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Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother.
[3:00] Jamie shares about their family and hobbies
[4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes
[5:37] Callie was born 7 weeks early via c-section
[6:43] Learning of Callie's heart condition, Tetralogy of fallot
[8:30] The grief and anger to follow the initial diagnosis
[10:35] Feeling cheated of hopes and dreams she had
[11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration
[13:12] Callie had to be transferred to a different hospital for the surgery
[15:00] How their community rallied around supported their family
[17:18] Callie went between the NICU and PICU for close to 3 months
[20:40] The best Christmas gift- Callie got to come home for Christmas
[21:40] Noticing Callie's limb difference shortly after birth
[26:05] At 19 months old, Callie had her amputation surgery
[27:30] Decision making process
[30:08] How grief was a big part of Jamie's journey to healing
[32:00] Jamie shares how she took care of her self during this difficult time
[36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother
Connect with Jaime:Website
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.
4.9
140140 ratings
Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother.
[3:00] Jamie shares about their family and hobbies
[4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes
[5:37] Callie was born 7 weeks early via c-section
[6:43] Learning of Callie's heart condition, Tetralogy of fallot
[8:30] The grief and anger to follow the initial diagnosis
[10:35] Feeling cheated of hopes and dreams she had
[11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration
[13:12] Callie had to be transferred to a different hospital for the surgery
[15:00] How their community rallied around supported their family
[17:18] Callie went between the NICU and PICU for close to 3 months
[20:40] The best Christmas gift- Callie got to come home for Christmas
[21:40] Noticing Callie's limb difference shortly after birth
[26:05] At 19 months old, Callie had her amputation surgery
[27:30] Decision making process
[30:08] How grief was a big part of Jamie's journey to healing
[32:00] Jamie shares how she took care of her self during this difficult time
[36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother
Connect with Jaime:Website
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit.
When you download our starter kit, you’ll learn how to:
The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.
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