Have The Nerve: A Podcast About Disability

Send us Fan Mail

It's the beginning of a new school year for students in Australia. For the first episode of 2023 (coincidentally starting with Episode 23!), Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talk with Susan about how being curious to ask questions without judgement is THE key element for children with a disability entering primary school.

We also talk about self-esteem, masking disability and how there should be a greater emphasis on education system and parents working together to get the best possible outcome for children.

This is two part series, we will be following this up with an upcoming episode about high schoolers and disability.

Information in this episode
Kids Collaborative: https://kidscollaborative.com.au/

Disability Support Guide Amanda Lane-Brown: https://www.disabilitysupportguide.com.au/profile/amanda-lane-brown

University of Sydney Amanda Lane-Brown: https://www.researchgate.net/profile/Amanda-Lane-Brown

9 reasons now is the time to read these comic books about kids with disability: https://northcott.com.au/9-reasons-now-is-the-time-to-read-these-comic-books-about-kids-with-disability/

Continence Foundation of Australia - Toilet Tactics: https://www.continence.org.au/incontinence/who-it-affects/children/toilet-tactics

Australian Institute of Teaching and School Leadership Limited - Inclusive Education: https://www.aitsl.edu.au/research/spotlights/inclusive-education-teaching-students-with-disability

Raising Children - School support for children with disability: https://raisingchildren.net.au/disability/school-play-work/school/school-support-disability

Autism Spectrum Australia - Life Stages Primary School: https://www.autismspectrum.org.au/life-stages/primary-school

Credits
This episode has been written, produced and edited by Susan Wood with assistance by  Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

On the final episode of 2022, Emily Bray comes on to talk about confidence, meaning and purpose on the days when you really feel disabled. 

What does that mean? These are the times where something has happened and you have the very confrontational thought: "Holy crap. I'm actually disabled".

Where do you find the resilience to keep going when you have a body that requires you to think about added challenges? 

How do you feel confident going to the shops or going… anywhere with a running commentary in your head about what your plan b, c, d and e is if everything goes wrong?

Emily from SCIA's Resilience Programs and Susan talk about gaining and retaining confidence, meaning and purpose, especially when there are situations with unavoidable everyday anxieties, confronting those “Holy crap. I’m actually disabled” days, and finding your community.

Information in this episode
SCIA Resilience Programs: https://scia.org.au/resilience-programs/

Engage - Find meaning and purpose: https://scia.org.au/engage/

Wellness Action Recovery Plan (WRAP): https://scia.org.au/wrap/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by  Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

When you don't know what something is, how do you know what to ask for?

The most major reform for people with disabilities in Australia, but so fraught with tedious obstacles. This is the third episode where we have covered the NDIS because it is such a complicated beast.

How much do you actually know about NDIS Support Coordination?

Have you ever looked at your NDIS plan and felt lost? Confused?

Have you ever attempted to find legal aid to help you at an Administrative Appeals Tribunal?

In this episode Louise and Mel from our Community Services team and April from our Policy and Advocacy team talk about how NDIS support plans seem both too broad and too specific, how educating NDIS planners and Local Area Coordinators can really benefit participants, how all of these combined contribute to everyone getting NDIS burnout and the inaccuracies behind the phrase “NDIS blowout”.

Information in this episode
SCIA Support Coordination: https://scia.org.au/ndis-support-coordination/

SCIA Policy and Advocacy: https://scia.org.au/advocacy-policy/

NDIS Creating Your Plan - Typical Support Package: https://ourguidelines.ndis.gov.au/your-plan-menu/creating-your-plan

Administrative Appeals Tribunal - NDIS: https://www.aat.gov.au/steps-in-a-review/national-disability-insurance-scheme-ndis/assistance

Administrative Appeals Tribunal Act 1975 - Sect 42D remittal: http://classic.austlii.edu.au/au/legis/cth/consol_act/aata1975323/s42d.html

Assistive Technology Explained (NDIS): https://www.ndis.gov.au/participants/assistive-technology-explained

Ageing Disability and Home Care (ADHC) is part of the Department of Family and Community Services

Legal Aid NSW: https://www.legalaid.nsw.gov.au/

Legal assistance services (Australia wide): https://www.ag.gov.au/legal-system/legal-assistance-services

Mozo - National Disability Insurance Scheme added $52 billion to economy in 2020-21, research shows (article): https://mozo.com.au/family-finances/national-disability-insurance-scheme-added-52-billion-to-economy-in-2020-21-research-shows

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Vote right now for our podcast in this year’s Australian Podcast Awards Listeners’ Choice category!

Head to https://australianpodcastawards.com/vote and type in Have The Nerve. 

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

Send us Fan Mail

TW: This episode talks about domestic violence, sexual assault, coercive control and suicide. Listener discretion is advised.

If you need support you can call the National Domestic Family and Sexual Violence Counselling Service on 1800 RESPECT or visit https://www.1800respect.org.au/

In Australia, on average, one woman a week is murdered at the hands of a current, or former partner, and approximately 10 women a day are hospitalised for assault injuries perpetrated by spouse or domestic partner and evidence shows that women with disabilities in Australia are two times more likely to experience sexual violence and intimate partner violence.

Nicole Lee is a victim survivor of domestic, family and sexual violence and uses her first hand experience as a person with a disability to help advocate for others with a disability who are also victim survivors of abuse.

Susan and Nicole talk about her journey, the cycle of coercive control and how the systems set up for someone to escape violence isn't built for people with disabilties.

