In Sixteen Years of Endometriosis

By Amy and Brittany

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best fri... more

4.6

9090 ratings

Download on the App Store

Download on the App Store

Get it on Google Play

FAQs about In Sixteen Years of Endometriosis:

How many episodes does In Sixteen Years of Endometriosis have?

The podcast currently has 159 episodes available.

In Sixteen Years of Endometriosis episodes:

April 01, 2021 60: Extra Pelvic Endometriosis (Part 2) with Wendy Bingham
Amy speaks with Wendy Bingham DPT about
—what different cases of endometriosis in animals could mean for the origin of the disease
—the association between endometriosis and cardiovascular disease.
🎤WHO IS WENDY BINGHAM DPT?🎤
Wendy is the founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals.
☀️CONNECT WITH WENDY☀️
www.extrapelvicnotrare.org
Instagram @extrapelvicnotrare
Facebook ExtraPelvic Not Rare Endo Support and Education Group
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
48min
March 18, 2021 59: Extra Pelvic Endometriosis (Part 1) with Wendy Bingham DPT of ExtraPelvic Not Rare
Amy speaks with Wendy Bingham DPT about:
—why the definition of endometriosis desperately needs an overhaul and the proposed definitions from the scientific community for it.
—the problems with the current definition of extrapelvic endo.
—the ICD (International Classification of Diseases) codes and why these negatively affect our ability to truly know the statistics of extrapelvic endo
🎤WHO IS WENDY BINGHAM DPT?🎤
Wendy is the founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals.
☀️CONNECT WITH WENDY☀️
www.extrapelvicnotrare.org
Instagram @extrapelvicnotrare
Facebook ExtraPelvic Not Rare Endo Support and Education Group
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 26min
March 03, 2021 58: Insights into Endo with Heather Guidone, CEC Program Director
Amy speaks with Heather Guidone about:
—excision surgery
—the standard of care
—obstacles to treatment, and what endo actually does in the body.
🎤WHO IS HEATHER GUIDONE?🎤
Heather Guidone is a Board Certified Patient Advocate, and Program Director of the Center for Endometriosis Care in Atlanta, GA. Heather is responsible for the CEC’s comprehensive multidisciplinary care program, clinical research facilitation, disease education and legislative/public policy endeavors to promote better care for endometriosis and pelvic pain gynepathologies. She also coordinates the CEC's MIGS/Endometriosis Surgical Fellowship Program.
Heather has focused on 'bench to beltway to bedside' efforts in endometriosis education, research, policy reform, patient-centered care and more for nearly thirty years, but most importantly, she has also personally struggled with advanced endometriosis, adenomyosis and infertility herself and brings a unique perspective her professional works.
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode58
🔗The Palgrave Handbook of Critical Menstruation Studies – “Multi-disciplinary, genre-spanning and critical examination of the cultural, psychological, political and social aspects of menstruation.” Editors: Chris Bobel, Inga T. Winkler, Breanne Fahs, Katie Ann Hasson, Elizabeth Arveda Kissling, Tomi-Ann Roberts.
🔗Center for Endometriosis Care – “Led by internationally renowned endometriosis expert Ken Sinervo, MD, MSc, FRCSC, ACGE, the CEC is a global leader in the care and treatment of the disease."
☀️CONNECT WITH HEATHER☀️
www.centerforendo.com
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
55min
February 18, 2021 57: Endometriosis is NOT the Endometrium. Part 2
Updated 1/2023. Amy and Brittany talk about:
—how endometriosis is different from the endometrium in terms of its estrogen and progesterone receptors.
—how the receptors directly affect the biological processes of the endometriotic tissue, causing it to act differently than the endometrium does
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode57
🔗Is endometriosis an autotransplant? – A chart of differences between endo and the endometrium from Endopaedia.info
🔗Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here.
🔗Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
🔗David Redwine, MD – Dr. Redwine’s talk on HOX genes.
🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
🔗Progesterone Resistance in Endometriosis – Article on Nancy’s Nook.
🔗Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 22min
February 04, 2021 56: Endometriosis is NOT the Endometrium. Part 1
Updated 4/2023. Amy and Brittany talk about
—some ways that endo and the endometrium differ
—why this is so important to know in terms of treatment options
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode56
🔗Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242
🔗Aude Béliard, M.D., Ph.D., Agnès Noël, Ph.D., Jean-Michel Foidart, M.D., Ph.D. Reduction of apoptosis and proliferation in endometriosis. Jul 1, 2004. DOI:https://doi.org/10.1016/j.fertnstert.2003.11.048
🔗Ali-Akbar Delbandi, M.Sc., Mahmoud Mahmoudi, Ph.D., Adel Shervin, M.D., Mojtaba Sankian, Ph.D., Somayeh Kazemnejad, Ph.D., Amir-Hassan Zarnani, Ph.D. Eutopic and ectopic stromal cells from patients with endometriosis exhibit differential invasive, adhesive, and proliferative behavior. May 29, 2013. DOI:https://doi.org/10.1016/j.fertnstert.2013.04.041
