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Understanding CCCA & restoring hair after cancer treatment

Lorna Jones IAT has been a trichologist since 2018, with clinics in Central & South East London.

She has written two books on trichology & hair, supported by her experience and a degree in Biology!
She believes that to understand how you lose hair, you have to understand how it grows.
We discuss CCCA, what it is, how to recognise it and options to help treat this condition, as well as other scarring alopecias.
Lorna also shares how she has built up a community to support those experiencing hair loss due to cancer treatment, and her work with the NHS and various charities.

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'If only hair could talk'

'Way beyond the scalp: A trichologists guid to some common hair loss & scalp problems'

UK scarring alopecia support group

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Is scalp health important or just the latest trend?

Karley Weir is a trichologist in Buckinghamshire who has been in the hair industry for 25 years. She has worked in many different avenues of hair, including cruise ships, TV, working abroad, managing salons,  working in education and now she focuses on hair & scalp health.

As her career progressed, she wanted to understand more about the products she was using and their ingredients, and she began studying trichology ten years ago, when there were very few registered trichologists!

Karley shares her thoughts on the latest trends, and how this could influence salon business, as now 1 in 3 clients may have a concern around their scalp.

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The challenges of wearing wigs when you have sensory issues

Meg has autism & ADHD. She is a hairstylist and makes wigs in all colours.

She used to have long hair, but after shaving it off in 2018 to support a friend who was having chemotherapy treatment, she found she loved short!
It made her realise that having long hair had been very uncomfortable for her, and triggered her sensory issues. She loved the freedom of having short hair but being able to wear wigs and still enjoy long hair.

Meg creates amazing rainbow wigs, but also has an extensive knowledge of what makes a wig more comfortable for someone who may be on the spectrum and have sensory issues. She has done a lot of research & trial & error into what works and what doesn't.

We discuss the density, fittings, materials, including where the hair is sourced from, and how it is made.

Meg has a mission to make wig making more popular and normalised, as well as making the hair space more welcoming for neurodivergent stylists & clients.

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What are the options for Female Pattern Hair loss? 

Dr Mary Alice Mina, a board certified dermatologist from Atlanta, Georgia, shares her knowledge on what female pattern hair loss is, how oestrogen can play a role in this condition and what are the treatment options.

Dr Mina was very artistic at school, and loved to dance, but when she became injured her career took a different path, and she began to take an interest in dermatology & skincare.

She describes how analysing skin conditions can even help to identify other health issues early on.

We discuss different things that may be used to treat or help manage genetic hair loss.

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What is the scalp microbiome and why is it important?

Dr Andrea Echeverry is a microbiologist & immunologist who studies the impact of modern living conditions on the scalp microbiome.

She also offers SMP and specialises in camouflaging hair transplant scars. She works with transplant surgeons & dermatologists to promote the importance of the scalp microbiome.

We discuss what a microbiome is, and why do we need it!
We look at why microbes can be important, and how conditions like dandruff are a form of biofilm in dysbiosis, and how microbes can also be found inside the dermal papilla & hair follicles.

Dr Andrea also shares how hair transplants affect the natural microbiome, and what products mean when they advertise themselves as 'microbiome friendly'.

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Trichology association

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Integrating Eastern & Western medicine to support healthy hair & scalp

Dr Tom Ingegno is a licensed acupuncturist with 23 years experience of integrative medicine.

He offers an approach that extends beyond traditional treatments, incorporating East Asian medicine to help reduce stress and support overall health.

Tom shares how he works preventatively to help work towards a state of 'life enhancing' health, and how Chinese medicine can be used in the treatment of  alopecia and hair & scalp health.

We discuss how treatments often have unexpected benefits, and how looking after yourself can lead to a vibrant state of health.

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The cupping book

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Supporting hair growth through chemical burns, scarring alopecia and menopause.

Angela Fields is from Florida. She first experienced issues with her hair when she suffered from chemical burns, following the use of relaxer to straighten her hair.
She then began to experience thinning in perimenopause, and discovered that she had a deficiency in Vitamin D.
After these issues were resolved, she then developed a scarring condition, central centrifugal cicatricial alopecia, known as CCCA, and has had to undergo scalp injections and biopsies to help to identify and treat this .
Hair health at this point became extremely important to Angela, but, as she has an allergy to fragrances, she found that she was unable to use  96- 98% of haircare on the market that contains fragrance. She decided to make something for herself in her kitchen, but after being laid off from her job in the corporate world she was pushed to take the product range to market.

She now works to help & support those with hair health concerns, particularly leading up to the menopause, and has created a supportive community where she offers education and advice.

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 Virtual Course - Ageless Tresses: Navigating Hair Health Through Menopause And Beyond
 
Curl Quiz

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Dermatologist search

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She is losing it ~ A 20 year journey with alopecia

Natalie is 39, and has had alopecia for 20 years.
She has travelled a lot throughout her life, including Sydney & Singapore. She now lives in Amsterdam.
She loves sport and fitness, is a qualified yoga instructor & believes that movement is a  huge part of maintaining her health  & working on her mindset.
She likes to take time to self reflect and care for her mental health.

Natalie first saw a dermatologist in Australia at 19 years old, but didnt really get any help or solutions.
In January 2024 she experienced total hair loss for the first time, moving from alopecia areata to alopecia universalis. She describes this time as feeling almost like she was being 'rubbed out'.

Natalie shares her story, including steriod injections, wearing wigs, and navigating difficult conversations with friends and family.

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Alopecia UK

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That's a wrap for another season!
Thanks so much for listening, we'll be taking a sort break and will be back soon with plenty more guests and real life stories.

Please take the time to rate and follow the podcast, and, if you get time, leave a review.
This all helps the podcast to grow and become more visible to those who might need it.

Back soon for season eight!

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What happens when Frontal Fibrosing Alopecia goes undiagnosed

Lesley Rutter lives in Newcastle, around 10 years ago, at the age of 40, she began to notice severe hair shedding. The front of her hair began to be itchy, her hair follicles became raised & inflamed, and her hairline began to recede away.

She went to the doctor, and he told her it was just stress related,, and it would go away on its own.
She returned to various doctors over a period of six years, where she was repeatedly sent away and told that it was just because of stress.
She was left undiagnosed, not knowing where to turn or what she could do to treat her condition. She had bouts of severe shedding, including loss of eyebrows and lashes, which means her eyes are constantly itchy.

Eventually, a nurse noticed that her confidence was being severely affected, and that this was having an impact on her life, and encouraged her to advocate for herself and demand to be referred for treatment. This led to her being sent to a dermatologist, who finally diagnosed her with FFA. By this time, however, she had lost around two inches of her hairline, and was shocked to discover that this would not be reversible.

She now has a treatment plan, and has made connections with others, who can understand what she is going through, which she says has made a huge difference.

Brain aneurism UK

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