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In Sixteen Years of Endometriosis
In Sixteen Years of Endometriosis episodes
- 95: Endometriosis Guidelines with Kate BoyceAmy speaks with Kate Boyce about:—the various endometriosis guidelines worldwide which guide gynecologists in treating endometriosis and set the standard of care—how they are formed and what data is used***The focus is on the ACOG guidelines but the ESHRE and Australia guidelines are briefly mentioned for some comparative purposes.🎤WHO IS KATE BOYCE?🎤Kate Boyce (she/her) is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself.🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode95🔗ESHRE Guideline Endometriosis 2022🔗RANZCOG Endometriosis clinical practice guideline🔗Excision of Endometriosis - CEC website🔗Kalaitzopoulos, D.R., Samartzis, N., Kolovos, G.N. et al. Treatment of endometriosis: a review with comparison of 8 guidelines. BMC Women's Health 21, 397 (2021). https://doi.org/10.1186/s12905-021-01545-5🔗Ceccaroni M, Clarizia R, Mussi EA, Stepniewska AK, De Mitri P, Ceccarello M, Ruffo G, Bruni F, Rettore L, Surico D. "The Sword in the Stone": radical excision of deep infiltrating endometriosis with bowel shaving-a single-centre experience on 703 consecutive patients. Surg Endosc. 2022 May;36(5):3418-3431. doi: 10.1007/s00464-021-08663-z. Epub 2021 Jul 26. Erratum in: Surg Endosc. 2021 Oct 12;: PMID: 34312725.☀️CONNECT WITH KATE☀️Instagram @endogirlsblog☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 14 min
- Ep94: The Medical vs Social Model of Disability. Part 2Updated 10/2023. Amy and Brittany talk about:—the medical and the social model of disability—our thoughts on how it applies to endometriosis and chronic illness in general***These 2 models, which we explained about in episode 93, are just 2 ways of many to look at disability.🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode94🔗Chronic illness and Disability, intersection and separation - On "The Way We Roll" podcast🔗A Brief History of the Disability Rights Movement🔗Crip Camp - Documentary🔗Arthur A. Mirin. Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health. Journal of Women's Health. Jul 2021.956-963. http://doi.org/10.1089/jwh.2020.8682☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 3 min
- Ep93: The Medical vs Social Model of Disability. Part 1Updated 10/2023. Amy and Brittany explain:—two of the main models of disability, the social model and the medical model🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode93🔗Disability Impacts All of Us - from the CDC website🔗The Social Model of Disability - PDF download by Inclusion London🔗Models of Disability: Types and Definitions - by Disabled World🔗Social model of disability - by People with Disability Australia🔗What is Ableism - by Disability and Philanthropy Forum☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/34 min
- Ep92: Hormonal Medication Options for EndometriosisUpdated 1/2024. Amy and Brittany talk about—the different types of hormones, such as combined hormonal contraceptives, progestins, and GnRh drugs—how many doctors will tell their patient that X drug is the only option available to try and manage symptoms, but this isn’t true—efficacy, side effects, and first line vs second line treatment.🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode92🔗Donnez J, Dolmans MM. Endometriosis and Medical Therapy: From Progestogens to Progesterone Resistance to GnRH Antagonists: A Review. J Clin Med. 2021 Mar 5;10(5):1085. doi: 10.3390/jcm10051085. PMID: 33807739; PMCID: PMC7961981.🔗Resources on Lupron.🔗Resources on Orilissa.☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 9 min
- Ep91: What Can Hormonal Suppression Actually Do For Endometriosis?Updated 1/2024. Amy and Brittany talk about:—how hormonal suppression may help some people with their endometriosis symptoms—the flawed methodology in 2 studies on Lupron and Zoladex, and talk about how hormones can’t clean up or remove endo—how endometriosis can still progress and recur while a person is taking hormones🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode91🔗Endometriomas - from my website.🔗Hormonal Suppression - from my website🔗Gheorghisan-Galateanu AA, Gheorghiu ML. Hormonal Therapy in Women of Reproductive Age with Endometriosis: An Update. Acta Endocrinol (Buchar). 2019;15(2):276-281. doi:10.4183/aeb.2019.276🔗Donnez J, Dolmans MM. Endometriosis and Medical Therapy: From Progestogens to Progesterone Resistance to GnRH Antagonists: A Review. J Clin Med. 2021;10(5):1085. Published 2021 Mar 5. doi:10.3390/jcm10051085🔗Evers JL. The second-look laparoscopy for evaluation of the result of medical treatment of endometriosis should not be performed during ovarian suppression. Fertil Steril. 1987 Mar;47(3):502-4. doi: 10.1016/s0015-0282(16)59062-1. PMID: 2951279.🔗Luprolide - the D is silent. 300 page report to the FDA on Lupron by Dr. David Redwine.🔗Zoladex: Does it really treat endometriosis? by Endogirlsblog🔗Shaw RW. An open randomized comparative study of the effect of goserelin depot and danazol in the treatment of endometriosis. Zoladex Endometriosis Study Team. Fertil Steril. 1992 Aug;58(2):265-72. doi: 10.1016/s0015-0282(16)55205-4. PMID: 1386029.🔗THE BUSINESS OF BIRTH CONTROL - Documentary homepage.☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 32 min
