Have The Nerve: A Podcast About Disability

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Maybe some of you may not have thought this was possible. Maybe some of you didn't know that this could and should be something to consider.

We're not talking about miraculously standing up and walking around, Physiotherapist Colbey Van Leeuwen and Exercise Physiologist Alicia Payne talk about the importance of standing in therapy, particularly for people who have had traumatic spinal cord injuries, the technology and what the research says.

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Colbey Van Leeuwen, Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

Information about what we've discussed in the episode (There are a LOT of citations. Strap yourselves in):

NeuroMoves Exercise Service: https://scia.org.au/neuromoves-exercise/

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Kwok, S., Harvey, L., Glinsky, J., Bowden, J.L., Coggrave, M. & Tussler, D. 2015. Does regular standing improve bowel function in people with spinal cord injury? A randomised crossover trial. Spinal Cord, 53(1), 36-41. 

Walter, J., Sola, P.,
Sacks, J., Lucero, Y., Langbein, E. & Weaver, F. 1999. Indications for a
home standing program for individuals with spinal cord injury. J Spinal Cord
Med, 22(3), 152-158.       

Goemare, S. &
Laere, M.Van. 1994. Bone mineral status in paraplegic patients who do or do not
perform standing. Osteoporosis Int., 4, 138-143. 
    
Alekna, V.,
Tamulaitiene, M., Sinevicius, T. & Juocevicius, A. 2008. Effect of
weight-bearing activities on bone mineral density in spinal cord injured
patients during the period of the first two years. Spinal Cord., 46(11), 727-732. 
      
Bohannon, R. 1993.
Tilt table standing for reducing spasticity after spinal cord injury. Arch Phys
Med Rehabil, 74, 1121-1122. 

Shields, R.K. &
Dudley-Javoroski, S. 2005. Monitoring standing wheelchair use after spinal cord
injury: a case report. Disabil Rehabil, 27(3), 142-146. 

Pollock, A., Gray, C.,
Culham, E., Durward, B.R. and Langhorne, P., 2012. Interventions for improving
sit-to-stand ability following stroke. status and date: Edited (no change to
conclusions), published in, (9). 

Veerbeek, J.M., van
Wegen, E., van Peppen, R., van der Wees, P.J., Hendriks, E., Rietberg, M. and
Kwakkel, G., 2014. What is the evidence for physical therapy poststroke? A
systematic review and meta-analysis. PloS one, 9(2), p.e87987. 

Stanton, R., Ada, L.,
Dean, C.M. and Preston, E., 2011. Biofeedback improves activities of the lower
limb after stroke: a systematic review. Journal of physiotherapy, 57(3),
pp.145-155 

Singer, B., Dunne, J.,
Singer, K., Jegasothy, G. & Allison, G. 2004. Non-surgical management of
ankle contracture following acquired brain injury. Disabil Rehabil, 26(6),
335-345. 

Richardson, D. 1991.
The use of the tilt-table to effect passive tendo-achilles stretch in a patient
with head injury. Physiother Theory Pract, 7, 45-50. 

Nelson, D. &
Sch

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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That irresistible urge, the attraction, the anticipation and excitement for the slightest touch. Rachel calls it skin hunger.

Rachel Wotton is a Sex Worker living in Inner Sydney, Churchill Fellow and PhD candidate at Western Sydney University. Her PhD is about exploring the experiences of people with disabilities accessing sex workers in Australia.

Susan and Rachel talk about the misconceptions of two marginalised communities, the legacy of her 2011 documentary Scarlet Road, how her work has helped many people with disabilities to find independence and confidence and how she helped get sex work on the NDIS.

We want to make a follow up episode with Rachel with questions by you!
Ask anything here: https://bit.ly/HaveTheNerveRachelWotton. You will remain anonymous.

Information about what we've discussed in the episode:

Rachel Wotton: https://www.rachelwotton.com/

Participate in her survey and read more about Rachel's research: http://www.pasa-research.com.au/

Scarlet Road documentary: https://www.scarletroad.com.au/about/

Winston Churchill Trust Fellow, 2016: https://www.churchilltrust.com.au/fellow/rachel-wotton-nsw-2016/

Touching Base: https://www.touchingbase.org/

NDIS funds used to pay for sex workers, court rules (Guardian article, 2020): https://www.theguardian.com/australia-news/2020/may/12/ndis-funds-pay-sex-workers-court-rules

NDIS and Sex Work (Touching Base): https://www.touchingbase.org/ndis-and-sex-work/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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Eligibility within the NDIS is a little bit of grey area.

