Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

Episode 196 | Hannah’s Story-A son with VACTREL Association


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In this episode, you will be able to:

  • Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences.

  • Uncover the challenges of medically complex pregnancies, and learn strategies for navigating this complex journey with support and resilience.

  • Explore the support systems available for medical motherhood, and find out how to build a network of understanding and empowerment.

  • Gain invaluable insights and practical tips for navigating the complexities of special needs parenting, empowering you to advocate for your child's unique needs.

  • Learn the art of accepting uncertainty in medical diagnoses, finding peace and strength in the face of the unknown.

Hannah Parsons is the guest on this week's episode of Child Life On Call. She shares her personal journey as a mother to a child with Vactrel Association. Hannah has a diverse background, starting out as an actor and comedian before transitioning into editing and stagecraft. Living in Los Angeles with her husband and two-year-old son, Obie, Hannah has faced numerous challenges and complexities throughout her son's medical journey. From navigating a unique pregnancy without insurance to experiencing the unexpected during childbirth, Hannah's story sheds light on the emotional rollercoaster of motherhood and medical motherhood. Her determination, resilience, and unwavering belief in her son's well-being are truly inspiring. Tune in to hear Hannah's incredible journey and gain insights into the realities of special needs parenting.

The key moments in this episode are: 00:00:00 - Introduction 00:02:05 - Pregnancy and Diagnosis 00:06:14 - Birth and Initial Diagnosis 00:10:24 - Navigating the NICU 00:13:48 - Transitioning to Home 00:17:45 - Challenging Medical Conditions 00:19:20 - Unwanted Medical Procedure 00:23:37 - Feeling Unsafe and Disappointed 00:25:02 - Acts of Kindness and Support 00:26:33 - The Impact of NICU Nurses 00:34:54 - Gratitude for a Healthy Child 00:35:45 - Need for Resources and Support 00:36:50 - Navigating Post-Hospital Care 00:37:59 - Importance of Resources and Podcasts 00:45:12 - Diagnosis and Acceptance

 

Connect with Hannah here. 

 

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Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & SupportBy Katie Taylor, CCLS

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