In Sixteen Years of Endometriosis

By Amy and Brittany

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best fri... more

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FAQs about In Sixteen Years of Endometriosis:

How many episodes does In Sixteen Years of Endometriosis have?

The podcast currently has 159 episodes available.

In Sixteen Years of Endometriosis episodes:

August 11, 2023 110: Endo Standard of Care with Arti Shah of Kenya
Amy speaks with Arti Shah about:
—her personal experiences with cultural and social barriers to care
—exciting initiatives that are improving body literacy and access to excision.
🎤WHO IS ARTI SHAH?🎤
Arti Shah (she/her) a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to battle this debilitating condition as we have and can have a better quality of life from an early age.
Arti is the host of A Ray of Sunshine, a podcast that has insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode110
🔗A Ray of Sunshine - Arti’s podcast "involves insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.”
🔗The Palgrave Handbook of Critical Menstruation Studies
☀️Connect with Arti☀️
Instagram @artiphotography
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
48min
July 26, 2023 109: Adhesions with Excision Surgeon Dr. John Dulemba
Amy speaks with Dr. John Dulemba about:
—all things adhesions, such as what they are, how they form, and who gets them
—his rationale behind the second look surgery for adhesions that he does just a few days after his original excision surgery.
🎤WHO IS DR. DULEMBA?🎤
Dr. Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot of insight on endometriosis.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode109
🔗Adhesions - article by Dr. Ken Sinervo, CEC
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 15min
July 12, 2023 Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy
Amy and Brittany have had this podcast for over 4 years! Recently, Amy listened to our episodes 1-50 to update them where necessary. Based on that, we talk about:
—how much our advocacy has changed and how much we’ve grown over these years.
—some of our mistakes we've made in our advocacy
—what we wish we’d known when we began advocating.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode108
🔗Ellis K, Munro D, Clarke J. Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371. doi: 10.3389/fgwh.2022.902371. PMID: 35620300; PMCID: PMC9127440.
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 15min
June 28, 2023 107: How to Find an Excision Surgeon with Kate Boyce, BCPA
Amy speaks with Kate Boyce about:
—how excision surgery is operator dependent, meaning that it depends on the surgeon’s skills.
—how there are very few excision surgeons in the world with the top level skill, and many regular OBGYNs with no extra surgical training, and then surgeons at different skill levels in between those.
—what to look for in a surgeon, so that we can know what questions to ask and how to determine if our surgeon has the necessary skills to excise our endo.
🎤WHO IS KATE BOYCE?🎤
Kate Boyce (she/her) is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode107
🔗How to Find a Specialist
🔗Analogy for the Hierarchy of Endometriosis Surgeons – IG post from EndoGirlsBlog to help understand the range of skills and experience different surgeons can have for endometriosis
🔗Treatment - learn about the differences between ablation and excision
☀️CONNECT WITH KATE☀️
Instagram @endogirlsblog
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 14min
June 14, 2023 106: Robotic Surgery for Endo with Excision Surgeon Dr. Dulemba
Amy speaks with Dr. John Dulemba about robotic surgey:
—its safety
—its advantages
—its disadvantages.
🎤WHO IS DR. DULEMBA?🎤
Dr. Dulemba is an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 5000 standard laparoscopic endometriosis cases and over 2300 robotic endometriosis cases! He's been performing robotic surgery since 2007, and now all his surgeries are done via robotics. Dr. Dulemba has published papers addressing pelvic pain, laparoscopy, endometriosis, and robotic surgery.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode106
🔗Robotic Surgery. Summary and review from my website
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 17min
May 30, 2023 Ep105: Ableism. Part 2
Amy and Brittany talk about ableism:
—how it's prevalent in society, and is systemic, just as racism and other forms of oppression and discrimination are.
—a brief recap of the medical vs the social model of disability before diving into some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities.
—the ableism of wellness culture and the lack of disability accommodations throughout society.
