while she was serving as the president and CEO of the National Alliance for Caregiving. We spoke right after the infrastructure bill had been passed but the provisions that addressed caregiving and other social services had been removed. We had such an extensive conversation covering many issues and emotions that caregivers deal with including where caregivers can find support, the range of emotions and trauma we experience in our journey and even how Wonder Woman fits into caregiving.

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My conversation today is with Dr Katherine Shear, from Columbia's Center for Prolonged Grief. We talk about normalizing grief, the differences between grief and prolonged grief, and the challenges it creates for caregivers . Dr Shear also shares techniques the center uses to assist people in their grief, our psychological immune system and the importance of support.

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Rajiv Mehta is the CEO of Atlas of Caregiving, a non-profit, which envisions a world where caregiving is valued and is supported, as a fundamental to a healthy society. Rajiv and I discuss the Atlas Care Map which helps caregivers better understand their current situation, plan for potential difficulties, identify missing people and services and provide empowerment going forward.

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Questions and Answers with Dr Jessica Zitter regarding issues surrounding those last moments, days, weeks before death of someone you are caring for. We discuss morphine, hospice's role, the lack of support for caregivers and the shock and trauma of the events leading up to death.

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Jessica Zitter

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Howard Gleckman is a senior fellow at the Urban Institute, where he is affiliated with the Tax Policy Center and the retirement Policy Program. In 2016, Next Avenue named Howard, one of the nation's top 50 influencers in aging. Howard and I spoke about the policies surrounding the caregiving crisis, how we got here, and his hope for going forward.

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Howard Gleckman

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Caregivers have innumerable questions when it comes to dealing with challenging behaviors throughout the dementia journey. From everyday issues with eating and sleeping and wanting to go home, to changes in personality and communication. Today I speak with Judy Cornish, elder law attorney, home care provider, and founder of The Dawn Method, a strength based, person centered approach to dementia care. Judy shares not only her techniques on dealing with these behaviors but also why they develop and how we as caregivers can learn to embrace not what is lost, but what is left. 

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The Dawn Method

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Adult Day Centers are designed to provide care and companionship for older adults who need assistance or supervision during the day. Programs offer relief to family members and caregivers, allowing them to go to work, handle personal business, or just relax while knowing their relative is well cared for and safe. Patty Winstead Director of Community Relations from Saracare in Malvern Pa shares the importance of day services, how to access them and more. 

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P.K. Beville founded Second Wind Dreams®, the first organization to focus on granting dreams for elders living in long-term care in the United States. PK also created the internationally-acclaimed Virtual Dementia Tour® (VDT®). Experienced by three million people in 20 countries, the Virtual Dementia Tour® is a scientifically-proven training method designed to build sensitivity and awareness in individuals caring for those with dementia.

Secondwind.org

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