Tristin's daughter Kinley was diagnosed with a malignant rhabdoid tumor at four months old, and nine weeks into treatment, were told Kinley's cancer was incurable. She passed at seven months old. In our conversation today, we explore the complexities of navigating personal relationships and conversations in the context of pediatric oncology. We discuss the emotional weight of sharing Kinley's story, the importance of community support, and the challenges of maintaining privacy regarding a child's diagnosis. Tristin shares her deeply personal journey through caregiving, navigating medical challenges, and the emotional complexities of grief after the loss of Kinley. The discussion highlights the importance of connection in caregiving, the impact of receiving a life-altering diagnosis, and the coping strategies that have helped her navigate her grief. Tristin also shares her journey of navigating motherhood after the loss of Kinley, the importance of having a supportive community, the connection she feels between her living children and Kinley, and the complexities of grief. Tristin emphasizes the need for bereaved parents to find connections with others who understand their experiences and the balance of living a heavy life while still finding joy.
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