Today I’m speaking with Kimether Redmon about:

—Trauma-informed medical care.

—Some biases a person may face in the medical setting.

—Personal biases that Kimether has faced.

🎤WHO IS KIMETHER REDMON?🎤

She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment.

Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all.

☀️CONNECT WITH KIMETHER☀️

Kimether IG: @therebelliousuterus


Kimether’s podcast IG: @endothickofit

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

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Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Today I’m speaking with Kimether Redmon about tips to improve our medical appointments

—How to maximize the short amount of time we have with the practitioner.

—How to be more specific when describing our symptoms

—Our personal experiences with uncomfortable medical settings.

🎤Who is Kimether Redmon?🎤

She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment.

Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all.

☀️CONNECT WITH KIMETHER☀️

Kimether IG☀️ @therebelliousuterus

Kimether’s podcast IG☀️ @endothickofit

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Today Amy speaks with Dr. Shilpa Rao about:

—her personal experiences with cultural and social barriers to care

—her hopes for endometriosis care in the future in India.

🎤WHO IS DR. SHILPA RAO?🎤

Shilpa is a dentist by profession and an endo crusader by passion. She has a YouTube channel called The Endometriosis Crusader in which she interviews patients and professionals about various topics related to endometriosis and reproductive health.

☀️CONNECT WITH SHILPA☀️

Instagram @endostrongg

YouTube: Endo Crusader https://www.youtube.com/@shilpaa1980

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

We continue to talk about work accommodations under the Americans with Disabilities Act:

—medical documentation

—examples of what are reasonable vs unreasonable accommodations

—telework.

**DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode117

🔗Other reasonable accommodation issues (Enforcement Guidance on Reasonable Accommodation and Undue Hardship under the ADA)

🔗Telework as a Reasonable Accommodation

🔗Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act

🔗Job Accommodation Network’s Practical Guide to Accommodations

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

We talk about work accommodations under the Americans with Disabilities Act.

—what accommodations are vs accessibility in general

—who qualifies for accommodations under the ADA

—some ideas on how and when to request accommodation.

***DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode116

🔗Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act

🔗Job Accommodation Network’s Practical Guide to Accommodations

🔗Your Employment Rights as an Individual with a Disability

🔗Ashley Jacobson: Changing Disabled Employment with Accommodations

🔗EEOC Enforcement Guidance on Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Amy speaks with Dr. David Redwine about:

—“Sins of the endometriosis literature.”

—The recent research that came out with Horvath's pan-tissue clock and the origin of endometriosis.

—Claims on the Lupron website is that it’s “used for the reduction of endometriotic lesions.”

—Microscopic endometriosis.

—The ESHRE updated endometriosis guidelines around diagnosis of endo.

🎤WHO IS DR. DAVID REDWINE?🎤

Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physicians alike. He has presented his theory of origin of endo, Mulleriosis, around the world.

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Amy speaks with Kate Boyce (she/her) on:

—common red flags to look out for in wellness culture.

—how many people regret having spent thousands of dollars on naturopathy, coaches, and functional medicine that didn’t help them, that they could have instead spent on excision surgery, a registered dietitian, pelvic floor therapy, SIBO treatment with a gastroenterologist, or other types of doctors/treatment.

🎤WHO IS KATE BOYCE?🎤

Kate is a board certified patient advocate and endometriosis patient herself. She is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode114

🔗Hormones/HRT

🔗Wellness Culture

🔗Naturopathy and Functional Medicine

🔗The "Endo Diet"

☀️CONNECT WITH KATE☀️

Instagram @endogirlsblog

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Amy speaks with Dr. John Dulemba about:

—how for the past 20 years, he’s been testing the hormone receptors of endometriosis lesions.

—his findings and thoughts on endometriosis and hormones.

🎤WHO IS DR. DULEMBA?🎤

Dr Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode113

🔗Information on HRT

🔗Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here.

🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596

🔗Progesterone Resistance in Endometriosis – Article on Nancy’s Nook.

🔗Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Amy speaks with Julia Mandeville about:

—her research

—how a lack of representation affects Black endometriosis patients

—her hopes for the future of endometriosis care in the Caribbean.

🎤WHO IS JULIA MANDEVILLE?🎤

Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population.

In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema.

☀️CONNECT WITH JULIA☀️

Instagram @endoandpcosbb

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

Amy and Brittany talk about the grief that can accompany having a chronic illness.

—some reasons why we might grieve due to chronic illness

—what we personally grieve

—how our grief has impacted our lives.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode111

🔗Grieving Chronic Illness and Injury — Infinite Losses

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears