In this episode of Diabetics Doing Things, Rob and Eritrea interview
Phyllis Kaplan, who has been living with type 1 diabetes for 50 years. They
talk about various aspects of Phyllis's journey with diabetes, including
her early diagnosis, managing diabetes in childhood, attending diabetes
camp, dealing with diabetes-related complications, and the impact of
technology on her diabetes management.
Topics discussed:
1. Introduction to Phyllis Kaplan and her 50-year journey with type 1
diabetes
2. Early memories of being diagnosed with diabetes at a young age
3. Childhood experiences of managing diabetes, including testing sugars
with rudimentary methods
4. Attending diabetes camp and the importance of the diabetes community
5. Transitioning to insulin pump therapy to gain flexibility in diabetes
management
6. Coping with diabetes-related complications, such as retinopathy
7. The psychological impact of living with diabetes and dealing with
guilt and self-blame
8. The importance of accepting the uncontrollable aspects of diabetes
and seeking support from healthcare providers
9. The relief and normalcy brought by modern diabetes technology, such
as hybrid closed-loop systems
10. Gratitude for waking up in range and the shift in perspective over
time
Key takeaways:
* Acceptance and Perspective: Phyllis emphasizes the importance of
accepting the uncontrollable aspects of living with diabetes and
shifting perspectives to avoid self-blame and guilt for complications
or high/low blood sugars.
* Community and Support: Being part of the diabetes community and
connecting with others who understand the challenges of diabetes can
provide comfort, understanding, and a sense of belonging.
* Adaptation to Technology: The advancement of technology in diabetes
management, such as insulin pumps and CGMs, can bring relief,
normalcy, and added flexibility to daily life.
* Growth and Resilience: Over time, individuals with diabetes learn to
navigate the challenges, adapt to new circumstances, and find ways to
thrive despite the ups and downs of living with a chronic condition.
* Gratitude and Reflection: Reflecting on the journey with diabetes,
celebrating milestones, and finding gratitude in waking up in range
can bring a sense of accomplishment and appreciation for progress
made.
References:
* Medtronic
* JDRF (Juvenile Diabetes Research Foundation)
00:00 Celebrating 50 Years with Type 1 Diabetes: A Journey with Phyllis
Kaplan
00:31 Celebrating 50 Years with Type 1 Diabetes: A Journey of Resilience
and Community
04:57 The Impact and Nostalgia of Diabetes Camp: A Journey of Empowerment
and Friendship
14:57 Evolution of Diabetes Management: From Manual Checks to Advanced
Automated Systems
19:37 Navigating Stigma and Building Connections Through Diabetes Advocacy
29:37 Navigating Diabetes Conversations and Reflecting on Milestones
31:40 Celebrating a Life with Diabetes: Reflections on Surviving and
Thriving
35:37 Empowering Advice for Living with Type 1 Diabetes for 50 Years
39:06 Navigating Complications and Control in Life with Diabetes
48:36 Finding Relief and Normalcy with Technology in Managing Diabetes: A
Personal Journey