RealTalk MS

Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney


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Living your best life with MS means learning to overcome the stigma of having a disability, successfully navigating social relationships, and learning how to ask for and accept help.

Joining me to share their perspectives and their experiences in overcoming some of these social obstacles are Denise Schnieders, who was diagnosed with MS just about a year ago, and Fox Rigney, who's been living with MS since 2012.

We're also applauding a forward-thinking caregiver leave benefit that's just been announced by EMD Serono.

We're sharing results of a study that show MS lesions dynamically change over time and explains why those changes aren't apparent on MRI scans. 

We'll tell you about an AI-powered drug repurposing platform that has identified a potential treatment for MS.

We'll also share an announcement from the CEO of Google's artificial intelligence company,  DeepMind, that we will see pharmaceutical drugs developed by artificial intelligence in clinical trials by the end of this year.

And we'll share the details of a Phase 2 clinical trial that you may qualify to participate in.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Overcoming the stigma of disability, navigating social situations, and how to ask for and receive help  :22

EMD Serono implements caregiver leave benefit (And we're applauding!)  1:04

Imaging study reveals that T-2 lesions expand and contract "invisibly"  3:16

Has an AI drug repurposing platform discovered a new treatment for MS?  6:22

We will see pharmaceutical drugs developed by artificial intelligence in clinical trials this year  8:06

Your opportunity to participate in MS resesarch  10:54

Denise Schnieders and Fox Rigney discuss overcoming the stigma of MS  14:04

Share this episode  32:46

Have you downloaded the free RealTalk MS app?  33:06

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

Dynamic Expansion and Contraction of Multiple Sclerosis T-2 Weighted Hyperintense Lesions Are Present Below the Threshold of Visual Perception https://www.ajnr.org/content/early/2025/01/16/ajnr.A8453

Contact Information for Obexelimab Phase 2 Clinical Trial Phone: (833) 269-4696 Email: [email protected]

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 389 Guests: Denise Schnieders and Fox Rigney

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RealTalk MSBy Jon Strum

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