Although under the NDIS Act 2013 there are no specific diagnosis or disabilities listed, actually accessing the NDIS can be fraught with problems.

For the first full episode of Have the Nerve in 2022, Susan talks to SCIA's Senior Support Coordinator Louise Hilton and SCIA's Policy and Advocacy Officer Megan Bingham about about how the selective process of funding has larger systemic consequences and where a gap in disability education has left people behind.

Information about what we have discussed in this episode:

The NDIS Act: https://www.ndis.gov.au/about-us/governance/legislation

National Disability Insurance Scheme Act 2013 - Federal Register of Legislation: https://www.legislation.gov.au/Details/C2013A00020

Access to the NDIS - The Disability Requirements: https://www.ndis.gov.au/about-us/operational-guidelines/access-ndis-operational-guideline/access-ndis-disability-requirements

SCIA NDIS Support Coordination and Plan Management (Australia wide): https://scia.org.au/ndis/

SCIA Individual, Family and Systemic Advocacy (New South Wales only): https://scia.org.au/advocacy-policy/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Have the Nerve: A Podcast about Disability is back for 2022!

Join Susan Wood and she delves further into the great realm of disability.

Subscribe to us, give us a five star rating on your streaming platform and don't forget to tell everyone you know to listen!

Funded by Australian Government Department of Social Services. For more information visit https://www.dss.gov.au/. 

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.

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Now that Summer is upon us in the Southern Hemisphere, Mike Cerrone, Project Officer for Waverley Council's Access Bondi! talks to Susan about why it's important for tourist destinations to be accessible for all people of all abilities.

Bondi Beach is a popular tourist destination on the east coast of Australia that brings in millions of visitors every year. We talk about how decent and suitable access can change society's perceptions on inclusion, give people freedom of choice when they go out and how your input can help encourage local councils to make accessibility a priority.

Information about what we have discussed in this episode:

Access Bondi! - https://www.waverley.nsw.gov.au/community/disability_inclusion/access_bondi

Bondi Beach - https://www.sydney.com/destinations/sydney/sydney-east/bondi/beach-lifestyle

NRMA x SCIA November 2021 joint report 'Where Do I Park?' - https://www.mynrma.com.au/-/media/nrma-where-do-i-park-report.pdf

Waverley Council Access & inclusion planning   https://www.waverley.nsw.gov.au/community/disability_inclusion/access_and_inclusion_planning

Waverley Council Access Committee  https://www.waverley.nsw.gov.au/council/advisory_committees/access_committee

Waverley Council Small Grants - https://www.waverley.nsw.gov.au/community/awards_forums_and_grants/small_grants_program

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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Candice Care-Unger and Arlyn Owens from Royal Rehab's Sexuality Service in Sydney talks to Susan about how sexual self-esteem and empowering sexual confidence in people with disability is more than the literal mechanics of sex.

Whether you've had your disability long term, or recently, Candice and Arlyn talk about psychosexual intervention, the holistic approach to sexual wellbeing and how the media's ableist portrayal of sex has skewed society's expectation of dating someone with a disability.

Information about what we have discussed in this episode:

Royal Rehab Sexuality Service: https://royalrehab.com.au/sexuality-service/ (In person and via Telehealth all over Australia)

Royal Rehab's Sexuality Service is a paid service that can be funded by the National Disability Insurance Scheme (NDIS)

Relationships and Sexuality Counselling: https://royalrehab.com.au/relationship-and-sexuality-counselling/

Sexuality Clinic Sydney:https://royalrehab.com.au/sexuality-clinic/

Sexuality Retreats: https://royalrehab.com.au/sexuality-retreats/

For health professionals working in neuro disability, rehabilitation and chronic health conditions: https://royalrehab.com.au/sexuality-training-and-education-for-clinicians/

Sexuality and Fertility: https://scia.org.au/health-and-wellbeing/sexuality-and-fertility/

Credits
This episode has been written, produced and edited by Susan Wood with assistance by Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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We’re celebrating the diversity of disability and highlighting spinal cord injury awareness for the entire month of September.  