🔗Howard M Gebel, Ph.D., Donald P Braun, Ph.D., Anat Tambur, D.M.D., Ph.D., David Frame, Ph.D., Nasir Rana, M.D., W.Paul Dmowski, M.D., Ph.D. Spontaneous Apoptosis of Endometrial Tissue is Impaired in Women with Endometriosis. Jun 1, 1998. DOI:https://doi.org/10.1016/S0015-0282(98)00073-9
🔗Hilary O. D. Critchley, Jacqueline A. Maybin, Gregory M. Armstrong, and Alistair R. W. Williams. Physiology of the Endometrium and Regulation of Menstruation. 29 Apr 2020 DOI:https://doi.org/10.1152/physrev.00031.2019
🔗The Standard of Care is not Sufficient – Article on Nancy’s Nook by Dr. Jeff Arrington
🔗Endometriosis FAQs – These are from ACOG’s website with definition of endo incorrect as well as misleading information on treatment
🔗Petitioning ACOG to Change the Standards of Care for Endometriosis Patients – Information on the petition to ACOG
🔗The Problem with the ACOG Website – From Casey Berna’s website, this is a rewritten version of ACOG’s FAQs with correct information
🔗Q&A with Dr. Redwine: Is Endometriosis Genetic? If so, why won’t it always recur post-operatively?
🔗Nosebleeds – Article by Wendy Bingham from ExtraPelvic Not Rare
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 17min
January 20, 2021 55: Endometriosis and Estrogen
Updated 1/2024. Amy and Brittany talk about
—some of the roles that estrogen can play in endometriosis
—why mouse endometriosis models are problematic
—myths that everyone with endometriosis is estrogen dominant or that medical or natural menopause will treat the disease
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode55
🔗Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596
🔗Serdar E Bulun, Bahar D Yilmaz, Christia Sison, Kaoru Miyazaki, Lia Bernardi, Shimeng Liu, Amanda Kohlmeier, Ping Yin, Magdy Milad, JianJun Wei, Endometriosis, Endocrine Reviews, Volume 40, Issue 4, August 2019, Pages 1048–1079, https://doi.org/10.1210/er.2018-00242
🔗Endometriosis in Males – By Wendy Bingham from ExtraPelvic Not Rare
🔗Helpful table about hormonal balance symptoms – A list of the functions of estrogen in the body and symptoms of high or low estrogen
🔗Endometriosis persisting after hysterectomy and bilateral salpingo-oophorectomy: Removing the disease, not organs, is key to long-term relief – Article from Endopaedia.info
🔗Reason Why Hormone Therapy Alone Cannot Cure Endometriosis Uncovered – Quick summary of a research article on hormone receptors
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 15min
January 06, 2021 54: Do You Hate Your Personal “Endometriosis Diet”?
Updated 1/2024. Amy and Brittany each following what’s typically considered a restrictive diet. We talk about some of the language and mindset shifts that have helped us
—to stop hating the dietary choices we follow
—feel empowered
—have a more pleasant experience with eating
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 13min
December 23, 2020 Ep53: You Are Not A Burden
Updated 2/2023. Amy and Brittany talk about feeling like a burden. We talk about:
—how we find ourselves apologizing often and feeling guilty when we ask for help
—why we might feel this way
—why we are NOT a burden and how to learn to appreciate our value
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 20min
December 09, 2020 52: How Sleep Affects Our Health and Pain Levels
Updated 2/2023. Amy and Brittany talk about sleep:
—how hard it can be to sleep, especially if we have health problems
—why sleep is so important
🔗RESOURCES🔗
For clickable links to the resources below, go to www.insixteenyears.com/episode52
🔗Insomnia Until it Hurts. The role of sleep deprivation in chronic pain, especially muscle pain
🔗Bennett RM, Jones J, Turk DC, Russell IJ, Matallana L. An internet survey of 2,596 people with fibromyalgia. BMC Musculoskelet Disord. 2007;8:27. Published 2007 Mar 9. doi:10.1186/1471-2474-8-27
🔗Cognitive Behavioral Therapy for Insomnia (CBT-I)
🔗Qaseem A, Kansagara D, Forciea MA, Cooke M, Denberg TD; Clinical Guidelines Committee of the American College of Physicians. Management of Chronic Insomnia Disorder in Adults: A Clinical Practice Guideline From the American College of Physicians. Ann Intern Med. 2016 Jul 19;165(2):125-33. doi: 10.7326/M15-2175. Epub 2016 May 3. PMID: 27136449.
🔗Waters F, Chiu V, Atkinson A, Blom JD. Severe Sleep Deprivation Causes Hallucinations and a Gradual Progression Toward Psychosis With Increasing Time Awake. Front Psychiatry. 2018;9:303. Published 2018 Jul 10. doi:10.3389/fpsyt.2018.00303
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
59min
November 25, 2020 51: Practicing Gratitude to Help Our Mental Health
Updated 2/2023. Amy and Brittany talk about gratitude:
—how it can change the way we feel about our lives
—how it can be hard to practice when we are suffering from endo challenges
—how books, movies, and connecting with each other can help us find gratitude, inspiration, and strength
☀️CONNECT WITH AMY☀️
Instagram @in16yearsofendo
Website: www.insixteenyears.com
Like my show? Please rate it or leave a review!
Support me by buying me a coffee: https://ko-fi.com/insixteenyears
⚠️DISCLAIMER⚠️
The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/
...more
1h 10min

