By Dr. Linda Bluestein, MD
4.9
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The podcast currently has 122 episodes available.
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply move without pain, Wendy’s expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies.
Takeaways:
Physical Therapy Requires Customization: Traditional PT often doesn’t suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building.
Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability.
Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies.
Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain.
Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
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YOUR bendy body is our highest priority!
Learn about Wendy Wagner
Facebook: https://www.facebook.com/wendy4therapy
Website: https://www.wendy4therapy.com/
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YouTube: youtube.com/@bendybodiespodcast
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Blog: hypermobilitymd.com/blog
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut health. Whether you’re looking to ease GI symptoms, balance energy levels, or discover new dietary approaches for EDS, this episode offers valuable insights and hacks.
Takeaways:
Flexible Diets Work Best: There is no one-size-fits-all diet for EDS; flexible eating plans based on individual needs are more effective than rigid restrictions.
Fiber is Crucial for Gut Health: Fiber is essential for a healthy gut, and those with EDS often need to reintroduce it gradually to avoid GI symptoms.
Adaptability is Key in Nutrition: Lorna emphasizes adapting diets based on changing symptoms, seasons, and life circumstances, helping to better manage health outcomes.
Food as Nourishment, Not Restriction: Instead of focusing on restrictions, Lorna advises seeing food as a source of nourishment that supports healing and strength.
Track, Don’t Restrict: Keeping a food and symptom diary helps identify triggers without unnecessary restrictions, especially for those managing mast cell activation syndrome and dysautonomia.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Lorna Ryan
Instagram: https://www.instagram.com/lornaryanhealth
Diet and Nutrition Summit Information
Recordings Package ($30) – The Recordings Package ticket will become available after sale of the Virtual Ticket ends, those who purchase will receive access to the on-demand content from November 3. It does not include access to the live event or our event app Whova, and will be available for 8 weeks after the event airs.
Choose Your Price Access – After sale of the Recordings Package ticket ends, those who would like to access the on-demand content can purchase it on a “Choose Your Price” basis, where they are able to opt-out and access without a cost if they wish.
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Blog: hypermobilitymd.com/blog
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions.
Takeaways:
Differences Between hEDS and HSD: Dr. Francomano explains the nuanced distinctions between hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), noting that these categories may overlap more than previously thought and might benefit from unified diagnostic criteria in the future.
Genetic Testing Red Flags: While genetic testing can be useful, Dr. Francomano highlights specific “red flags” in family history or personal health that should prompt a referral to a geneticist for further investigation.
Current Limitations of Genetic Testing for hEDS: Unlike other types of EDS, hEDS currently has no identified genetic markers, meaning diagnosis relies on clinical criteria rather than genetic testing alone.
Emerging Biomarkers Show Promise: New studies, such as those exploring fibronectin and calocrine, suggest potential biomarkers for hEDS and HSD, which could transform diagnosis and treatment in the future.
Holistic Approach to Comorbidities: Dr. Francomano discusses how hEDS often presents with comorbidities like POTS and mast cell activation syndrome, recommending a comprehensive, multidisciplinary approach to manage these interconnected symptoms effectively.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. Clair Francomano
Her Book: https://amzn.to/4e3eSaF
Instagram: @dr.clairfrancomano
Youtube: @DoctorClair
Red Flags List: https://www.bendybodiespodcast.com/p/redflags/
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey.
Takeaways:
Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate.
Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system.
Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions.
Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction.
Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life.
Takeaways:
Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves.
Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions.
Surgery Is a Lasting Solution: Dr. Feigenbaum’s unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites.
Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually.
The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. Frank Feigenbaum:
Website: https://www.frankfeigenbaum.com
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
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Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world.
Takeaways:
Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury.
Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing.
Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances.
Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks.
Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Adji Cissoko:
Instagram: @adji_cissoko
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility.
Takeaways:
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Lara Heimann:
Instagram: @lara.heimann
Facebook: @lara.f.heimann
Youtube: @LYTMethod
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
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In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions.
Takeaways:
Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body’s natural healing processes.
Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery.
Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery.
PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues.
Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. John Pitts:
IG: @johnpittsmd & @centenoschultzclinic
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
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Blog: hypermobilitymd.com/blog
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In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance.
Takeaways:
Importance of Genetic Testing: Genetic testing can reveal rare types of Ehlers-Danlos Syndromes (EDS), even when hypermobile EDS is suspected.
Understanding Genetic Variants: Variants of uncertain significance can lead to confusion, making expert interpretation crucial for proper diagnosis.
Gene-Environment Interactions: Genetic variants do not work in isolation—gene-gene and gene-environment interactions play a significant role in how conditions manifest.
Complexity of Genetics in EDS: The absence of a genetic marker for hypermobile EDS highlights the need for continued research into the genetic basis of the condition.
Avoiding Direct-to-Consumer Pitfalls: Be cautious with direct-to-consumer genetic testing, as inaccurate results can cause unnecessary stress. Always consult a geneticist for interpretation.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Learn about Dr. Paldeep Atwal
Website: https://atwalclinic.com/
IG / X / FB : @atwalclinic
Youtube: https://www.youtube.com/channel/UCffZDBcvf-vFRsT7k9GppTQ
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
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In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility.
Takeaways:
Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies.
Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS.
Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment.
Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference.
Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain.
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: [email protected]
YOUR bendy body is our highest priority!
Keep up to date with the HypermobilityMD:
YouTube: youtube.com/@bendybodiespodcast
Twitter: twitter.com/BluesteinLinda
LinkedIn: linkedin.com/in/hypermobilitymd
Facebook: facebook.com/BendyBodiesPodcast
Blog: hypermobilitymd.com/blog
Part of the Human Content Podcast Network
Learn more about your ad choices. Visit megaphone.fm/adchoices
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