In this bonus episode of Have The Nerve, former Australian Steeler and Paralympic Wheelchair Rugby Gold medalist, Naz Erdem joins me to talk about his life as a Paralympian across five Paralympic games, his post Paralympic career and his hopes for the future of disability and sports.

Information about what we have discussed in this episode:

Paralympics Australia: https://www.paralympic.org.au/
Disability Sports Australia: https://www.sports.org.au/sports
Australian Steelers - Wheelchair Rugby: http://www.wheelchairrugby.com.au/australian-steelers
BSF Asia: https://bsfasia.org/

Credits
This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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Have The Nerve is celebrating the diversity of disability and the importance of disability representation for the month of September.

In this episode, Louise Sauvage (Former wheelchair racer, Australian Paralympic Wheelchair Racing Gold Medalist and now the coach for up-and-coming wheelchair para-athletes and Australian Paralympic gold medalist Madison de Rozario), talks about growing up in Perth, her career as a Paralympian and the importance of universal accessible design and disability representation.

Information about what we have discussed in this episode:

Paralympics Australia: https://www.paralympic.org.au/
Louise Sauvage - Paralympics Australia: https://www.paralympic.org.au/louise-sauvage-oam/
Madison de Rozario - Paralympics Australia: https://www.paralympic.org.au/athlete/madison-de-rozario/
Disability Sports Australia: https://www.sports.org.au/sports

Credits
This episode has been written, produced and edited by Susan Wood with assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

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When you think about first milestones in your life what do you think about?
First day of school?
First kiss?
First boyfriend or girlfriend?

....What about the first time you realised your injury is permanent? Or the first time you fell out of your wheelchair?

It's not often we get to talk about what it's like to experience, or sometimes re-experience, things for the first time following a spinal cord injury.

Chloe and Jacob talk with Susan talk about the confronting realisation of acquiring a spinal cord injury and the path of first time experiences that have shaped the way they see their disability now.

Information about what we have discussed in this episode:

Living with Paralysis - https://scia.org.au/living-with-paralysis/
Continence Care - https://scia.org.au/continence-care/
Sexuality and Fertility - https://scia.org.au/health-and-wellbeing/sexuality-and-fertility/
Accessibility - https://scia.org.au/accessibility/

Credits
This episode has been written, produced and edited by Susan Wood with assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.

Send us Fan Mail

Navigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability?

For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding.

You'll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustained a spinal cord injury in 2019 at the age of 70. They discuss and compare their experiences alongside Megan, who is a systemic advocate from SCIA's Policy and Advocacy team.

All personal opinions expressed in this episode are their own and are not a reflection of SCIA.

Information about what we have discussed in this episode:

National Disability Insurance Scheme: https://www.ndis.gov.au/

My Aged Care, Transitional Care and Home Care Packages: https://www.myagedcare.gov.au/

Legislative and Regulatory Framework - United Nations Convention on the Rights of Persons with Disabilties: https://www.alrc.gov.au/publication/equality-capacity-and-disability-in-commonwealth-laws-ip-44/equality-capacity-and-disability-in-commonwealth-laws/legislative-and-regulatory-framework/

2021-2022 NSW Intergenerational Report: https://www.treasury.nsw.gov.au/nsw-economy/2021-22-nsw-intergenerational-report

Comparing aged care and NDIS support: A funding analysis (downloadable PDF):  https://lasa.asn.au/wp-content/uploads/2021/04/LASA0873_Comp-Aged-Care-and-NDIS-Support_public.pdf

NDIS and aged care - LASA calls for better model of care for older Australians: https://lasa.asn.au/news/ndis-vs-agedcare/

SCIA Policy and Advocacy - Policy Work, Submissions and Alliances: https://scia.org.au/policy-work-submissions-and-alliances/

Assistive technology for All Campaign: https://assistivetechforall.org.au/

Credits
This episode has been written, produced and edited by Susan Wood with writing assistance from Megan Bingham and production assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit scia.org.au.

We want to hear from you!

Whether you're a person with a disability, or an able-bodied ally, fill in our very quick survey and tell us what you thought about this episode!

Spinal Cord Injuries Australia is part of the Royal Rehab Group, and is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://scia.org.au/resource-hub/.