This week the Brain & Life podcast collaborates with CurePSP, an organization that works to raise awareness, build community, and find a cure for neurodegenerative conditions like progressive supranuclear palsy (PSP). Dr. Daniel Correa interviews Audrey Stafford, care partner for her husband Jeff Golub who passed away from complications of the condition PSP. Audrey shares her story as a partner navigating a PSP diagnosis and how it impacted her family. Then Dr. Correa welcomes back to the podcast Dr. Alexander Pantelyat, Director of Atypical Parkinsonism Center at Johns Hopkins Medicine. Also joining the discussion is Salin Geevarghese, son and care partner for his mother who lives with corticobasal degeneration (CBD). Dr. Pantelyat explains what PSP and CBD are and how these neurodegenerative conditions are related, and Salin offers his perspective as a family member of a loved one who is diagnosed with conditions like these and the role of CurePSP for his and other families.  

Additional Resources 

CurePSP 

ClinicalTrials.gov 

Brain & Life: Learn How Rare Movement Disorder Progressive Supranuclear Palsy is Diagnosed 

Other Brain & Life Podcast Episodes featuring CurePSP 

Brain & Life Podcast: Happening Now in Neurology: Brain Health, Disability Access, and Emerging Science