March 13, 2024

Episode 271 - Santiago Paulos, T1D, Visual Designer, Creator of The Diabetic Survivor

50 minutes

This episode is supported by Thrivable. Thrivable’s mission is to create a

better future together. They achieve this by making it easy for healthcare

companies to include the patient's voice in their decisions so they can

create transformative treatments and products for you.

And for listeners of Diabetics Doing Things, Thrivable has multiple

opportunities for you to earn money for sharing your story, your insights

and your lived experience for companies who produce and design products for

people with diabetes. You can participate in online surveys and earn up to

$75 per hour and join in-person studies to earn up to $800 per study.

To sign up, just go to thrivable.app/rob and create a profile. It only

takes a few minutes. Then, just wait for study invitations, participate in

a paid diabetes research study and get compensated for your time.

—————

In this episode of Diabetics Doing Things, Rob, Eritrea, and guest Santiago

Paulos share their experiences and stories about living with diabetes from

different perspectives. Santiago talks about his journey of being diagnosed

with diabetes, his work in the diabetes community, and his recent

experience of becoming a new dad. Their conversation delves into topics

like encountering the diabetes stigma, using humor to navigate diabetes

challenges, and balancing life as a new parent with diabetes. This episode

also includes the opening of the Mailbag! If you want to submit your

question, email [email protected].

Topics discussed:

1. Meeting Santiago and their initial interaction at a diabetes

conference in Abu Dhabi.

2. Santiago's diabetes diagnosis story and how he was diagnosed during a

road trip to Argentina.

3. Santiago's journey in creating the persona of The Diabetic Survivor

and his background in art and design.

4. Collaborations with organizations like T1International and creating

designs for diabetes awareness campaigns.

5. Exploring the intersection of art, design, and diabetes advocacy.

6. Addressing the diabetes stigma, challenges faced in public settings,

and the importance of communication in relationships.

7. Santiago's experience as a new dad with type 1 diabetes, the impact

of diabetes management on parenting, and finding a balance in

routine.

8. Using humor and the "diabetes card" to navigate diabetes-related

situations and advocating for self-care in relationships.

Key takeaways:

* Navigating the diabetes stigma: Santiago shared experiences of

encountering the diabetes stigma, particularly through jokes and

comments made in social settings, highlighting the importance of

addressing and standing up against such behavior.

* Balancing diabetes management with parenting: Santiago's journey as a

new dad with diabetes showcases the challenges and adjustments

required to manage diabetes effectively while caring for a newborn,

emphasizing the need for open communication and support.

* Using humor and communication: Humor can be a coping mechanism in

dealing with diabetes challenges, and effective communication, both

in personal relationships and professional settings, plays a

significant role in raising awareness and advocating for diabetes

rights.

* Awareness and cultural considerations: Being mindful of cultural

differences and digital literacy challenges can help in creating

inclusive content and messaging that resonates with diverse

audiences, fostering a more understanding and supportive environment

for people with diabetes.

00:00 Exciting Opportunities for People with Diabetes to Earn Money and

Inspiring Stories from International Guests on Diabetics Doing Things

Podcast

03:31 Unveiling a Multicultural Friendship and a Diabetic Survivor's

Journey

06:34 From Scooter Crash to Diabetic Survivor: A Unique Diagnosis Story

and Artistic Journey

16:34 Exploring the Intersection of Diabetes, Art, and Community through

Design and Advocacy

26:34 Navigating the Complexities of Working with Diabetes and Stigma in

the Industry

36:34 Navigating Age-Related Content Preferences in a Diverse Audience

37:13 Breaking the Stigma: Navigating Diabetes Conversations and Digital

Literacy

41:06 Navigating Parenthood and Diabetes: Santiago's Journey

45:57 Diabetic Dads' Secrets and Challenges: A Candid Conversation on

Balancing Parenthood and Diabetes

49:40 Inspiring Conversation with a Diabetes Dad

...more

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