Support Resources
Reach out - Domestic Violence support: https://au.reachout.com/articles/domestic-violence-support

Lifeline Crisis Chat: https://www.lifeline.org.au/crisis-chat/

Australian Government Support Directory - respect.gov.au: https://www.respect.gov.au/services/

Staying Home Leaving Violence: https://www.facs.nsw.gov.au/domestic-violence/services-and-support/programs/staying-home-leaving-violence

Information in this episode
Nicole Lee: https://speakingout.com.au/speaker/nicole-lee/

Women with disability are being turned away by family violence services in Australia - SBS: https://www.sbs.com.au/news/article/women-with-disability-are-being-turned-away-by-family-violence-services-in-australia/bqjumdl3c

Women living with disability can face extra hurdles breaking free of abusers, survivor warns - ABC: https://www.abc.net.au/news/2021-08-23/domestic-violence-and-disability-challenges-to-getting-out/100359908

The Choice - Violence or Poverty: https://www.violenceorpoverty.com/

Rosie Batty: https://en.wikipedia.org/wiki/Rosie_Batty

Phil Cleary: sister's death led to drive for justice: https://www.thecourier.com.au/story/1695362/phil-cleary-sisters-death-led-to-drive-for-justice/

The Duluth Model Understanding the Power and Control Wheel: https://www.theduluthmodel.org/wheels/understanding-power-control-wheel/

So, what exactly is coercive control? - Laura Richards: https://www.laurarichards.co.uk/coercive-control/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

It is Spinal Cord Injury Awareness Week in Australia and this year we’re saying #IAmMoreThanMyDisability. 

Emily Bray is a wife, mother, social worker, researcher and PhD candidate. 

We talk about the language of disability and subconscious bias. What happens if you don’t want to be an athlete? Well… nothing, you just live a regular life. But why does it seem to hard for the broader community to grasp?

We cover so many things: awareness days, disability only events, being congratulated for just living and existing, the difficulty of finding friends, the difficulty in finding work, so many things when people don’t look beyond and consider the person first.

Credits
This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

For this episode of Have the Nerve, Susan talks to Dr Camila Quel de Oliveira, Lecturer in Physiotherapy at UTS, and NeuroMoves Physiotherapist Hannah Maslen about the most amazing part of the human body – the brain.

From in the womb to end of life, we talk about neuroplasticity and the information super highway that is the spinal cord. How does this relate for people with spinal cord injuries? Camila and Hannah will tell you all about it.

Information in this episode
NeuroMoves exercise service (Australia wide): https://scia.org.au/neuromoves-exercise/

Dr Camila Quel de Olivera - Lecturer in Physiotherapy at University of Technology Sydney (UTS): https://profiles.uts.edu.au/Camila.QuelDeOliveira

The eWalk Trial - Neuroscience Research Australia (NeuRA): https://www.neura.edu.au/the-ewalk-trial-transcutaneous-spinal-cord-stimulation-to-improve-walking-in-people-with-incomplete-spinal-cord-injury/

Project Spark - SCIA: https://scia.org.au/2022/02/07/project-spark-for-an-australia-wide-revolution-in-sci-treatment/

Project Spark - SpinalCure: https://www.spinalcure.org.au/campaigns/projectspark/

Professor V. Reggie Edgerton - Neurobiology, University of California, Los Angeles (UCLA): https://bioscience.ucla.edu/people/v-reggie-edgerton/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

In this episode Susan speaks to Western Australia Greens Senator, Jordon Steele-John.

We talk about his first day working at Parliament House as a person with a disability, the importance of disability representation in politics and diversity and how including people with disabilities in legislation goes well beyond topics such as the NDIS and Disability Support Pension.

Information in this episode

Jordon Steele-John: https://www.aph.gov.au/Senators_and_M...

https://greens.org.au/wa/person/jordo...

Australian Greens: https://greens.org.au/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

Listeners are advised that the following podcast does discuss situations around grief and trauma that can be triggering to people.

On this episode I talk about the complexities of grief and trauma with clinical psychologist, Skye Dong.

Skye helped develop SCIA’s Engage Program as part of our broader Resilience Programs. We're going to talk about the different ways people manifest pain and trauma, and why the way we deal with trauma and pain in terms of disability is a lot more than the disability itself.

Information about what we've discussed in the episode:

Skye Dong, Clinical Psychologist: http://www.skyedong.com/

Australian Clinical Psychology Association: https://acpa.org.au/find-a-clinical-psychologist/

Blue Knot Foundation: https://blueknot.org.au/

Mental Health Treatment plan (Australia only): https://www.healthdirect.gov.au/mental-health-treatment-plan

SCIA Resilience Programs - Engage: https://scia.org.au/engage/
  
SCIA Peer and Family Support Team: https://scia.org.au/peer-support-team/

Trauma and Recovery - Judith Herman: https://www.goodreads.com/book/show/542700.Trauma_and_Recovery

Paul Gilbert, Evolutionary Psychologist: https://en.wikipedia.org/wiki/Paul_Gilbert_(psychologist)

Dr Dan Siegel, UCLA Clinical Professor of Psychiatry: https://drdansiegel.com/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Effie Manetakis. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

Finding work and having a disability is hard.

No like, it's really hard.

In this episode, Susan talks to Phat Ngo, Employment Service Manager for SCIA's EmployAbility Service and Dominika Jachym, EmployAbility's Employment Coach about the obvious misconceptions of disability and employment, how that feeds into the hesitation a lot of employers have when hiring someone with a disability, how employers can better themselves to be a more inclusive workplace, help people with disabilities climb the career ladder and how COVID has forced people to start looking at what employment means in a different light.

Information about what we've discussed in the episode:

EmployAbility: https://employability.org.au/

Disability Gateway: https://www.disabilitygateway.gov.au/

Job Access - Driving Disability Employment: https://www.jobaccess.gov.au/home

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Michelle Kearney. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.