Engaging patients differs depending on the role. Those on national Boards lead, strategize, advocate, communicate. Adam Thompson is on the Board of NQF. Listen in.
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Episode Notes
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Contents with Time-Stamped Headings
to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)
Proem.. 1
Introducing Adam Thompson 02:38. 1
Patient-caregiver advocates on national Boards of Directors 04:21. 2
Activist, Advocate, Conduit, Leader 06:15. 3
The Ryan White HIV/AIDS Program 09:42. 4
Pulling the curtain back. Feeling our oats. 13:52. 4
The right place to make a difference and re-charge 18:26. 5
Learn, coach, mentor 20:43. 6
Listen, reveal, shout 25:50. 7
Levers of power. Drunk the Kool-Aid. Now what? 30:56. 8
Transparency. The sausage gets made. 34:17. 9
More on conduits 39:39. 10
Engage, dissemination, act 41:02. 10
Is seeking public comment enough? 42:54. 11
Reflection 45:00 11
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Credits
Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger
Web and Social Media Coach Kayla Nelson @lifeoflesion
The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute® (PCORI®), its Board of Governors or Methodology Committee.
Sponsored by Abridge
Inspired by and grateful to Nikki Montgomery, Matthew Pickering, Jan Oldenburg, Danny Sands, Matt Hudson, Dana Gelb Safron, Nakela Cook, Christine Goertz, Kristin Carman, Luc Pelletier, Jan Oldenburg, Sharon Levine, Kara Ayers
Links
Adam Thompson, LinkedIn
National Quality Forum (NQF)
PCORI (Patient-Centered Outcomes Research Institute)
Dr. David Nash
Ryan White program
Dolores Dockrey
Dr. W Edwards Deming called it profound knowledge.
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About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.
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The Show
Proem
As a nurse, I studied individual health. Then I became a student of organizational health. That led me to management and leadership - all with the mind to get stuff done. Done for people, with people, by people -patients, caregivers, and direct care clinicians. My role changed at each step.
