In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders) along with POTS (Postural orthostatic tachycardia syndrome) and MCAS (Mast cell activation syndrome), can trigger unexpected abdominal pain and digestive challenges. Along the way, they explore overlooked diagnoses like Eagle Syndrome, SIBO (Small Intestinal Bacterial Overgrowth), and MALS (Median Arcuate Ligament Syndrome), while also revealing hacks and strategies that empower patients to better understand and manage their symptoms. This is part one of a two-part deep dive into GI issues you won’t want to miss.

Takeaways

Note: If you found Dr. Chopra's comments about teeth intriguing, we will address listener feedback in Episode 159, coming soon.

Find the episode transcript here.

References:

AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review: https://pubmed.ncbi.nlm.nih.gov/40387691/

Want more Dr. Pradeep Chopra?

Find previous Bendy Bodies episodes with Dr. Chopra here: ⁠https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/⁠

Website: ⁠https://www.painri.com/⁠

Contact Dr. Chopra’s Office: ⁠⁠[email protected]

Want more Dr. Linda Bluestein, MD?

Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠

Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

⁠

Learn more about your ad choices. Visit megaphone.fm/adchoices

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss.

Takeaways:

Why Beighton scoring alone doesn’t cut it for diagnosing EDS

The truth about MTHFR variants and their link to EDS

The overlap between SVT, POTS, and when to worry

What to ask your doctor if you’re not sure they "get" dysautonomia

A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most

References:

The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein

https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com

hEDS Diagnostic Criteria Checklist

Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/

Hope for Hypermobility

Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307

Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd

Find the episode transcript here

Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/

Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/

Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/

https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/

LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/

LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/

Want more Dr. Linda Bluestein, MD?

Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠

Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever.

Takeaways

Why men and boys may be getting overlooked by the current EDS diagnostic model

The difference between dislocations and subluxations—and why that matters

A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know

The 2017 criteria: well-meaning, but are they dangerously outdated?

What every hypermobile patient should bring to their next surgery (yes, it’s a hack)

Want to follow along? Find the episode transcript here.

References:

Episode 70: https://youtu.be/BoRyQh12X2c

Episode 71: https://youtu.be/yDT3JTzfiJk

Episode 72: https://youtu.be/CYhnKkVjIxM

Episode 73: https://youtu.be/2OxtZGNswfo

Episode 77: https://youtu.be/d9A1aJB5GRo

Episode 151: https://youtu.be/ho0rRcjUobI

Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524

Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/

The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698

Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d

2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/

Want more Dr. Pradeep Chopra? 

Website: https://www.painri.com/

Contact Dr. Chopra’s Office: [email protected]

Want more Dr. Linda Bluestein, MD?

Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠

Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood motility problems to surprising treatment twists, this episode is full of revelations that might change the way you think about your gut. And yes, there’s even a how-to on better pooping.

Takeaways:

How slow motility and visceral hypersensitivity often masquerade as IBS.

The overlooked connection between hypermobility, dysautonomia, and GI dysfunction.

Why some patients are misdiagnosed for years—and how that’s finally changing.

A surprising but effective tip to improve your daily bathroom routine.

References:

Breath-Test for SIBO (small intestinal bacterial overgrowth): https://www.triosmartbreath.com/

Mark Pimentel, MD: https://www.cedars-sinai.org/provider/mark-pimentel-887112.html

Episode 127: https://www.youtube.com/watch?v=9ngUY9VPRcc

Want more Dr. Zachary Spiritos? 

Website: https://www.everbettermedicine.health

Instagram: https://www.instagram.com/drzacspiritos/

Facebook: https://www.facebook.com/zachary.spiritos/

Want more Dr. Linda Bluestein, MD?

Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠

Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms often dismissed or misdiagnosed. A must-listen for patients, clinicians, and anyone who's been told "everything looks normal."

Takeaways:

Hypermobile patients often experience voice, breathing, and swallowing issues—but go undiagnosed.

Imaging and scope studies often miss the root causes of symptoms in EDS patients.

Certain vocal exercises may actually harm people with fragile connective tissues.

Sniffing can break a dangerous airway cycle caused by inducible laryngeal obstruction.

An international team is working to create speech therapy protocols specifically for EDS.

Find the episode transcript here.

Want more Stacey Menton?
Website: http://staceymenton.com
Facebook: https://www.facebook.com/profile.php?id=100077671590313

Want more Dr. Linda Bluestein, MD?

Website:  ⁠https://www.hypermobilitymd.com/⁠.

YouTube: ⁠⁠youtube.com/@bendybodiespodcast⁠⁠ 

Instagram: ⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠ 

Facebook: ⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠ 

X: ⁠⁠https://twitter.com/BluesteinLinda⁠⁠ 

LinkedIn: ⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠ 

Newsletter: ⁠⁠https://hypermobilitymd.substack.com/⁠⁠

Shop my Amazon store ⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠https://www.bendybodiespodcast.com/⁠.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠https://algonot.com/coupon/bendbod/⁠

Learn more about Human Content at ⁠⁠http://www.human-content.com⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠[email protected]⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

Learn more about your ad choices. Visit megaphone.fm/adchoices

What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction?

