The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to discuss their experiences with hypermobility. Here's part two of the men's interview panel!

Full show notes available here.

Two episodes in one day? Why not?

We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "complex" ones like those of us with EDS, neurodivergence, and other co-morbidities. 

On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men.

In our first-ever panel interview, we talk with Brandon Bucceiri, Doug Kremer, and Bryan Jewell about their lived experiences with Ehlers-Danlos Syndrome. Our guests discuss how hEDS affects them, their diagnosis stories, and how they navigate the medical field as Zebras assigned male at birth.

Show notes are available here.

We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "complex" ones like those of us with EDS, neurodivergence, and other co-morbidities. 

Full show notes are available here.

In this week's episode, Shelli and Luna interview Megan Karanfil, a board certified Patient Advocate. They discuss what a patient advocate is, what resources an advocate can offer, and the role a patient advocate can play in helping patients navigate their healthcare.

Meet Jesenia - Creator of Neurospicy Networking

Filmed on location at the Omni Nashville on November 10, 2023

Contact LyricalShkspr at [email protected] and purchase her books here: Linktr.ee/lyricalshkspr

The Bendy Mommas are still on Spring Break and will return in two weeks with new episodes!

In this mini episode, The Bendy Mommas discuss why TikTok is important for building communities.

In the US, find your elected representatives:

https://www.usa.gov/elected-officials

Keep up with the US Government here:

https://www.c-span.org/

The Bendy Mommas discuss the news about neurodivergence from the year 2023.  Luna and Shelli’s 2023 wrap-up has all the news you missed pertinent to ADHD and ASD. If you have any questions or comments for future episodes please send us a message (voice, audio, or video) to [email protected]

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