**Note: we are only speaking for ourselves and not for the disability community at large. If our limited discussion of ableism interests you, we encourage you to follow disabled people online and on social media, because there are many disabled people bringing awareness and speaking out on these topics. It’s important to dismantle our own ableism by learning from people of various identities and perspectives.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode105
🔗Working Definition of Ableism - January 2022 update - from Talila A. Lewis
🔗What's another word for crazy? From Word Hippo
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 5min
May 19, 2023 Ep104: Ableism. Part 1
Amy and Brittany talk about ableism:
—how it's prevalent in society and is systemic, just as racism and other forms of oppression and discrimination are
—the medical vs the social model of disability
—some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities.
***Note: we are only speaking for ourselves and not for the disability community at large. If our limited discussion of ableism interests you, we encourage you to follow disabled people online and on social media, because there are many disabled people bringing awareness and speaking out on these topics. It’s important to dismantle our own ableism by learning from people of various identities and perspectives.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode104
🔗Working Definition of Ableism - January 2022 update - from Talila A. Lewis
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 25min
April 20, 2023 103: Change the Guidelines with Invisible Iconic of Australia
Amy speaks with Alexandra (Alex) Mitchell about:
—the standard of endometriosis care
—the Australian movement to Change the Guidelines
—problems with multiple guidelines worldwide
🎤WHO IS ALEXANDRA MITCHELL?🎤
Alex is an outspoken advocate in our endometriosis community. Across multiple social media platforms and organizations, she pushes for systemic changes to endometriosis care so that patients can access the gold standard treatment that they need. She also is the creator and host of the Invisible Iconic Podcast, which features discussions with guests on topics related to endometriosis.
She contributed historical critiques of Australia and Romania’s standards of healthcare in ‘Good Girl, Bad Period: Breaking the Silence on Misogyny and Gaslighting Through the Lens of Endometriosis’ by Silvia Young
☀️CONNECT WITH ALEX☀️
Instagram @invisibleiconic
Podcast: The Invisible Iconic Podcast
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 26min
February 26, 2023 102: The Importance of Informed Consent with Dr. Jeff Arrington
Amy talks with Dr. Jeff Arrington about:
—what informed consent is and why it’s so vital
—what it would like look with endometriosis care
—changes we’d like to see in the ACOG endometriosis guidelines
—what we hope for the future of endometriosis treatment.
🎤WHO IS DR. JEFF ARRINGTON?🎤
Dr. Jeff Arrington is an outspoken endometriosis advocate, expert endometriosis excision surgeon, and advanced Minimally Invasive Gynecologic Surgery specialist. The evolution of his practice to focus on advanced excision of endometriosis really was driven by patient need. In practice he was able to continue advancing knowledge and surgical skill through focusing on endometriosis care, eventually building a full multi-disciplinary practice. Now, after his last 4 years as a surgeon at the Center for Endometriosis Care in Atlanta, GA, he is opening a new world-class endometriosis clinic, EndoWest, in the greater Salt Lake Valley.
Dr. Arrington is well known in the endometriosis community as one who advocates for all patients both in and out of the OR, constantly working to improve care options for patients with a focus on true and truthful informed consent and a higher value to patient autonomy.
☀️CONNECT WITH DR. ARRINGTON☀️
Facebook Jeff Arrington-Endosurgeon
Instagram @dr.jeff_endosurgeon
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 15min
February 10, 2023 101: You Are Not Broken
Amy and Brittany talk about:
—how dealing with this disease and all the repercussions of it on our physical and mental health often contributes to feeling broken
—how although we might feel this way, we are not inherently broken as a human being
—how we are not unworthy, inadequate, unlovable, or undeserving in any way
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
📖Amy's book Finding Peace with a Devastating Disease, by Amy Corfeli
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
...more
1h 20min

FAQs about In Sixteen Years of Endometriosis:

How many episodes does In Sixteen Years of Endometriosis have?

The podcast currently has 159 episodes available.

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