FAQs about In Sixteen Years of Endometriosis:

How many episodes does In Sixteen Years of Endometriosis have?

The podcast currently has 159 episodes available.

More shows like In Sixteen Years of Endometriosis

Radiolab by WNYC Studios

Radiolab

44,037 Listeners

This American Life by This American Life

This American Life

90,345 Listeners

Getting Better with Jonathan Van Ness by Sony Music Entertainment / Jonathan Van Ness

Getting Better with Jonathan Van Ness

19,076 Listeners

Pod Save America by Crooked Media

Pod Save America

86,922 Listeners

The Daily by The New York Times

The Daily

111,188 Listeners

Where Should We Begin? with Esther Perel by Esther Perel Global Media

Where Should We Begin? with Esther Perel

15,020 Listeners

The Diary Of A CEO with Steven Bartlett by DOAC

The Diary Of A CEO with Steven Bartlett

7,987 Listeners

Armchair Expert with Dax Shepard by Armchair Umbrella

Armchair Expert with Dax Shepard

69,361 Listeners

You Are Not Broken by Kelly Casperson, MD

You Are Not Broken

1,023 Listeners

Celebrity Memoir Book Club by Vox Media Podcast Network

Celebrity Memoir Book Club

6,358 Listeners

The Rest Is History by Goalhanger

The Rest Is History

13,654 Listeners

Huberman Lab by Scicomm Media

Huberman Lab

29,433 Listeners

The Only Endometriosis Podcast You Need by Sarah Darwen

The Only Endometriosis Podcast You Need

2 Listeners

The Mel Robbins Podcast by Mel Robbins

The Mel Robbins Podcast

19,854 Listeners

Endo Battery by Alanna

Endo Battery

10 Listeners