- 90: Pelvic Floor Physical Therapy with Dr. Amy SteinAmy speaks with Dr. Amy Stein about:—what the pelvic floor is—what pelvic floor physical therapy is and how it can help patients with endometriosis—how to find a pelvic floor physical therapist🎤WHO IS DR. AMY STEIN?🎤We welcome Dr. Amy Stein, a physical therapist at the forefront of treating pelvic floor dysfunction and pelvic pain. In addition to being the founder of Beyond Basics Physical Therapy in NYC, Dr. Stein has served as the President – and is currently on the advisory board – of the International Pelvic Pain Society. She is the co-author of Beating Endo: How to reclaim your life from Endometriosis and the author of Heal Pelvic Pain.🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode90🔗Academy of Pelvic Health Physical Therapy🔗International Pelvic Pain Society🔗Herman & Wallace Pelvic Rehabilitation Institute☀️CONNECT WITH DR. STEIN☀️🔗Beyond Basics Physical Therapy☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 4 min
- Ep89: Endometriosis and DisabilityUpdated 10/2023. Amy and Brittany talk about disability:—the definition of disability under the ADA or the Americans with Disabilities Act—the WHO criteria of disability—dynamic as well as “invisible” or non-apparent disability🔗RESOURCES🔗For clickable links to the resources below, go to www.insixteenyears.com/episode89🔗Perspectives on the Meaning of “Disability”. AMA J Ethics. 2016;18(10):1025-1033. doi: 10.1001/journalofethics.2016.18.10.pfor2-1610.🔗ADA National Network🔗ADA-AA Definition of a Disability – Super helpful and has the examples we mentioned in the episode.🔗My Disability Is Dynamic by Brianne Benness🔗Ask Jan, Sample forms – Here you can find links to the Sample Medical Inquiry Form in Response to an Accommodation Request (the form we went over in the episode) and more.🔗Disability and Health Overview – WHO criteria found on the CDC website☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 9 min
- Ep88: It’s Okay If All You Did Today Was SurviveUpdated 10/2023. There are days when it feels like all we are doing is surviving. Amy and Brittany talk about—how we get through heavy feelings—how we try to stay open to possibility even on the most hopeless-feeling days.AMY'S BOOK: Finding Peace with a Devastating Disease by Amy Corfeli https://insixteenyears.com/book/☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 9 min
- 87: Acceptance, DBT, and Endometriosis with Maggie Bowyer. Part 2Amy and Brittany continue our chat on DBT (Dialectical Behavioral Therapy) with Maggie Bowyer talking about:—interpersonal skills—what we’ve learned—are each working on🎤WHO IS MAGGIE BOWYER?🎤Maggie (they/them) is the author of several poetry collections including When I Bleed: Poems about Endometriosis and Ungodly.☀️CONNECT WITH MAGGIE☀️Instagram @maggie.writesTwitter @maggiebow98www.maggiebowyer.com☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/30 min
- 86: Acceptance, DBT, and Endometriosis with Maggie Bowyer. Part 1Amy and Brittany talk with Maggie Bowyer about acceptance and Dialectical Behavioral Therapy (DBT). We talk about how:—DBT teaches skills such as acceptance, mindfulness, interpersonal skills, emotional regulation, and distress tolerance—how this skills relate to endometriosis—how they’ve helped us to live with more intention, peace, and meaning in spite of the challenges this disease brings🎤WHO IS MAGGIE BOWYER?🎤Maggie (they/them) is the author of several poetry collections including When I Bleed: Poems about Endometriosis and Ungodly.☀️CONNECT WITH MAGGIE☀️Instagram @maggie.writesTwitter @maggiebow98www.maggiebowyer.com☀️CONNECT WITH AMY☀️Instagram @in16yearsofendoWebsite: www.insixteenyears.comLike my show? Please rate it or leave a review!Support me by buying me a coffee: https://ko-fi.com/insixteenyears⚠️DISCLAIMER⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/1 hr 5 min
About In Sixteen Years of Endometriosis
From the publisher's feed
Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best…
friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! (2) Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide! Remember, the info presented here is educational info only and NOT medical advice.
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