Neuroshambles

How autistic is your child? | Kieran Rose


Listen Later

What do we mean when we describe someone as “severely autistic”? Why is it so hard to explain what being autistic actually means? And how useful (or harmful) are terms like high-functioning, low-functioning, profound autism, or even Asperger’s?

Kieran Rose returns for a deep dive into the language we use to describe autism - and why it often does more harm than good. He and Mark explore the flaws in functioning labels, the dangers of ranking autistic traits, and how trying to quantify someone’s autism usually misses the point.

In a wide-ranging and compassionate chat, Mark and Kieran explore how complex, deeply personal and often contradictory this topic is - both for parents and for autistic people themselves. What starts as a provocative question ends up as a fascinating conversation about diagnosis, co-occurring conditions, identity, education, eugenics, power, and prejudice.

A powerful, enlightening and empowering episode - a must-listen for anyone parenting autistic kids who’s ever felt under pressure to explain, justify or minimise their child’s neurodivergence.

 

📍 CHAPTER TIMESTAMPS (Estimated):

00:00 - Intro: Meet Kieran Rose

04:30 - Life in a Fully Neurodivergent Household

08:00 - Topic of the Week: How Autistic Is Your Child?

12:00 - Labels, Bias, and the Stigma Around Autism

18:00 - High vs Low Functioning: Where It Comes From

23:00 - What Even Is Autism?

28:30 - The Flawed Legacy of Asperger’s

35:00 - Identity vs Diagnosis

42:00 - DSM-5 Levels of Autism: Why They Don’t Work

49:00 - Profound Autism and The New York Times Article

55:00 - A Counterpoint: The Voices We Don’t Hear

1:00:00 - Co-occurring Conditions and the Real Source of Needs

1:07:00 - Clinical Labels vs Lived Experience

1:14:00 - Mark’s Imposter Syndrome as an Autism Parent

1:18:00 - What’s the Alternative?

1:23:00 - Final Thoughts: Humanising, Not Diagnosing

1:27:00 - Neurodiversity Champions

1:33:00 - Tiny Epic Wins

1:39:00 - “What the Flip?” Moments

1:43:00 - Wrap-up & Where to Find Us

🔗 LINKS TO STUFF WE MENTION IN THIS EPISODE:

Kieran Rose website - https://theautisticadvocate.com/

Eugenics - https://www.newscientist.com/definition/eugenics/

Asperger Syndrome - https://www.autism.org.uk/advice-and-guidance/what-is-autism/the-history-of-autism/asperger-syndrome

Hans Asperger - https://en.wikipedia.org/wiki/Hans_Asperger

Lorna Wing - https://www.autism.org.uk/what-we-do/news/lorna-wing-an-autism-hero

DSM-5 - https://en.wikipedia.org/wiki/DSM-5

PDF Download of DSM-5 - https://ia800707.us.archive.org/15/items/info_munsha_DSM5/DSM-5.pdf

New York Times article: The Autism Spectrum Is Too Broad - https://www.nytimes.com/2025/10/16/opinion/autism-diagnosis-category-stigma.html

Greta Thunberg - https://www.bbc.co.uk/news/world-europe-49918719

What is monotropism? - https://www.autism.org.uk/advice-and-guidance/professional-practice/what-is-monotropism

Ehlers Danlos Syndromes - https://www.nhs.uk/conditions/ehlers-danlos-syndromes/

Communication First - https://communicationfirst.org/

Autism Central - https://www.autismcentral.org.uk/

Kieran Rose Animated Guide to Monotropism - https://youtu.be/qUFDAevkd3E?si=diwlbe4AHRcxfjQF

Kieran Rose Animated Guide to The Double Empathy Problem - https://youtu.be/qpXwYD9bGyU?si=7bnGR2UsrCgLa_hL

 

KIERAN'S HOMEWORK

Kieran Rose Blog: Autism, it’s Labels and the Language of Pathologising Rhetoric - https://theautisticadvocate.com/autism-its-labels-and-the-language-of-pathologising-rhetoric/

Sunday Times article: Extra time in exams ‘unhealthy’ for children with ADHD and autism - https://www.thetimes.com/uk/education/article/extra-time-exams-unhealthy-children-adhd-autism-k820s56zh

TES magazine article: Sami Timimi: Why ‘invented’ SEND labels are disabling pupils - https://www.tes.com/magazine/teaching-learning/general/sami-timimi-interview-problems-with-send-diagnosis-adhd-autism

Yahoo News: Badenoch says motability cars not for people with ADHD - https://uk.news.yahoo.com/badenoch-motability-cars-not-people-135341300.html?guccounter=1

📣 CONTACT US

🌐 Website: www.neuroshambles.com

📧 Email: [email protected]

📸 Instagram: @neuroshambles

🎵 TikTok: @neuroshamblespod

📘 Facebook: Neuroshambles

🧵 Threads: @neuroshambles

🎙️ CREDITS

🎶 Theme music by Skilsel on Pixabay: pixabay.com

...more
View all episodesView all episodes
Download on the App Store

NeuroshamblesBy Mark Allen

  • 5
  • 5
  • 5
  • 5
  • 5

5

3 ratings


More shows like Neuroshambles

View all
THE ADAM BUXTON PODCAST by ADAM BUXTON

THE ADAM BUXTON PODCAST

1,097 Listeners

Happy Place by Fearne Cotton

Happy Place

1,138 Listeners

Off Menu with Ed Gamble and James Acaster by Plosive

Off Menu with Ed Gamble and James Acaster

2,749 Listeners

Sh**ged Married Annoyed by Chris & Rosie Ramsey

Sh**ged Married Annoyed

1,230 Listeners

Katherine Ryan: Telling Everybody Everything by kathbum

Katherine Ryan: Telling Everybody Everything

628 Listeners

Parenting Hell with Rob Beckett and Josh Widdicombe by Keep It Light Media / Spotify Studios

Parenting Hell with Rob Beckett and Josh Widdicombe

999 Listeners

Alan Carr's 'Life's a Beach' by Keep It Light Media / Travesty Media

Alan Carr's 'Life's a Beach'

528 Listeners

At Peace Parents Podcast by Casey

At Peace Parents Podcast

369 Listeners

Where There's A Will, There's A Wake by Sony Music Entertainment

Where There's A Will, There's A Wake

176 Listeners

The Rest Is Entertainment by Goalhanger

The Rest Is Entertainment

957 Listeners

The Hidden 20% by The Hidden 20%

The Hidden 20%

32 Listeners

The Louis Theroux Podcast by Spotify Studios

The Louis Theroux Podcast

295 Listeners

I'm ADHD! No You're Not by Dr Mine Conkbayir MBE & Paul Whitehouse

I'm ADHD! No You're Not

22 Listeners

What's Up Docs? by BBC Radio 4

What's Up Docs?

124 Listeners

What's My Age Again? by Bauer Media

What's My Age Again?

40 Listeners