In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they dive into groundbreaking research on neuroinflammation, autism, histamine, stress, and why brain fog may not be “all in your head”—but inflammation inside it.

From overlooked biomarkers to misunderstood triggers, this episode unpacks the science most doctors still don’t know… but patients desperately need

Takeaways:

What you didn’t know about the link between stress and mast cell activation in the brain.

A surprising breakdown of how mast cells could be fueling neuroinflammation and foggy thinking.

Why autism and MCAS might share more than we think—especially in early development.

The overlooked role of environmental stressors in triggering immune responses that affect cognition.

How one researcher’s journey into mast cells rewrote everything we thought we knew about inflammation.

Fine the episode transcript here.

Want more Dr. Theoharis Theoharides?

Website: https://www.drtheoharides.com/
Podcast Link: https://algonot.com/
Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html
LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735

Want more Dr. Pradeep Chopra?

Website: https://www.painri.com/

Reference Episodes:

Episode 70: https://youtu.be/BoRyQh12X2c
Episode 71: https://youtu.be/yDT3JTzfiJk
Episode 72: https://youtu.be/CYhnKkVjIxM
Episode 73: https://youtu.be/2OxtZGNswfo
Episode 77: https://youtu.be/d9A1aJB5GRo

Episode 139: https://youtu.be/u1pxvAzXh7M

Want more Dr. Linda Bluestein, MD?

Website:  https://www.hypermobilitymd.com/.

YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

X: ⁠https://twitter.com/BluesteinLinda⁠ 

LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

Learn more about Human Content at ⁠http://www.human-content.com⁠

Podcast Advertising/Business Inquiries: ⁠[email protected]⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

Learn more about your ad choices. Visit megaphone.fm/adchoices

You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches.

I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you’ll hear something in this episode that makes you feel seen.

Takeaways:

How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients.

What one family doctor learned when her toddler was flagged for autism... and EDS.

The truth about low-dose naltrexone—and why it’s not a quick fix.

Why a change in your diagnosis doesn’t change your reality.

A life-saving strategy for traveling to high altitudes with EDS or POTS.

Find the episode transcript here.

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

Connect with the HypermobilityMD: 

YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

X: ⁠https://twitter.com/BluesteinLinda⁠ 

LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠

Learn more about Human Content at http://www.human-content.com

Podcast Advertising/Business Inquiries: [email protected]

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

Learn more about your ad choices. Visit megaphone.fm/adchoices

What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII).

Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal.

This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic.

Takeaways:

Silicone can migrate to your brain, lymph nodes… even your spinal cord.

“Just anxiety”? One surgeon says no—and she has the pathology to prove it.

A capsule left behind might mean years of symptoms—and one more surgery.

When should breast implants be removed - even if there doesn't seem to be a problem

Find the episode transcript here.

Explant System Review Questionnaire

Want more Dr. Eva Nagy?

Facebook: https://www.facebook.com/profile.php?id=100067473308969

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

Connect with the HypermobilityMD: 

YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

X: ⁠https://twitter.com/BluesteinLinda⁠

LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd

Learn more about Human Content at http://www.human-content.com

Podcast Advertising/Business Inquiries: [email protected]

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

Learn more about your ad choices. Visit megaphone.fm/adchoices

What if the pain you’ve been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome).

Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care.

If you've ever been told "it's all in your head"—this episode proves it’s not. And it might be the roadmap you've been searching for.

Takeaways:

You might not feel hip pain at all—but your clitoris, rectum, or vulva will.

A cyst that’s left off your MRI report could be ruining your life.

That pain during intimacy? It could be nerve sprouting—and it's not your fault.

When physical therapy fails, it may not be the therapy’s fault.

He’s performed 1,300+ surgeries. Here’s how he decides if you really need one.

Reference Links:

Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk

Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM

https://www.gyncancer.org/

https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist

https://pubmed.ncbi.nlm.nih.gov/23875629/

https://pubmed.ncbi.nlm.nih.gov/23577645/

https://www.isswsh.org/

Want more Dr. Andrew Goldstein?

Instagram: https://www.instagram.com/the.cvvd/

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

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What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight.

Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people.

Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you’ve sensed something is deeply wrong in the exam room… you’re not imagining it.

Takeaways:

What if your provider is hurting just as much as you are—but for different reasons?

When care vanishes, both the patient and the doctor suffer.

The healthcare system wants faster visits. Dr. Montori wants a revolution.

Heroic care comes at a cost—and not just for the clinician.

You’re not imagining the harm. But you’re not powerless either.

Reference Links:

https://www.patientrevolution.org/

https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/

Want more Dr. Victor Montori?

Dr. Montori’s book: Bendy Bodies Amazon Booklist

Bluesky: @[email protected]

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

Connect with the HypermobilityMD: 

YouTube: youtube.com/@bendybodiespodcast 

Instagram: https://www.instagram.com/hypermobilitymd/ 

Facebook: https://www.facebook.com/BendyBodiesPodcast 

X: https://twitter.com/BluesteinLinda 

LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

Newsletter: https://hypermobilitymd.substack.com/

Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd

Learn more about Human Content at http://www.human-content.com

Podcast Advertising/Business Inquiries: [email protected]

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

Learn more about your ad choices. Visit megaphone.fm/adchoices