In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis.

With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected.

Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy.

Key topics include:

Living with FSGS and the impact of early diagnosis

The emotional and physical toll of dialysis in early adulthood

The recurrence of FSGS post-transplant

Choosing nocturnal dialysis and the profound benefits for quality of life

Mental health, self-advocacy, and redefining what it means to live fully with CKD

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In this powerful and informative episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined once again by the insightful and compassionate Dr. Hannah, an experienced transplant surgeon. Building on their previous conversation, Dr. Hannah returns to share expert guidance and essential strategies for navigating the complex journey of kidney disease—from diagnosis to transplantation and life beyond.

This episode is a must-listen for anyone affected by kidney disease, offering a comprehensive look at renal replacement therapy. Dr. Hannah breaks down the key differences between dialysis and transplantation, and highlights the importance of preparation, planning, and patient empowerment. Listeners will gain valuable knowledge about preemptive transplantation, the benefits of living donor transplants, and critical considerations for those on the deceased donor list.

Dr. Hannah also delves into often-overlooked aspects of transplant readiness, including managing polycystic kidney disease, addressing central venous stenosis, surgical prerequisites, and maintaining a healthy weight. The discussion thoughtfully explores both the physical and mental preparation required for a successful transplant journey, as well as the unique considerations for women wishing to start or grow a family after transplantation.

With honesty, clarity, and encouragement, Dr. Hannah emphasises the power of being proactive and well-informed. She advocates for living fully, even while waiting for a transplant, and underscores the strength of the kidney community and the support it offers.

Whether you are newly diagnosed, currently on dialysis, awaiting a transplant, or supporting someone through their kidney journey, this episode is filled with practical insights and heartfelt advice to help you take control of your health and plan confidently for the future.

Listen now and be inspired to live boldly, plan wisely, and embrace hope.

Follow Diary of a Kidney Warrior:

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📘Facebook: www.facebook.com/diaryofakidneywarrior 

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🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Kidney Care UK

•           Website: www.kidneycarekuk.org

•           Email: [email protected]

•           Tel: 01420 541 424

•           Facebook: www.facebook.com/kidneycareuk.org

•           Instagram: @kidneycareuk

•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

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Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.