In Sixteen Years of Endometriosis

Amy and Brittany talk about ableism:

—how it's prevalent in society, and is systemic, just as racism and other forms of oppression and discrimination are.

—a brief recap of the medical vs the social model of disability before diving into some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities.

—the ableism of wellness culture and the lack of disability accommodations throughout society.

**Note: we are only speaking for ourselves and not for the disability community at large. If our limited discussion of ableism interests you, we encourage you to follow disabled people online and on social media, because there are many disabled people bringing awareness and speaking out on these topics. It’s important to dismantle our own ableism by learning from people of various identities and perspectives.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode105

🔗Working Definition of Ableism - January 2022 update - from Talila A. Lewis

🔗What's another word for crazy? From Word Hippo

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy and Brittany talk about ableism:

—how it's prevalent in society and is systemic, just as racism and other forms of oppression and discrimination are

—the medical vs the social model of disability

—some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities.

***Note: we are only speaking for ourselves and not for the disability community at large. If our limited discussion of ableism interests you, we encourage you to follow disabled people online and on social media, because there are many disabled people bringing awareness and speaking out on these topics. It’s important to dismantle our own ableism by learning from people of various identities and perspectives.

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode104

🔗Working Definition of Ableism - January 2022 update - from Talila A. Lewis

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy speaks with Alexandra (Alex) Mitchell about:

—the standard of endometriosis care

—the Australian movement to Change the Guidelines

—problems with multiple guidelines worldwide

🎤WHO IS ALEXANDRA MITCHELL?🎤

Alex is an outspoken advocate in our endometriosis community. Across multiple social media platforms and organizations, she pushes for systemic changes to endometriosis care so that patients can access the gold standard treatment that they need. She also is the creator and host of the Invisible Iconic Podcast, which features discussions with guests on topics related to endometriosis.

She contributed historical critiques of Australia and Romania’s standards of healthcare in ‘Good Girl, Bad Period: Breaking the Silence on Misogyny and Gaslighting Through the Lens of Endometriosis’ by Silvia Young

☀️CONNECT WITH ALEX☀️

Instagram @invisibleiconic

Podcast: The Invisible Iconic Podcast

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy talks with Dr. Jeff Arrington about:

—what informed consent is and why it’s so vital

—what it would like look with endometriosis care

—changes we’d like to see in the ACOG endometriosis guidelines

—what we hope for the future of endometriosis treatment.

🎤WHO IS DR. JEFF ARRINGTON?🎤

Dr. Jeff Arrington is an outspoken endometriosis advocate, expert endometriosis excision surgeon, and advanced Minimally Invasive Gynecologic Surgery specialist. The evolution of his practice to focus on advanced excision of endometriosis really was driven by patient need. In practice he was able to continue advancing knowledge and surgical skill through focusing on endometriosis care, eventually building a full multi-disciplinary practice.  Now, after his last 4 years as a surgeon at the Center for Endometriosis Care in Atlanta, GA, he is opening a new world-class endometriosis clinic, EndoWest, in the greater Salt Lake Valley. 

Dr. Arrington is well known in the endometriosis community as one who advocates for all patients both in and out of the OR, constantly working to improve care options for patients with a focus on true and truthful informed consent and a higher value to patient autonomy.

☀️CONNECT WITH DR. ARRINGTON☀️

Facebook Jeff Arrington-Endosurgeon

Instagram @dr.jeff_endosurgeon

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy and Brittany talk about:

—how dealing with this disease and all the repercussions of it on our physical and mental health often contributes to feeling broken

—how although we might feel this way, we are not inherently broken as a human being

—how we are not unworthy, inadequate, unlovable, or undeserving in any way

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

📖Amy's book Finding Peace with a Devastating Disease, by Amy Corfeli

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy speaks with Dr. Abhishek Mangeshikar about:

—excision surgery for endometriosis

—bowel endometriosis

—adhesions

—imaging

—endometriosis guidelines

🎤WHO IS DR. ABHISHEK MANGESHIKAR?🎤

Dr. Abhishek Mangeshikar (he/him) is an expert excision surgeon who also advocates and spreads awareness of correct information of endometriosis. He’s performed almost 2000 surgeries, and has been running his multidisciplinary endometriosis practice for over 7 years. He is the founder and director of the Indian Centre for Endometriosis (ICE).

🔗RESOURCES🔗

For clickable links to the resources below, go to www.insixteenyears.com/episode91

🔗Extra Pelvic Not Rare and Indian Center for Endometriosis talk Extra Pelvic Endometriosis – Video with Dr. Abhishek Mangeshikar and Dr. Wendy Bingham, PT, DPT

🔗Understanding Bowel endometriosis : What patients need to know – Video by excision surgeon Dr Mangeshikar

☀️CONNECT WITH DR. MANGESHIKAR☀️

Twitter @mangeshikar

Instagram @endometriosis_india

Website https://www.endometriosis-india.com/

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy speaks with Olivia Nwankudu about:

—the standard of care she’s come across in Nigeria

—the work that EndoSurvivors is doing

🎤WHO IS OLIVIA NWANKUDU?🎤

Olivia Nwankudu (she/her) is an endometriosis advocate and Founder of EndoSurvivors International Foundation (ESIF); a non-profit organization focused on raising awareness about endometriosis, educating the public about endometriosis, and supporting endometriosis patients in Nigeria.

ESIF is also committed to reducing period poverty and improving school retention through the free distribution of sanitary pads to school children. Since inception, ESIF has educated over 9000 adolescents on menstrual hygiene and the symptoms of endometriosis, thereby encouraging discussions about periods and promoting a care-seeking behavior among those experiencing symptoms of the disease in a bid to reduce diagnostic delays.

☀️CONNECT WITH OLIVIA AND ESIF☀️

Instagram and Twitter: @endosurvivors

LinkedIn and Facebook: EndoSurvivors International Foundation

Donations: Reach out to their organization on social media to be sent the link to support their hard work.

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Updated 10/2023. Amy and Brittany continue our series on disability by talking about

—identifying as disabled with endometriosis

—internalized ableism

—the social vs the medical model of disability

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Amy speaks with Soha Wahb about:

—her perspectives of being both a patient and healthcare professional to talk about the difficulties of accessing expert care

—the lack of set criteria and unwillingness among the general medical community to distinguish true optimal care from suboptimal care

—how the medical community in the region and worldwide needs to take initiative and responsibility in improving endometriosis care.

🎤WHO IS SOHA WAHB?🎤

Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about Endometriosis in both English and Arabic, and to shed light on patients’ struggles and the factors hindering access to proper care.

☀️CONNECT WITH SOHA☀️

Instagram @endoinarabic

YouTube https://www.youtube.com/channel/UCfWcwXxl0l3TYr2H3qZPB8g

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/

Updated 10/2023. Amy and Brittany talk about:

—common examples of medical gaslighting that we may have heard from our doctors

—the psychological toll it can take on us

☀️CONNECT WITH AMY☀️

Instagram @in16yearsofendo

Website: www.insixteenyears.com

Like my show? Please rate it or leave a review!

Support me by buying me a coffee: https://ko-fi.com/insixteenyears

⚠️DISCLAIMER⚠️

The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/