In honor of ALS Awareness Month,   I catch up with 4 people who are in the fight of their life as they battle ALS, a terminal illness that has no cure.    My guests are Bernadine Okeke, Taya Jones, Bruce Rosenblum and Zamir Kociaj.  I asked listeners, what they were most curious about when it comes to ALS.  My gracious guests, open their hearts and answer those questions and more. A few examples, How do you find joy every day, knowing you have a terminal illness?   After being diagnosed with ALS, is your faith more or less?  Do you see the world differently now?  It’s powerful to hear from those who realize their time on earth is more limited due to a fatal disease that doesn’t have a cure.  All of us living with ALS, ask you to share this inspiring episode and help bring others into our world.  Having others join our fight for a cure will help end this horrific disease and spare future generations to come.  Thank you for listening and  sharing.   Hugs, Lorri

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In this solo episode, I  share what's on my heart as it relates to giving yourself grace.    Why is it so hard to make space for grace?  Specifically giving ourselves grace.  We graciously do it for others, but what about us?  In this episode, I address: What is grace?  Why is it so hard?  What are some thoughts on it?  In a world that says, "go get it."  "Do better."  "Be the best version of yourself.”   We always seem to put a lot of pressure on ourselves to have it all together.  So when we are faced with frustrations or a difficult season, sometimes we forget about giving ourselves grace - that kindness you deserve.  Hoping you'll listen in and be reminded to always ignore your inner critic, let it go, and love yourself.  Thank you for letting me share.  Hugs, Lorri
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In this episode, I  chat with 28-year old Kanya Sesser.   Born with no legs in Thailand and found on the side of the road.  Kanya lets us know how to live fully and without regrets.   Kanya is now a professional skateboarder, surfer, actress, model, motivational speaker and activist.    She may have had a rough start in life but now she is showing us that all things are truly possible.   This young lady is strong, wise and won't let anything stop her.  We had a great chat about how she is fueled with such energy and a positive attitude to live out her  “No Legs, No Limits” motto.    She has such a great outlook on life and shares it with her friends, family, boyfriend and many audiences.  Kanya is determined to lead an ordinary life with an extraordinary zest for it.   She has appeared in “Hawaii Five-0”, “Walking Dead” and “The Fear of The Walking Dead.”   I'm so excited to share this conversation.   Make sure to follow Kanya on her Instagram @kanyasesser.   If you are touched by her story, please share this episode and spread the good vibes. If you like the podcast, I would love it if you reviewed the episode.  Thank you so much for listening.  Enjoy!
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Thank you.

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Hear how 10 year old Kennedy Arney is living with ALS, a terminal illness,  but yet adopts one of her best friend's mottos "ALS has no victory over Me!"   This episode is proof that inspiration can come in all sizes.   Listen in as I chat with 10 year old, Kennedy Arney of Michigan.  She is one of the youngest people in the United States to be diagnosed ALS.   We chat a little about ALS but more on faith, life and and of course ...besties & Harry Potter.   It was a blessing to get to know Kennedy more.  Her big heart & champion for kindness inspires me daily.   I hope you'll chime in and then share with a friend.  Thanks for listening.

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Welcome to Season 2 of I'm Dying To Tell You.   This is a special anniversary episode celebrating the first year of the podcast, each listener and all my inspiring guests.    I'll be checking in with a few guests from this past year, answering some listener questions and previewing season 2.   I am living with ALS, a fatal disease with no cure.  I am outliving my 2-5 year death sentence and am grateful to share inspiring stories here.  This episode gives you a peek into this podcast, my guests and how you can be a part.   Year one allowed me to gain inspiration from 38 guests and share them in 46  countries around the world.   I'm super excited for Season 2.  I hope you'll subscribe and join us!

Want to share what YOU are Dying To Tell us?  Nominate a guest?
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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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I imagine you've never heard a love story quite like this one.  This is  all about commitment, love and resilience.   Here I chat with Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and his wife, Lynne.   They open up about life with ALS, their unique love story and what they are dying to tell you.  They share the raw truth about their relationship and where they are today.  After living with ALS for 16 years they remain dedicated to finding treatments and cures for ALS through Augie’s Quest to Cure ALS.  Augie is the Chairman of the Board for Augie’s Quest and the ALSTDI .  Lynne is the “voice" of Augie’s Quest, and a board member of the ALSTDI.  I am so grateful and excited to share their inspiring love story.  Enjoy!

Want to share what YOU are Dying To Tell us?  Nominate a guest?
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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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Here I catch up with Juliana Fetherman, 24, who was inspired by her brother to help those with special needs make friends.  So many of us have been feeling extremely isolated during this pandemic.  My guest, Juliana knows that feeling alone on a daily basis is common for some.  Her brother, Michael has both autism and ADHD, and struggles with the interpersonal skills necessary for forming friendships and even holding conversations.  Juliana realized she wanted to create something to help him and others with special needs form friendships.  She created a new app called Making Authentic Friendships, or MAF.  Listen in and hear how a sister's love for her brother is helping spread kindness throughout the world.    Thanks for listening!  Hugs, Lorri

Want to share what YOU are Dying To Tell us?  Nominate a guest?
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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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Listen in and hear a beautiful testimony of how ordinary people have united to end ALS and change the world. This episode is a celebration of hope, love and community.  I celebrate I AM ALS turning 2, by talking with Cathy Collet, Jill Brattain and Nadia Sethi who have all lost someone to ALS.   All are driven by their heart to end ALS through their involvement with the patient-led group I AM ALS .  Cathy, Jill and Nadia share what gives them hope, why we should celebrate and what they are dying to tell you.  I AM ALS was created to not only cure ALS but to unlock critical breakthroughs that will help defeat Parkinson’s, Alzheimer’s, Frontotemporal Dementia, and beyond.   
Thanks for listening!  Hugs, Lorri

Want to share what YOU are Dying To Tell us?  Nominate a guest?
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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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Listen in as I chat with my joy go-to girl, Monica Scalf, founder of Crazy Grateful about what we are taking into the New Year and leaving in 2020 so that we can reclaim our MOJO in 2021.  We're sharing our personal experiences and what 2020 taught us.  Join our conversation by sharing what you are bringing into the new year to live joyfully.   Let's share with each other how to get this year started off right. 

Want to share what YOU are Dying To Tell us?  Nominate a guest? 
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Podcast community, photos & show notes at:
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Follow:
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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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Here I chat with Brian Cuban, the younger brother of Dallas Mavericks owner and entrepreneur Mark Cuban.  Brian is a Dallas based attorney, author and addiction recovery advocate.  Brian  shares his intimate life with addiction and eating disorders in hopes of inspiring others.  He has been in long term recovery from alcohol, cocaine and bulimia since April of 2007.  Brian’s most recent, best-selling book, The Addicted Lawyer, Tales of The Bar, Booze, Blow, & Redemption is a look back at how addiction and other mental health issues destroyed his career as a once successful lawyer.  He opens up about his painful past in hopes of helping others.  Brian's resilience is truly inspiring.
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