Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

Episode 65 | Holly's Story - A son with Hereditary Spastic Paraparesis (HSP)


Listen Later

"I think this may be a parent's worst nightmare.”

 

Katie, Certified Child Life Specialist interviews Holly, mom to three children living in Northern California. Holly’s son, Austin, was typical until just after his 1st birthday, then started regressing in gross motor including balance and weak tone and eventually spasticity, which is their biggest concern to this day.

 

Holly has a sense of humor and outlook that will make you instantly feel connected to her and her family. She talks about the crazy amount of testing that Austin had to go through to find his diagnosis and she also shares stories of what NOT to say to parents who have kids with special needs. My favorite part of our conversation is when Holly talks about how she hates playgrounds but found a way to turn that passion into something for good, their foundation Walk With Austin. 

 

Follow Walk with Austin:

Instagram and Facebook

Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.

Child Life On Call | Instagram | Facebook | Twitter

...more
View all episodesView all episodes
Download on the App Store

Child Life On Call |  Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & SupportBy Katie Taylor, CCLS

  • 4.9
  • 4.9
  • 4.9
  • 4.9
  • 4.9

4.9

140 ratings


More shows like Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

View all
The Ben and Ashley I Almost Famous Podcast by iHeartPodcasts

The Ben and Ashley I Almost Famous Podcast

14,175 Listeners

The Nothing Is Wasted Podcast by That Sounds Fun Network

The Nothing Is Wasted Podcast

1,064 Listeners

Scrubbing In with Becca Tilley & Tanya Rad by iHeartPodcasts

Scrubbing In with Becca Tilley & Tanya Rad

8,879 Listeners

The Viall Files by Nick Viall

The Viall Files

25,522 Listeners

Couple Things with Shawn and Andrew by Shawn Johnson + Andrew East

Couple Things with Shawn and Andrew

39,799 Listeners

SmartLess by Jason Bateman, Sean Hayes, Will Arnett

SmartLess

58,091 Listeners

Good Inside with Dr. Becky by Dr. Becky Kennedy

Good Inside with Dr. Becky

4,508 Listeners

We Can Do Hard Things by Treat Media and Glennon Doyle

We Can Do Hard Things

41,491 Listeners

Child Life Wild Life by Jessica Lewin, CCLS

Child Life Wild Life

58 Listeners

Moms Talk Autism Podcast by Shannon Korza, Brittney Crabtree, Tash Dillmon, and Jean Mayer

Moms Talk Autism Podcast

359 Listeners

MedCrimes: a Medical True Crime Podcast by Kate Macy and Devon Rebecca

MedCrimes: a Medical True Crime Podcast

402 Listeners

ZOE Science & Nutrition by ZOE

ZOE Science & Nutrition

2,085 Listeners

All There Is with Anderson Cooper by CNN Podcasts

All There Is with Anderson Cooper

9,513 Listeners

Sold a Story by APM Reports

Sold a Story

7,538 Listeners

Not Gonna Lie with Kylie Kelce by Wave Originals

Not Gonna Lie with Kylie Kelce

10,207 Listeners