BloodStream

Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival


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Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session from the conference, and we preview a brand new podcast series featuring an incredible community story from Vanessa Flora.  Then, DISORDER: The Rare Disease Film Festival co-founder Daniel DeFabio joins Patrick to preview the 2019 festival and its films! All that, plus, safety updates from NHF & HFA, streaming recs from Mama Sue, and more on Episode 41 of The BloodStream Podcast.

Presenting Sponsor: 

Takeda:  http://bleedingdisorders.com

 

Segment Sponsor:

Genentech: https://www.youtube.com/challengeacceptedshow (Like Segment)

 

Safety News

Genentech Issues Statement on Hemlibra Particles; MASAC Responds (10/7)

NHF and HFA’s Joint Letter on Product Safety (10/1)

 

Interview Segment:

DISORDER: The Rare Disease Film Festival: https://www.rarediseasefilmfestival.com/

 

A Moment For Mental Health Segment:

Counseling

The Wingmen Foundation

www.wingmenfoundation.org

Better Help

www.betterhelp.com

 

Support Groups

National Alliance On Mental Illness

www.nami.org

Depression and Bipolar Support Alliance

www.dbsalliance.org

 

Mama Sue’s Streaming Recs:

Diet Fiction

For The Birds

Downton Abbey (the movie!)

 

Subscribe to and rate The BloodStream Podcast

Subscribe to and rate The Ask The Expert Podcast

 

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

 

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