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In this episode, the Bendy Mommas discuss the 3rd and final criterion on the hEDS diagnostic checklist which includes 3 key points that exclude other diagnoses.
Show Notes Episode 1.05
Diagnosis of Hypermobility / Ehlers-Danlos Syndromes:
Criterion 2-3
Resources mentioned in this episode are listed and linked here.
Diagnosis of Hypermobility / Ehlers-Danlos Syndromes:
Criterion 1: The Beighton Score
Resources mentioned in this episode are listed and linked here:
https://www.hackinghypermobility.com/post/show-notes-episode-1-04
In this episode we discuss the barriers you may come across during your diagnostic journey and understanding the cause of your hypermobility disorder. Some of these barriers are more internal, while others are external to you, therefore making them even more difficult to address.
Part 1 - Luna and Shelli discuss the internal and external barriers
Parts 2 & 3 - Luna and Shelli share the accommodations and hacks they use to make sure they are practicing regular self-care.
In this episode we discuss preparing to see a doctor for an evaluation of hypermobility and the Ehlers-Danlos Syndromes in general.
Hop over to our blog to see the full list of resources, books, articles, and tools mentioned in this episode and to find your homework!
https://www.hackinghypermobility.com/post/show-notes-episode-1-02
Have you ever been told you were hypermobile, double jointed, or super bendy? Were you singled out for the cool party tricks you could do with your fingers, shoulders, and elbows?
Show Notes Episode 1.01
National Academies of Sciences, Engineering, and Medicine. 2022. Selected Heritable Disorders of Connective Tissue and Disability. Washington, DC: The National Academies Press. https://doi.org/10.17226/2643
https://nap.nationalacademies.org/catalog/26431/selected-heritable-disorders-of-connective-tissue-and-disability?fbclid=IwAR0sCmd8sZ22kWSOnK3Nz0gYEvBf5C_3AE91BlIcM5za8WInEsDOt0kG8AY
Our Meet Cute "spicy accountant" story Jan 31, 2022
https://www.tiktok.com/t/ZTRrYaf5k/?k=1
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